#walk for epilepsy

[crippledcryptidd]

Answering questions i get about my cane (on tumblr, other apps and irl)

1. “Is it heavy from the decorations?” It does make it a little heavier but not much and it’s not that heavy with them on and most added weight is from the lights and the batteries to them. Since it’s doesn’t add much weight it doesn’t make it hard for me to use but it might for others so if you can’t do lights then garlands might work

2. “Do any of the decorations cause issues?” Not really they don’t swing or clank and they’re not to heavy for me

#disabled #cpunk #cripple punk #queer cripple #neurological disorder #neurodivergent #physically disabled #disability #tourettes #neurological disability #walking canes #cane #cane user #mobility aid user #actually epileptic #epilepsy awareness #chronic migraine #migraine #asthma

[ochreoutpost]

heavily inspired by the game Mother of Worries (2013)

#retro #indie game #pixel art #Mother of Worries #animated #eyestrain #epilepsy warning #seizure warning #horror #psychological horror #walking simulator #dreamcore #artist on tumblr #trans artist

[walks-the-ages]

Got an anon trying to defend the Avatar 2 movie once again lol, only this time trying to do it from a "holier than thou" stance of ""you don't actually care about people with Epilepsy!"" To cover the fact that they're defending shitty racist garbage that gives people seizures. 🤷

I mean. I literally follow Multiple people on here who can't drive now because seeing Avatar 2 gave them their first seizure in awhilr and had their driving license revoked. 🤷 And I literally had a coworker at my last job have epilepsy and have multiple seizures while on the job, ( but you know. Failed to inform any of her coworkers including that she was epileptic and had abscence seizures regularly despite knowing shes had them at work before up until I was literally about to call an ambulance when she out of the blue stood frozen at the register making repetitive noises and not responding and then acted like it was no big deal to inform me AFTER the fact.

Like. Please. If you are epileptic let your coworkers know and tell them how to behave if it happens when they're around, especially if you have the tonic clonic ones (my worker didn't have them thankfully) because people are uneducated

and fucking stupid from movies and books perpetuating old myths and I don't think you want to wake up from a seizure to find you have a broken jaw from someone shoving their hand in your mouth to stop you from "swallowing your tongue" )

Anyway, the cowardly anon had been blocked now lmao. Here's their Hot Take™:

" Don;t go on about how the mo0vie was bad for people with Epilepsy, only 3% of people with Epilepsy are phtosensitive and its annoyances like who who spread misinformation aboptu how flashing lights are the Epileptics community's biggest fear. The most common Epilepsy trigger is stress and dehydration/overheating but you don't see anyone giving a shit about our mental health or temperature. people like you just like to pretend that you care without actually doing any research."

1) this person is soooooo desperate to defend Racist Movie 2 electric Boogaloo they're going to pretend people talking about the inrony of it including an epileptic character while having seizure-inducing flashing lights for the aesthetic means I "don't actually care about epileptic people". Uhuh, sure.

2) I guess it you're the one of the millions of " 3% of people " with photosensitive epilepsy who has been impacted by the recent trend of big box office movies flagrantly endangering people for the sake of aesthetics when flashing lights are the trigger people are most publicly aware of but STILL choose to use despite knowing full well it's harmful, according to this anon you don't matter!

Apparently no one should EVER talk about the real world harm of having painful flashing lights in movies for the sake of aesthetic when people are aware they're dangerous and taking them out of the movie does it zero harm.

And that's JUST for people with photosensitive epilepsy, what about people with migraines and other photosesitivity disorders?

I literally can't watch the original Alien without closing my eyes or looking away from the screen for minutes at a time because there's so many scenes where it's just minutes of flashing black and white strobe lights. Let alone Avatar 2 in a theater where you can't as easily look away and the screen is so bright you can still see the lights behind your closed eyes lmao.

3) " I don't see ~anyone~ caring about epileptic people's mental health or well being or temperature" okay well, here's the solution: follow more activists then, instead of harassing random Tumblr users who are criticizing your favorite racist movie.

I am not the 'be all end all' of epilepsy rights because I made posts immediately after watching the movie over a month ago, pointing out how shitty it is that James Cameron went out of his way to include flashing lights that are known to cause seizures (and migraines and headaches) despite apparently caring about epileptic people enough to include an epileptic character in his movie-- when NOT including flashing lights would be step one to actually caring about people with Epilepsy.

Just because "only 3% of people are photosensitive"

Doesn't mean that you can say "giving 3% of millions of people who will watch my movie migraines and potential seizures is acceptable for my aesthetics" , especially when you can literally find first hand accounts everywhere online from people who were personally given seizures or migraines from watching this shitty three hour racist movie.

Anyways, stop trying to defend the shitty racist movie to me, and stop trying to pick petty fights in the guise of "activism", if you don't care about the millions of people with photosensitive epilepsy harmed by flashing lights, cool, have fun with that, but I'm not going to throw people under the bus because they're 3% of the population, considering I'm part of a 1% part of the population that's aromantic and asexual lmao.

Using small percentage numbers to make a population of vulnerable people seem insignificant falls apart when you consider that the world's population is currently at 10 digits and counting.

#walks talks #walks replies #anon ask #epilepsy #avatar 2 #avatar the way of water #ableism #anon hate #hilarious anon hate actually

[good-wine-and-cheese]

Thinking about how when I was a kid and did not understand seizures or auras I would call the trippy lights that appeared in my vision “The Guys” and my parents understood what I was saying when I said “the guys are coming” and this meant I was going to have a seizure. But like I would say this at school to teachers and then promptly collapse and I just think I probably scared the shit out of a lot of people as a kid

#personal #epilepsy #its funny to me now #but like a kid walks up to you and says 'the guys are coming' and within 30 seconds is unresponsive and twitchy and maybe mumbling shit #what the fuck!!! #also probably scary for entirely other reasons like WHAT GUYS WHO its not people. sorry. the guys are just light spots in my eyeballs.

[xviruserrorx]

I will say one of the funniest parts of this last hospital stay was accidentally frazzling my nurses and doctors on accident

#first i was told to name all my diagnosis so i did and then when they were on poke number 3 for IV access #i suddenly remembered i had epilepsy XD #and so i was like 'oh! i forgot i have epilepsy!' and my nurse gave me the most DONE expression ive ever seen #their was a doctor that was in their that knew me too and she went 'oh yeah you do huh?' and wrote it down XD #then when i was going under for my procedure i had to have multiple different meds before hand as well as precautions in place #and so everyone was running around trying to get these meds and then when they were wheeling me back #we once again forgot about my epilepsy XD and the nurse notice and she was like 'wait you have epilepsy! did you get that med' #and so that happened but then once we got in the operating room they had pushed the anesthesia already but they were bickering back & forth #going 'get her on her back' 'no he likes them being on their sides' 'no thats the other doctor' 'is it?' 'i think it depends' #*walks over and looks at my chart again* *other guy hands me mouth piece to put in* *other guys walks back over* #'do you have trouble breathing on your back' *me with anesthesia already pushed and in my system* 'hwell ow at i an-' #*realizes mouth piece is still in my mouth and removes it so i can talk* 'oh yeah i tend to d-sat at night when i sleep' #*nurses realizing im going under finally* 'get her on her side! get her on her side!' #and then i blacked out XD #i love pre-op so much just because its so hilarious with what happens #virus rambling #anyways sometimes the hospital is fun the staff makes it homey and fun

[suncaptor]

I wish people could have actually all treated my unknown neurological symptoms normally instead like you know how much less terrifying it is to know these scary debilitating symptoms are migraine w/ aura.

#also shoutout to that one neuro opthamologist and B autisticandroids for bringing it up at all while everyone else was like #well either it's epilepsy which we can test or its conversion disorder #or maybe youre just too stupid to talk and walk i guess jdkakxkakskakkss #incoherents #vent

[toytulini]

not to shill for tumblr or be a mobile user on main but i do just wanna point out i think the response to the dashboard clown thing is a little disproportionate, all things considered

like if you just dont like the show thats fine but the way some of these posts are worded very weirdly and acting like its somehow way worse than.....literally any of the other ads? like yea tumblr is a company and not your friend, netflix is unethical and sucks. but like. are we pretending tumblr hasnt had ads for like. horrible fad diets and the fucking trump coin and god knows what else but like this really isnt worse than like. the fact that ppl with strobing triggers are constantly endangered by the ads on this site.

and maybe its super bad on desktop or something but so far this ad campaign has actually been one of the less obtrusive ones vs their other ads, imo. I dont think ive really seen them in between the posts on my dashboard? (hard to tell bc I try to automatically ignore those anyway) but like it feels like most of this ad campaign has been. a little fictional character at the top of the dashboard. and like. a separate dashboard "tab".....that i dont have to look at, and i dont. and its fine. i barely even noticed it. i probably wouldnt have thought twice about it if everyone hadnt started complaining about it. if tumblr wants to do more ads that are just dashboard tabs that I dont actually have to look at and arent interrupting my main dash i think im fine with that actually. like. obviously no advertisements are better than ads but like i dont have a particular problem with the structure or honestly even the content of this ad. its for a show that i might be intrigued to watch honestly. but its also not being targeted to me personally based on data harvesting its just blanket targeting to everyone.

again, id prefer no ads, but if we're going have them: i would actually prefer it be for things i might be interested in, but without the data harvesting to do it. if i HAVE to see ads, this is a way that i dont mind as much.

#toy txt post #sorry if you have a clown phobia ig. i hope one of the many posts with instructions on how to make the clown go away have been helpful for #you. i would like to point out that people can have phobias and triggers of Literally Anything so its not like there is anything that can be #advertised that is Fine For Everyone. i will admit clowns are a fairly common phobia but again i will point out the diet ads #and ask why we arent more incensed generally about the ubiquity of fatphobia in culture. and i will point out the unavoidable flashing ads #that have been a danger to ppl w strobing triggers. be that for migraines or epilepsy etc. both bad. #and i will point out. i dont THINK the clown has been strobing and i dont think the one piece ad campaign on tumblr dot com has been #particularly strobey? and i would just like to also say. its not even a scary clown. its not even like a horror ad. hes literally just like #a clown. its like walking past a spirit halloween. and tbh tis the season. sorry #idk. again. i think its fine to dislike the ads i think its fine to dislike clowns and one piece! but like #do you have to pretend its like The Virtuous Position of Righteous Outrage over an Ethical Transgression??? its literally fine #as far as my Problems With Tumblr Staff Go. Putting A Little Clown On The Dashboard As An Ad for a show is like #i dont. really give a shit. its fine. its cringe ig but what isnt. its fine to be cringe. its actually more cringe imo bc its an ad than the #the content itself being `cringey` bc u can cringe all day long at weeb nerd interests and for what? how dare genuine interest in media #i will say mixed bag of like. using ppls art within the ad campaign. not sure what the right thing to do there is tho #bc i think its honestly kind of a bad combo of tumblr trying to earnestly promote artists on the site #by reblogging and linking their work. but it is also. exploiting their art for advertisements without apparently asking or compensating them #WHICH. is still somehow a step above like hot topic and shit. bc tumblr is. i think? doing the bare minimum of linking to the artist? and #not presenting it as smth they made. perhaps in the future they could maintain the cool thing of trying to earnestly promote the work of #independent artists without it being as exploitative by like. asking permission to the artist to use their art and MAYBE even pay them #altho ig that can be tricky for things like this where its kind of fanart. but i do think they could work it out. like theyre clearly #already talking w netflix and shit so they could work a licensing deal w the artists or smth. but then that is also tricky rn specifically #bc of the strike. tumblr is a company that does not intend to join the unions. and generally i would probably prefer companies commission #independent artists in this way i think that would be cool. but in this situation specifically it would suck for the artist bc if they #approve it and get compensated for it instead of it just being fanart. now theyre Promoting A Struck Company Officially i think? #im not gonna pretend to know the details of what is and isnt allowed for influencers but if someone happens to like. be an artist who wants #to also get into sag aftra that might become a problem. idk! if nothing else. it definitely seems more complicated to navigate than tumblr #itself doing an ad campaign for netflix. which again. netflix sucks shit. but its not like Tumblr Ads(tm) are known for being only ethical #companies. i just saw like 5 ads for audible on my dash. you know. a company that i believe has had some shady shit w how it treats authors #and is owned by amazon.so like. idk. Advertising A Netflix Show is not high on my list of issues i have w staff or how theyre running things

[purplekturtle]

I just can't do anything rn

#actually epileptic #living with epilepsy #epileptic problems #seizures #triggers #walking myself into problems

[moviehealthcommunity]

Walk the Line (2005)

This is a Movie Health Community evaluation. It is intended to inform people of potential health hazards in movies and does not reflect the quality of the film itself. The information presented here has not been reviewed by any medical professionals.

Walk the Line has a few scenes that have bright flashes from single-flash cameras. These flashes are always far apart and never create a strobe effect, but they do happen suddenly.

Handheld cameras are used in a few scenes, but there is never violent shaking.

Flashing Lights: 2/10. Motion Sickness: 3/10.

TRIGGER WARNING: A child dies of a horrible bloody injury, for which we do not see the incident, but we see the death. Family members cower in fear when the father is violently angry in multiple scenes. One racial slur is used. People give unsolicited hateful comments about divorce.

NOTE: Our evaluations of The Flash and Elemental are now available on our Patreon page at Patreon.com/MovieHealth, and will both be available on this page on Tuesday, June 20.

Image ID: A promotional poster for Walk the Line

#Movie Health Community #Health Warning #Actually Epileptic #Photosensitive Epilepsy #Seizures #Migraines #Motion Sickness #20th Century Fox #Walk the Line #November #2005 #Joaquin Phoenix #Reese Witherspoon #Ginnifer Goodwin #Robert Patrick #James Mangold #Rated PG-13

[crippledcryptidd]

A and L for cane ask game!

Thank you so much for asking 💜 (Purple Heart emoji) /p

A. “What type of cane do you have?” I have a walking cane with i think what falls under a fritz handle, the tip is just one little rubber piece so it can’t stand on its own like the ones with the four piece tips can and the height adjusts and it’s pretty much all black if you take off all the decorations and it does not fold. I hope this makes sense i feel like i did a bad job explaining but i will try to answer questions if this doesn’t make sense

L. “Are there other aids you have?” I use a lot of different disability aids, mobility aids specifically i am also a wheelchair user but I don’t have my own wheelchair I rent them but i may be getting my own wheelchair and forearm crutches soon. I also use braces and compression socks along with a lot of other things that help me with my disabilities

#disabled #cpunk #cripple punk #physically disabled #neurological disorder #disability #neurodivergent #neurological disability #tourettes #fnd awareness #epilepsy #asthma #chronic migraine #queer cripple #walking canes #cane user #mobility aid #asks #ask game

[dirt-str1der]

Ever since i read this one fma fic about an alchemical natural phenomenon / disaster that happens once every few decades its been on my mind

#Listen to my problems #like every alchemist (person able to conduct alchemy) will start to act strange for a few weeks #then they all start to have strange thoughts and impulses. edward came up with the rubberband trick in order to snap himself out of those #trances. it worked for a while but the slight pain from snapping a rubber band against your wrist cant keep workinf #so mustang turns to straight up snorting cocaine which seems to keep the voices at bay but like i mean ed doesnt approve but if it works it #works ... eventually they all start to gather in an open field .. alchemists from all over the place forming a circle .. #edward handcuffs himself to mustang in an effort to keep him from walking off (at this point his wrist is a mess of red inflamed skin and #blood from using the rubberband so much) he fights mustang (walking steadily but mindlessly) so hard that it dislocates his shoulder and i #cant stop thinking of that description ... the joint of his shoulder sliding out of place with the consistent force ..... #he keeps pulling and eventually ed is dragged along (he fights the whole time but the call is too strong ...) #they find the other alchemists all waiting for their missing leader (its mustang!!!!) theyre lined up in concentric circles and mustang #walks right into the middle of all those circles. edward pulls at his arm theyre still lovked together .. ed is trying to get to his place #but he doesnt make it in time before the ritual starts with mustang right at the centre of it all ... #i dont actually remember the purpose of the ritual but it might have been to channel excess alchemical energy (yeah i realise that that cant #be it) back to the. earth. and after the event ends everyone wakes up without any memory of what happened #mustang being the conduit for all that power comes away from it with periodic fits of epilepsy ... and to him hes always been like this #... nobody remembers what happened ... even the last time this happened all ed was able to find was ancient newspaper articles talking #about their alchemists acting strange .... nobody remembers ......... ....................

[things-i-send-to-my-darling-bf]

Hey so I just went on a bot clean out and man there's alot of yall non bots now hi

Making this post so we have a couple of things clear here:

- This blog is for my husband (Hi bb <3)

- I do not mind people following/liking/reblogging ect.

- Just please keep in mind I do not and will not have a tagging system, if you have triggers that may come up here then I ask you to unfollow for your own wellbeing

- The exception to this for now (I may add others) is "flashing tw" in case of a flashing gif/video

- This is a Trans friendly space, Trans rights always

- To be clear as hell terfs are especially not welcome here, fuck off I am trans and I will fight you

Thats all I can think of for now, please know I pretty much won't be interacting at all I am here cause I love my husband alot and I wanna share the things I see that make me think of him <3

Have a nice day ✨️

~ River

#the flashing tag is just in case the post gets pushed to someone who may be at risk of epilepsy #so i may also use tags for any other posts that could be dangerous #but thats about the limit since this space really isnt meant for anyone but my husband #walk these grounds at your own risk 👁👁 #and have fun! :3

[voiding-vex]

it's kind of really funny to me that everyone keeps referring to my seizures and hospital stay and getting diagnosed with epilepsy as a "traumatic thing" when for me its just like. fuck okay thats a fair few fucking inconviences anyways (makes a million jokes about the whole thing)

#i keep referring to the tonic clonic seizures i had as #the shaky shaky ones #its funny to me #i laughed about the fact i had to wear an oxygen thingy #i dont know the name of them #the ones like goodtimeswithscar wears i had to wear one of those #i also couldnt walk for three days so had to be pushed around in a wheelchair #pogchamp #actually epileptic #epilepsy

[walks-the-ages]

what would you propose for movies that include flashing lights?/gen

Maybe certain screenings can have toned down lights, or ones that don't flash?

Also, I genuinely don't know, how is Avatar racist?

For movies that have flashing lights there's a few things, in order of ease/credibility:

1) All films that have sequences of flashing lights need to have mandatory warnings, not just certain brands of movie theaters picking and choosing when and where to put up homemade, paper signs

2) all warnings should have some kind of approximate time stamp for the sequence, not just a generic warning of "watch out, flashing lights! -- When? How often? Who knows! Just watch out!"

3) timers should be given to those who need them that will vibrate or give some kind of signal that the sequence with flashing lights is going to start momentarily, something to actually tell people in advance "hey, cover your eyes or look away in the next 30 seconds."

An alternative would be having lights on either side of the screen go into a gradient from green to red (or some other color that would be easier to see for people who are also color blind, I know there's a few different kinds of color blindness that can effect different colors) as it gets closer to the scenes in question, so as the lights slowly turn from green to orange people know once it goes red, they need to close their eyes.

4) special screenings that do not have flashing lights at all, or edited out/toned down through filter effects, but these would obviously be less accessible since most places would probably not have them available at a moments notice-- and places would probably try to charge more for it.

5) all movies and shows, as part of their final editing and vetting processes, should go before a board of medical professionals AND test audiences who can rate their discomfort with any light sequences shown.

As for the racism in the Avatar movies, please feel free to search my blog (idk if I tagged them in a way that's easy to find) but actual literal native tribes are calling to boycott the movies,

James Cameron has said some extremely shitty, victim-blaming shit about the genocide of native American tribes, he himself says the movies aren't about genocide or colonialism and instead are just about environmentalism, not casting native people in the roles in favor of white actors, and last but certainly not least, uh. Jake's hair. Jake's hair in the new movie. And Spider's hair.

Did... Did you notice how Jake, who is a white man (now in the body of a Na'avi), and Spider, who is also a white guy, are literally the only characters in the entire movie to have """dreadlocks"""?

Did you notice that? Because hooo boy does it stand out when you compare Jake in Avatar 1 to Jake in Avatar 2. Literally every. Single. Other. Na'avi has braids, and Jake also sported identical braids in the first movie.

But now, in the second movie, Jake suddenly has big noticable "dreadlocks", and Spider has matted white-person "dreadlocks", for literally no reason except James Cameron suddenly wants to also appropriate Black hair styles.... On his white characters.

But yeah search Tumblr or my blog and you will find plenty of posts from actually Native people going into depth about the racism in these films. But yeah, James Cameron himself has said some really shitty things as the first thing you can look up.

Oh and I've been reminded the entire thing is just Jake being a White Savior 100000% and also Neytiri and any other Na'avi women in the second movie just exist to be sexy or to cry and sob and scream in anguish.

#Avatar #Avatar 2 #avatar the way of water #james Cameron #avatar racism #anti native racism #epilepsy discussion #walks talks #walks replies

[kodocell]

The fact that medical alert bracelets cost money, let alone $50 for one (and that's on the cheap wns) is such insane abelism and classisim holy shit. Especially considering that disabled folks are more likely to be living in poverty and disability pay is significantly lower than the poverty line like jfc

#disability #disability accommodations #accesability #i want to get one for my epilepsy #especially since i have absent seizures and have walked into intersections as a result

[rise-my-angel]

.

#lmao i apparently had a seizure on my walk cus ive had post symptoms for like 40 mins #like can yall go away now i want to get up off my couch without being dizzy #update it took me THREE HOURS TO RECOVER FROM IT FUCK OFF I HAD THINGS TO DO I DIDNT EVEN EAT DINNER #never let ppl tell you epilepsy is scary to have #its not #its just fucking annoying