Hey! Please look at my photos of myla. If you got your dog in California I think it’s mylas brother/sister
How did I just now see this!?? They do look like they could be related however we are all the way in VA! But their eyes, fur pattern, and breeds are all alike! Sweet Myla 🥰
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Second taxidermy class, featuring found butterflies and a birds nest from our yard!
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▫️Double hip dysplasia at birth
▫️Tarsal coalition repair surgeries
▫️Torn tendons
▫️Torn ligaments
▫️Torn cartilage
▫️Early onset osteoporosis
▫️20+ fractures
▫️GI distress
▫️Headaches
▫️Scoliosis and chronic back pain
▫️Fatigue
▫️Subluxations
▫️Daily widespread pain
▫️Arthritis
▫️Vitamin deficiencies
▫️Frequent infections
▫️Pericarditis
▫️POTS
▫️Lymphedema and pooling blood in legs
But also:
✨Resilience✨Strength✨Determination
✨Creativity✨Kindness✨Compassion
✨Empathy✨Advocacy ✨Appreciation for the small successes✨
Happy Ehlers Danlos Syndrome/Lupus awareness month! Hug your zebra loved ones, ask questions, and have empathy for the things you can and can’t see 💜🦓
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Invisible implies unable to be seen
The diagnoses I carry are labeled as such and maybe people can’t imagine, don’t want to imagine but it’s easy to dismiss something you claim is hidden from sight
what I experience is far from unseen
My disease reveals itself in the armor I don for battle each day, compression as a second skin, braces and tapes to hold together tissue and bone frail and bird like
It is visible in the hours spent in waiting rooms, the familiarity of cold, clinical sterility associated with pain
My skin bears the burden of illness, marked with bruises and scarring delicate as aging paper
Punctured daily with medicine intended to heal glass bones but simultaneously eroding my spirit
At times flushing on my face akin to a butterfly’s resting place, red hot wings branded onto flesh
This malady is seen in the repeated fractures and tears, limping and adjusting to find relief
It is identified in my need to sit, the sweat that blossoms when I must stand, the blood pooling in extremities, swelled and discolored
Mostly it is evident in the absence of me, the late night gatherings that happen as I rest, physical activities exceeding what I can give
The pain and exhaustion dragging me back to a point of isolation, one from which I’d escape if I could
The manifestations are intricate but revealed with empathy and the mindful gathering of information
To call my conditions invisible negates the palpable evidence of affliction
Minimizes my experience
And exacerbates my pain
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