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#mssucks
beautifulpersonpeach · 4 months
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I miss them bpp , more and more each day. What do I do?
#mssucks
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Eat, sleep, live through the pain of missing them. Shift that emotion towards making yourself better. Get used to it. Move on. 2025.
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sempersev · 11 months
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Hospital again. Felt sick, broke into a sweat, passed out. My legs are still crap from my fall 2 weeks ago. Now this.
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comicherovn · 21 days
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youtube
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msocresearch · 1 year
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The last round of Multiple Sclerosis Online Course (MSOC) is starting in 16 days! Please share this free educational resource😊 Sign up NOW via the study website: https://www.msonlinecourse.com.au Course duration: 27 March to 7 May 2023 Estimate effort: 1-2 hr per week Cost fee: Free Content: Introduction to MS, diet, vitamin D, exercise, mindfulness, medication, pregnancy, family & prevention Eligibility: adults with diagnosed MS If you'd like to be involved in the research and help to answer important questions to improve MS intervention and care, please submit the pre-course survey: https://melbourneuni.au1.qualtrics.com/jfe/form/SV_cHNCN0bwKWn3cq2 We greatly appreciate your time and contribution to MS research! Any questions please contact the research team: [email protected] Thank you for your support! Have a great weekend😊 #ms_society #multiplesclerosis #multiplesclerosiscare #multiplesclerosis_news #multiplesclerosisfoundation #msnewbooty #livingwithms #multiplesclerosisfighter #multiplesclerosiswarrior #multiplesclerosisproblems #msnews #multiplesclerosisnewstoday #multiplesclerosissociety #msresearch #multiplesclerosisresearch #multiplesclerosissucks #multiplesclerosisfamily #mssurvivor #multiplesclerosisstrong #multiplesclerosislife #multiplesclerosislifestyle #multiplesclerosismama #multiplesclerosispregnancy #multiplesclerosisawaren #msmum #fightmsin #msresearch #mslifestyle #mssucks #mssymptom #mstreatment (at University of Melbourne) https://www.instagram.com/p/Cpoy3_lv3iH/?igshid=NGJjMDIxMWI=
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kiramessina · 2 years
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Tuesday's selfie
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chandra-heylinzprey · 2 years
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It's been 10 years since I started my MS injectable treatment. But I'm diagnosed since I was 13.
I took thousands of injections, I had and have so many side effects, depression being the most significant one.
I'm "excited" to see what this disease has for me anymore...
Please...release me from this pain...don't know how much more I can stand.
PS: these are not ALL the injections that I "gathered"...
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fightermedic · 3 years
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MS sucks: not sure what I ate different but damn my stomach Is agitated. All damn day. I went two days prior constipated no poo, then today literally every near hour. My poor colon. I just want my internal organs to soothe. Peppermint tea and good thoughts are gonna aid me tonight.
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TINGUIAN: Search & Decolonize
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“Our ancestors have invented, we can at least innovate.” ― Amit Kalantri
DISCLAIMER! As a heads up, I want to let you know that I am still learning about my roots, my family, and my ancestors' stories. I am NOT an expert, but I will continue to do my research and share my findings with all of you.
For those who don't know, June is officially Filipino Heritage Month in Canada (and recently in Ontario)! It has brought so much joy and pride knowing that the Filipinx community is being recognized for their contributions from coast to coast.
As a Filipina-Canadian who was born and raised as an immigrant on a beautiful land called Turtle Island (settler-colonially known as North America) -- I do acknowledge that my family and I are guests in Canada and my roots are from the Philippines. Part of my roots is from Northern Philippines in a province known as Abra.
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It turns out, I am a descendant of an Indigenous Mountainous Tribe called Tingguian (meaning People in the Mountains) due to my paternal-grandmother. My ancestors had tattoos on their bodies with beautiful meanings (including beauty and honour). They were able to hunt and fish for food and weave baskets and dye the fabrics for clothing.
1-2 years ago, I was able to order a dark poncho made by the Tingguians in Abra via Pinas Sadya (a local Filipino shop). When it arrived On the front, it had red threads sewn on the borders while there are four frogs from all four directions (N, S, E, & W) facing the star in the middle on both sides. Based on what I was told: "The weaves with frogs are typically worn during the rainy season. It is the belief of the tribe that it pleases the gods and will give them a bountiful harvest". From that point on, I knew that I would wear it in April each year for April showers (and May flowers lol).
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Overall, I am happy and grateful that I am a descendant of the Tingguian tribe. This is a really cool fact that not a lot of people know about me. To be honest, I don't blame them. Every day is a new learning opportunity and I see it with a glass half full. I'm so happy that I found out how my ancestors were like prior to Spain's colonial invasion. However; I wish my grandmother was still here to tell me how much she knows. As the granddaughter of the Seeker of knowledge and wisdom, I am living up to her name by learning and asking questions of my ancestors' past and their way of life. When I have kids in the future, I will be sure to tell them about this part from my side. It is important to learn about the past in order to have a better future for all of humanity.
p.s. Please let me know if you or anyone knows where I can get more clothing made by the Tingguians. I would love to wear more clothing made by them ♥.
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fixmsnowdoglover · 4 years
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#mssucks https://www.instagram.com/p/B6TECuiggrF/?igshid=mydn4h1w8o0b
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ydecelis18 · 5 years
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This is an old memory but one I wanted to bring up since I keep having people complain to me about comments they get from others... What you shouldn't say when a friend has just told you they have multiple sclerosis: "OMG I need to get back to you I need time to process that." Really? You're not the one who has the condition why do you need to process it?!? I had someone say that to me a few years ago it truly left me momentarily speechless. I told him he could call me back but it's something I've always had some negative feelings about. #multiplesclerosis #mssucks https://www.instagram.com/p/B1wXhQGghcq/?igshid=17n2x0xiq4mk0
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mistykj · 5 years
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I must continue to tell myself this every day. This is so true for me but I have let this #Lupus #MS break me down. Now I am beginning to lose my words. I can't remember things, and I fumble with what I say and it comes out all wrong... I haven't broken down and just screamed but I think I'm getting to that point. This is annoying my kids and husband to the point of frustration and a bit of anger. I want to run away and just stay silent but I must push forward. *****Thank you to whoever posted this I needed it....*** #ihavetoremember #LupusSucks #MsSucks #AutoimmuneDiseaseSucks😤 #ChronicIllnessSucks #FibromyalgiaSucks #WhyIsMineDifferentFromYourLupus This is my #LupusTruth #WeNeedACure #Sle #MS #DontHideItEmbraceIt #lupus #lupuspain #lupuswarrior #lupusawareness, #MyDisabiltyIsntVisible #fibromyalgiaLikeSymptoms, BbloggerfightinLupus ✋💖 (at West Jordan, Utah) https://www.instagram.com/p/B1Ay4UGJLkB/?igshid=cclxwaxwx9pu
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grush91 · 5 years
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For “mom”. After I wrote this I immediately heard my mom’s voice, “So, I’m your *air-quotes* mom now? I think i remember better than you.” Or some sarcastic response similar to this. .
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Walking Encyclopedias
It’s hard dealing with this, thinking about all this disease has taken from my mom from our family, but it’s a weird relief seeing so many others facing this same burden.
Thank you everyone for donating! We raised $710 for the National MS Society!
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(at Pier 97)
https://www.instagram.com/p/BwzSnFQgRzg/?igshid=1740l98e7vdah
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sempersev · 1 year
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Woo!
After a lot of hassle getting it delivered, my new Jazzy Air 2 power lift wheelchair has arrived! Still have to get used to steering it, lol! My mom got it for me as a gift. Bought the 31st of December and just now got it. Will make things much easier!
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lagustasluscious · 5 years
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Sometimes Kate comes into work and I ask her how she is and she says, “eh, my body hurts.” Then she works a full day. As our General Manager, she runs this business called Lagusta’s Luscious far more than I do. She organizes our days and thinks big picture and small picture, updates the website, makes chocolates, washes dishes, hires and trains people. We all look up to her. Sometimes she has phantom pain that feels like her legs are on fire. Sometimes that pain lasts for months. She gives herself a shot every week in a horrific ordeal that would make a normal person break down. She just does it, knowing which bruised leg to inject into only because it hurts marginally less than the other. The next day she aches and getting out of bed feels impossible. She’s been five minutes late to work twice in six years. On her days off she volunteers at @lgbtqcenter. Kate has been living with MS for years, managed amazingly well through a combination of naturopathic (diet, supplements, an active job) and allopathic (those weekly shots, regular MRIs and doctor visits) treatments. MS sucks so bad. If you know, you know. Every year she does an MS walk, and this year’s is this Sunday. If you are able, please make a generous donation to her walk fund. The link is in her profile over @guiltmtn. 💖 #mssucks (at New Paltz, New York) https://www.instagram.com/p/Bw9mOBCDn1C/?utm_source=ig_tumblr_share&igshid=1ailx1eemhps2
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msocresearch · 1 year
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The last round of Multiple Sclerosis Online Course (MSOC) is starting in 1 month! Enrol now via: https://www.msonlinecourse.com.au (1) get a free 6-week online lifestyle intervention (diet, exercise, vitamin D, family and prevention, stress management etc.) (2) interact with MS experts and other people living with MS worldwide (3) be part of an important MS research study. Contact: [email protected]🤗 Course duration: 27 March – 7 May 2023 Estimate effort: 1-2 hours per week (any time/day of the week) Course content: Introduction to MS, diet modification, vitamin D, exercise, stress, family & prevention, medication etc. Course format: English, online worldwide If you'd like to be involved in the research and help to answer important questions to improve MS intervention and care, please submit the pre-course survey via: https://melbourneuni.au1.qualtrics.com/jfe/form/SV_cHNCN0bwKWn3cq2 In working together, we can expand our knowledge about effectively managing MS via lifestyle modifications! #ms_society #multiplesclerosis #multiplesclerosiscare #multiplesclerosis_news #multiplesclerosisfoundation #msnewbooty #livingwithms #multiplesclerosisfighter #multiplesclerosiswarrior #multiplesclerosisproblems #msnews #multiplesclerosisnewstoday #multiplesclerosissociety #msresearch #multiplesclerosisresearch #multiplesclerosissucks #multiplesclerosisfamily #mssurvivor #multiplesclerosisstrong #multiplesclerosislife #multiplesclerosislifestyle #multiplesclerosismama #multiplesclerosispregnancy #multiplesclerosisawaren #msmum #fightmsin #msresearch #mslifestyle #mssucks #mssymptom #mstreatment (at University of Melbourne) https://www.instagram.com/p/CpKd8D0vkJ5/?igshid=NGJjMDIxMWI=
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herbabryan07 · 6 years
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Grateful for small things, BIG things and everything in between! ♥️ This moment, today, and all the seconds in between have been incredible. I am so happy to see you finally in your space again Dad. Small steps are still steps and we’re getting there. I love you to the moon and beyond Dad!!!! #Strength #MSSucks #FamilyOuting #GratefulForItAll #MyDadIsSoStrong #PrayedForTheDaysWeHaveNow #CraigHospital #YouWriteYourChapters
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