#hey come on now people. let's not look a milk pump gift horse in the mouth

[cancer-man-speaks]

Cancer Sucks But You Live

My punctuation sucks because I haven’t evolved thumbs.

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Sometimes I put things off so long that I feel ashamed and in turn try to bury it even deeper in the pile of things to do. As far as excuses go it’s not the greatest but most fall short of that. A great deal of that lost time is laziness but there is also a part of me that doesn’t want to look back, that doesn’t want to remember what it was like to be where you are at.

    Always obsessed with outward appearance, I cracked a joke when the doctor told me that my PET scan lit up like a Christmas tree on crank. I cried in my sister’s arms when she ran to me across the snow dusted parking lot of the clinic. I smoked a pack of cigarettes on the car ride home, trying to keep my hands busy, to do something other than think about what this all meant. I calmed down before walking in, steeling myself to be as stoic and stone faced for my family as I could. In my head I thought that I couldn’t feel this for the sake of others around me. The moment I walked in the door, I saw the tear streaked faces of my mother and sisters. The dogs milled around their ankles not sure what to make of all their sorrow and their inability to help (or in our beagle’s case, his inability to get fed.) All my bluster, all my hubris fell away when I saw my loved ones, the things I had to lose all in one place. They embraced me one at a time then we came together as a group and I lost it. All motor control lost, my legs felt like jelly. They as a group, as a family supported my weight until I could stand on my own two feet again. The beagle, ever caring, bit me in the ankle for being too far into my mother’s person space.

When I got home from the biopsy, that confirmed the doctor’s suspicion of cool case of type b small cell non-Hodgkin's lymphoma, I took to sleeping on the floor. I told myself it was to keep my bad back comfortable but the truth was it felt good to have something solid underneath me as everything was changing. The days passed and the face in the mirror grew ever more foreign. The bone under my flab carved itself out in my cheeks and jaw. Hollow pockets formed around my eyes that gave me the look of an upstairs basement dwelling gnurdsferatu. The only thing that didn’t change were the patterns on the pitted hardwood of my floor. I’d take off my glasses, lay my head on the cool floor, and follow the whirls in the grain with my weary eyes until they lead out of blurry site. There was a comfort in knowing that just because I couldn’t see where the rich, brown lines ended it didn’t mean they were done travelling.

Either through pity or not being able to read the signs of chemotherapy I’d occasionally get compliments on my physique. Over a beer or two somebody would ask, “You look really good, man. What’s your secret? You been going to the gym or doing heroin?”

Nothing beats the satisfaction of the anti-joke that is responding with an off handed, casual, “I have cancer. It beats the hell out of doing palates.” After you explain the sitch to people a million times explaining it one more time is mundane and boring. They will stumble a second on their words; not sure if you are telling the truth or a joke in poor taste. It’s the ultimate, “Gotcha,” moment. When your diagnosis becomes blasé your spirits soar.

    From a few days after I was diagnosed letters poured in by the boatload. Friends, family, friends of family, people that had passed me once at the mall and paid a compliment to my shoes all wanted me to know that there was hope and that I was not alone. I’d read them and be dumbfounded by the amount of care people could express for a stranger. I was even more dumbfounded by the amount of care the family could express. No matter how hard I tried to blend into the background, to continue my weird, self-isolation from my family they kept firing salvo after salvo of cards and gifts. They’d send me gum, stickers that said, “Fuck Cancer,” (Because as we know cancer is terrified of strong language.), and all manner of sweet, sweet candy treats. There was no way for me to stay off the radar of the people that loved me.  

    I held it together through my first few rounds of chemo. It really didn’t bother me until my hair fell out. Until my fourth round I was feeling like a million bucks. I was getting skinny, I lost a few stray hairs, and I had an actual license to smoke pot. What 24-year-old wouldn’t love that? I was driving to the store to grab a drink and I ran my hand through my hair and it came back in tufts between my fingers. Pulling off the road into an abandoned store’s parking lot I started neurotically, compulsively picking away at my scalp and beard. Handfuls of the stuff coated the front seat of my 03’ Accord but still I couldn’t stop. I watched in horror as my reflection warped in the rearview mirror. I just couldn’t stop. After a half hour of what scholars refer to as, “Going bananas real manic like,” I regained my composure. I drove myself over to a friend’s house and had her shear my head with the clippers her dad used to shave his back. From that day on I was bald. It wasn’t so bad when I got used to it. Every now and then I would get a weird phantom limb sensation, as though I still had a rugged mane of hair, when the breeze blew on my naked scalp.

    I was in and out of the hospital all the time. My guts exploded one time when a tumor responded to the chemo and disappeared. It was what we wanted with the tumor, not so much what we wanted for my intestines. They cut out ten feet of my goop and stitched me back up. I was locked up in the cancer klink for two weeks after that. They had me on a tube and all of my food and fluids came from an IV, except when family or friends were around. They would sneak me a small cup of ice cubes, a rare sip of water, or even, once, a whole bottle of tangerine Bai over a whole night. Even when I was being a real grumpy cancer boy my friends, family, and everybody else would stick it out just to let me know I wasn’t alone. In that exact same stay, a friend of mine actually saved my life because he was able to understand my garbled speech through my nose/mouth tubes. I’d been trying to explain to my nurse that the bile vacuum they had in my guts was pumping my green-black bile back into me but she may have been one of god’s special people. When my friend confirmed that my gunk was being pumped back into me, he snagged somebody. Without that kind of support, I’d have either been dead or in the hooskow weeks longer. Not every situation is bubbling gut ooze but when it is remember to trust those people around you enough to say, “Hey, my bubbling gut ooze vacuum feels like its acting weird. Can you go look at the container the ooze is collecting in and tell me what it’s doing?”

    You’d think that with all this gut busting and chemo I’d be taking it easy. Wrong. I’m a big idiot so instead of resting I kept smoking, went to the bars regularly, and tried my hand at in the DIY rock n’ roll venue game. My nights before chemo were full of putting anything and everything I could inflict on my body. Jumping through tables, mosh pits, and drinking beer bongs to Jean Claude Van Dame flicks were everyday occurrences. I’d been dumb before cancer. With the ability to live a bohemian, YOLO life I did just that. I’d burn the candle at both ends because I didn’t know if there was going to be a tomorrow. Tomorrow always came; usually with a Jimmy Buffet grade hangover. Dumb. I was dumb. I did seven rounds of chemo then stem cell and not once did I let off the gas petal of stupidity.

    But you know what?

    I survived. Against all odds, against odds that I was actively trying to stack against myself, I survived. Was it a miracle sent down from the heavens? Maybe. Was it aliens? I’d like to think so. Was it the constant support of my friends and loved ones coupled with cutting edge, state of the art technology in the hands of the most competent doctors and nurses in the industry even though I was hellbent on dying young and beautiful because I’m an idiot? That’s a run-on sentence. It’s also a pretty good idea of what kept me alive, what will keep you alive. I was full to the brim with cancer while dancing on the brink of self-immolation. If I did everything in my power to give myself the odds of a three-legged horse at the Kentucky Derby what do you think yours are? I bet you take care of yourself at least slightly better. I’d like to think that if I beat cancer there is an infinite amount of hope for you, who is not an idiot with a death wish, to go into remission.

    There will be moments in the dead of night where you doubt your own survival. There will be bright days that you will sleep away. There will be moments where you lay on the floor in the fetal position bathed in hot tears and cold sweat. You will think of what a life without this hell would be like. You will feel like the cards are stacked against you. The, “What if’s,” will mix a cocktail of fatal fear in your skull eating away at your resolve. You will walk into your kitchen and forget for half an hour that you came in there for soup. You will throw that soup up and lay hunched and miserable over the porcelain for an hour. You will wonder who will carry your name? Who will see your babies walk across the stage at graduation?

The answer is you. This may be the worst moment of your life but it will not be the one that defines you. What defines you will be all that comes after this nightmare. With your two hands you will make great works. Gardens resplendent in their rainbow will call your master. You will see the white sands of far off beaches, will feel the artic chill of the frozen wastelands allegedly known as, “Canadia” far to the North. Mortal peril will be replaced with picking up the kids from karate and a gallon of milk. You will watch your children grow and cover this earth like that brand of paint I can’t mention for copyright reasons. As you watch them cross that stage or walk down the aisle you will have at your sides the same faces that did their best to make you smile from your bedside during your weakest moment. Trust in them as you would have them trust in you. They will be your guide when you cannot find yourself, we will be your guide.

#cancer #survivor #chemo #cancersurvivor #hope #advice #lymphoma #non hodgkins lymphoma #lifewithcancer #lifeaftercancer