Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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meal ideas!
low energy ("do not ask me to do any prep work at all, so help me god")
mozzerella cheese wrapped in pepperoni ("pizza tacos"!)
hummus and pretzels or naan (putting the naan in the microwave for like 10 seconds...heavenly)
canned chili (with shredded cheese and sour cream if you have it! boom done!)
instant miso soup (warm and lovely! put tofu in it for protein!)
cheese and cured meat, olives, canned fish, crackers, dried fruit, or whatever easy "charcuterie" type items you like
alternate bites of apple and spoonfulls of peanut butter (mixing honey or chocolate chips to the peanut butter is my favorite)
a "deconstructed sandwich": bites of lunch meat, pickles, cheese, cherry tomato, etc (I love roast beef and white cheddar for this)
yogurt and granola or fruit
put frozen potstickers + frozen edamame in the steamer/rice cooker, chill elsewhere with a timer set, then boom
tortilla chips + canned refried beans + cherry tomatoes + cilantro + jarred salsa con queso (or warm shredded cheese on top of the chips in the microwave for 30 seconds)
bagel + cream cheese + lox
microwave scrambled eggs (add things like green onion, soy sauce, or anything else you like!)
cottage cheese and fruit (mixed together or just on the side)
bowl of shredded rotisserie chicken + buffalo sauce + a bit of mayo + green onion (use a kitchen scissors to cut them right in!)
medium energy ("I'll boil water but don't ask me to chop shit")
boiled eggs and fresh veggies (put a little salt on top of the eggs!)
buttered noodles (my go-to nausea meal, it has never failed me. ideas of things to add: frozen peas, imitation crab, roasted garlic)
baked potato with toppings (I like cheese, bacon, broccoli, green onion, and sour cream)
quesadilla (add some canned beans, cilantro, or avocado!)
pot roast (requires a lot of time but not a lot of actual work. I love it with peas!)
cuban sandwich (bread, swiss, pickle, mustard, ham... my favorite thing to panini-ify by far)
pan-fried tofu with scallion sauce (this sauce goes well with everything and tofu is no exception)
pancakes or waffles! (I love mine with jam)
ham, pickle, and cream cheese roll-ups
fried eggs (with toast and lots of butter...so comforting)
fruit smoothie (bananas, frozen strawberries, yogurt...or whatever!)
I hate salad but could write essays on this copycat olive garden salad (throw it in a bowl! chopping required if you use onion)
spaghetti (controversial maybe but angel hair > spaghetti noodles)
pasta salad (olives broccoli fresh mozerella... those little mini pepperonis... yeah)
stir-fried thai garlic shrimp (I like using the mini frozen salad shrimps, it's easy! use jarred minced garlic to avoid chopping!)
tuna mayo onigiri
slow cooker ribs
buffalo chicken wrap (or any number of other wrap options! shred pre-cooked rotisserie chicken to make it easier)
if your local grocery store sells pre-cooked gyro strips, that can turn into an easy wrap with store-bought pita & tzatziki with tomatoes and onions!
couscous and chickpeas
tortellini + pasta sauce + spinach
high energy ("I don't mind chopping some things up!")
stuffed shells with spinach
chicken and roasted garlic (oh my god.....one of my all time favorites)
beef tacos (I like mine with cilantro and onion, and when I'm feeling especially high energy I love a tomatillo salsa)
chicken alfredo
tom kha gai (a thai soup and my absolute favorite! you just need access to galangal)
lasagna! (freezes well and then boom! low energy meal for later)
pad thai! (not as hard as you'd think, as long as you have access to tamarind paste!)
potstickers! (this is a lovely group activity if you want to cook with housemates!)
rice and beans
bang bang shrimp (ogughfhgfuh I love it. you can also do bang bang tofu!)
minestrone soup (so many nice veggies!)
fried rice (put whatever you have on hand in there! broccoli, peas, carrot, and beef is my favorite combo)
broccoli cheddar soup
spring rolls and peanut sauce
skewers (such as beef, onion, zucchini, bell pepper... you don't need a grill, oven works!)
roasted turkey with garlic parmesean asparagus
pork chop with mashed potatoes
panang curry
chicken gnocchi soup (use store bought gnocchi or make your own if you have a high energy day!)
bibimbap (super customizable depending on what veggies you like best)
butter chicken
plus! things that have helped me meal plan:
whenever you think of a meal you'd like to make, take 3 seconds to google search it, take a screenshot of the image results, and put it in a "food ideas" folder. instant visual menu!
the concept of "meal prepping" makes me recoil but I've learned that it can simply mean preparing shredded chicken, boiled eggs, or some other simple protein that you can customize throughout the week. shredded chicken can turn into wraps, salads, pasta dishes, etc... you don't have to meal prep yourself into the same meal all week!
when I have difficulty working up an appetite, I'll scroll through my favorite restaurant menus! there might be some foods I can't make at home, but many times they're very simple to recreate because the ingredients are literally listed!
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