One of the managers at work likes to take and hide peoples stuff as a joke. My manager took my pulse ox when I wasn’t looking. When I noticed it was gone I started to panic. A pulse ox is minimum $30 and I’ve had mine for over 7 years and have named it. So yeah I was panicking. I immediately paged my manager to my register and when he arrived I demanded it back. He did give it back.
I informed him that it was stupid and dangerous of him to take a medical device from someone especially like that.
my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.
because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?
they asked me if i was on my period. when i told them no, they asked me if i was pregnant.
when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.
disabled people, in this particular situation disabled afabs, are never fucking listened to.
the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.
so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.
just because i am open about being disabled and consider it a part of my identity, that doesn’t mean i’m happy about it. it just means that i refuse to suffer to make myself more “convenient.”
i hate you breathlessness i hate you brain fog i hate you dizziness i hate you tremors i hate you joint pain i hate you fatigue i hate you racing heart
shoutout to my chronically ill/disabled besties who need to sit down to do dishes/get dressed/brush ur teeth/cook/shower/other “simple” tasks that involve standing, i see u and i love u
Here’s a reminder that you don’t have to faint to have pots, and your pots is literally just as valid as anyone else’s, even if you never faint.
I always dealt with presyncope, never ever syncope. But my body decided to change it up this year, and now I’ve been dealing with the ✨ fainting episodes ✨ that have happened both in public at at my home.
I never ever thought I would actually faint, I always thought that it wasn’t “that bad” because I never fainted, I never went unconscious so what’s so bad about it, right?(/s)
Pots is pots, it’s not called postural orthostatic tachycardia fainting syndrome. It is what it is and whether or not you faint doesn’t determine the diagnosis! Fainting isn’t a prerequisite to getting diagnosed! Some pots patients have it bad, and some have it better. But either way, someone who faints 5 times a day, or faints occasionally (bonjour, it’s me) or never ever faints at all, we all share the same diagnosis!
Your presenting symptoms don’t equate the validity of your disorder.