#'but we can't know for sure how much of that is due to hEDS spine/leg joint damage and how much to a separate neurological cause'

[bougiebutchbitch]

bad nerve day and legs keep seizing up and not working but I have cat on lap sooooo who's winning really

#disability #yayyyyy cat #.........he is getting frightied by my leg jerks tho alas #is my cat.... ableist....... (joking I'm joking) #I absolutely LOVE (/s) that three medical professionals so far have said 'well there is clearly something neurological going on' #'your reflexes are fucked and you have a lot of muscle weakness/spasticity/foot drop/etc' #'but we can't know for sure how much of that is due to hEDS spine/leg joint damage and how much to a separate neurological cause' #'soooo let us know when it gets worse and we will investigate further!' #despite me telling them each time IT HAS GOTTEN WORSE. like. okay. :/ #just what I need on top of all the other shit #the trouble is hEDS + spinal injuries & instability means I have so many fucking nerve problems #I got flat out told they'd think seriously about MS if I DIDN'T have hEDS which just. Sigh. #I know the problems my hEDS causes and I'm 90% sure this isn't one of them so. the endless fun of being a 'complex' medical case