Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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sometimes I see people calling Aziraphale selfish in an accusatory way, as if it's a flaw that needs to be smoothed out, as if it isn't a trait that is at once defiant and emancipating, as if his selfishness isn't mostly wielded in an empowering and kind way, as if it's categorically bad to want things for yourself, to enjoy them, to have and keep them, as if selfish isn't the most revolutionary thing an angel can be
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Angel Aziraphale: Well it's very pretty.
Angel Crowley: Oh, thank you.
Angel Aziraphale: And I think you've done an excellent job.
This conversation is so pure 🥺!
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Recently Youtube's algorithm really wants me to watch Schindler's List and I never had so the other night I sat down and actually watched it.
Having a lot of thoughts about it but a major one I keep coming back to is how even an immensely and deeply flawed human being can go against "just following orders" and instead put in the work to actually help.
It may never be fully enough. It may never save as many as you'd hoped. But when you have a choice to either follow orders or save your fellow humans in front of you, I hope you choose the latter.
Schindler died in poverty. He was not a renown war hero nor was he at all famous or widely beloved. But he saw that he could help, even in some small way, and so he helped.
He was a Nazi who saw what the Nazis were doing to Jews and said no more. Enough. If I can even spare those under my charge, maybe a few extras, then at least I will have tried to do something about this.
I think a lot of people do not fancy this type of activism. It is messy, dangerous, and often completely thankless. Schindler survived as long as he did after the war due to those he saved helping him with donations. He was not popular in his hometown due to his association with Nazis, he was not popular in Germany, he was not popular in Argentina. His businesses all failed. His wife left him. A movie about his deeds was released several years after his death, where he would receive none of the benefits. He went to prison multiple times for simply refusing to hate Jews.
I think a lot of people like to think they're activists, but are sorely unprepared for doing this type of work, and then in truth become activists in name only. This is hard work. But without him, another thousand or so people would be on that death toll.
He took his position of extreme power- a Nazi owning a factory almost entirely operated by Jews, making oodles of money off that cheap slave labor- and said you know what? No. I'm not doing that. I can't save everyone, but as long as they are within my factory, you will not kill my workers. As long as I'm here you aren't harming one hair on the head of any Jew under my care. You're not sending or keeping them in Auschwitz. You're not randomly executing them for entertainment. They're people. You're not murdering them.
"Just following orders" they say. But they didn't have to. They could have helped. They could have did what he did, look around and say "what the fuck am I doing here", and stop. He did. They could have. They didn't.
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