Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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country bumpkin merlin not knowing anything about city life and accidentally courting arthur without knowing
merlin, watching gwen give lancelot her favor: why do you do that
gwen, heart eyes at lance and not paying that much attention to the conversation: so he knows i’m rooting for him
merlin, with an Idea: ah.
gwaine, lover of chaos, pisser offer of nobles and royals alike, ultimate wingman: merlin…you have such lonely lips. shall i introduce them to mine?
merlin, unaware of the game gwaine is playing: so you can steal my breath away? i think not, scoundrel
arthur, crushing his goblet in his hand:
merlin: arthur’s been in a bad mood recently :( i should cheer him up
merlin, remembering when arthur was put out when merlin brought morgana flowers and not him: i know just the thing
merlin, bringing a bouquet of carnations, roses, and tulips and setting them on arthur’s table while he’s eating breakfast: good morning, sire
arthur, trained on flower language in hopes that one day when he was to take a queen he could woo her easily, trying not to audibly choke on his sausage as he reads merlin’s declaration of love sitting in front of him:
arthur, who recently found out about merlin’s magic and was trying to find a way to bring it up, catching him in the act and watching merlin panic to explain himself:
merlin, Freaking: and i swear to you arthur, i have only ever used it for you. my magic is yours. my life is yours. i am yours. i would never do anything to harm you. i have protected you for years and will continue to do so at your side if you’ll have me
arthur, already believing them to be courting, desperately trying to figure out if that was a proposal for marriage or not but tired of being confused and deciding fuck it: here.
merlin, taking it: i…uh…huh?
arthur, watching merlin with hawk eyes and trying to figure out what he’s thinking and feeling: it’s my mothers sigil
merlin, confused as FUCK but is focusing on the fact that arthur is handing him something of his mother rather than a death sentence: my…my lord?
arthur, realizing how scared merlin’s must be about him finding out about his magic and trying to comfort him while also proposing, killing two birds with one stone: i will always keep you at my side, merlin, so long as we both shall live. if you’ll allow me.
merlin, almost collapsing with relief and tearing up, smiling at arthur as if he had parted the storm clouds to allow sun to shine down on them in that moment: of course…of course, arthur. always and forever.
merlin, watching the castle staff rush this way and that: wow. this banquet must be incredibly important
sir leon the long suffering, day one ride or die, one of the original merthur shippers: banquet? merlin, this is for your wedding
merlin, overworked and exhausted: my WHAT? to WHO??
leon, regretting everything he’s ever done in his life that led him to this moment: to…arthur?
merlin, over joyed but also absolutely befuddled: i’m getting married to ARTHUR?????
leon: you two have been courting for the past year or so, have you not?
merlin: i’ve been COURTING ARTHUR?????? FOR A YEAR?????????
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