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#fuck this feels bad
andthebeanstalk · 11 months
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
#hlep#original#mental health#my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it#i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support#and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of#huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the#longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel#i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop
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v0idwraith · 10 months
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David Szymanski: in my game i have invented the Iron Lung as a cautionary tale
Billionaires: at long last, we have created the Iron Lung from classic horror game Don’t Create The Iron Lung
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nanochittle · 20 days
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Reblog if you're LGBTQIA+ (Yes Trans people and people on the ace/aro spectrum are also valid, shut up)
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inkskinned · 10 months
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so one of the things that's so horrifying about birth control is that you have to, like, navigate this incredibly personal choice about your body and yet also face the epitome of misogyny. like, someone in the comments will say it wasn't that bad for me, and you'll be utterly silenced. like, everyone treats birth control like something that's super dirty. like, you have no fucking information or control over this thing because certain powerful people find it icky.
first it was the oral contraceptives. you went on those young, mostly for reasons unrelated to birth control - even your dermatologist suggested them to control your acne. the list of side effects was longer than your arm, and you just stared at it, horrified.
it made you so mentally ill, but you just heard that this was adulthood. that, yes, there are of course side effects, what did you expect. one day you looked up yasmin makes me depressed because surely this was far too intense, and you discovered that over 12,000 lawsuits had been successfully filed against the brand. it remains commonly prescribed on the open market. you switched brands a few times before oral contraceptives stopped being in any way effective. your doctor just, like, shrugged and said you could try a different brand again.
and the thing is that you're a feminist. you know from your own experience that birth control can be lifesaving, and that even when used for birth control - it is necessary healthcare. you have seen it save so many people from such bad situations, yourself included. it is critical that any person has access to birth control, and you would never suggest that we just get rid of all of it.
you were a little skeeved out by the implant (heard too many bad stories about it) and figured - okay, iud. it was some of the worst pain you've ever fucking experienced, and you did it with a small number of tylenol in your system (3), like you were getting your bikini line waxed instead of something practically sewn into your body.
and what's wild is that because sometimes it isn't a painful insertion process, it is vanishingly rare to find a doctor that will actually numb the area. while your doctor was talking to you about which brand to choose, you were thinking about the other ways you've been injured in your life. you thought about how you had a suspicious mole frozen off - something so small and easy - and how they'd numbed a huge area. you thought about when you broke your wrist and didn't actually notice, because you'd thought it was a sprain.
your understanding of pain is that how the human body responds to injury doesn't always relate to the actual pain tolerance of the person - it's more about how lucky that person is physically. maybe they broke it in a perfect way. maybe they happened to get hurt in a place without a lot of nerve endings. some people can handle a broken femur but crumble under a sore tooth. there's no true way to predict how "much" something actually hurts.
in no other situation would it be appropriate for doctors to ignore pain. just because someone can break their wrist and not feel it doesn't mean no one should receive pain meds for a broken wrist. it just means that particular person was lucky about it. it should not define treatment.
in the comments of videos about IUDs, literally thousands of people report agony. blinding, nauseating, soul-crushing agony. they say things like i had 2 kids and this was the worst thing i ever experienced or i literally have a tattoo on my ribs and it felt like a tickle. this thing almost killed me or would rather run into traffic than ever feel that again.
so it's either true that every single person who reports severe pain is exaggerating. or it's true that it's far more likely you will experience pain, rather than "just a pinch." and yet - there's nothing fucking been done about it. it kind of feels like a shrug is layered on top of everything - since technically it's elective, isn't it kind of your fault for agreeing to select it? stop being fearmongering. stop being defensive.
you fucking needed yours. you are almost weirdly protective of it. yours was so important for your physical and mental health. it helped you off hormonal birth control and even started helping some of your symptoms. it still fucking hurt for no fucking reason.
once while recovering from surgery, they offered you like 15 days of vicodin. you only took 2 of them. you've been offered oxy for tonsillitis. you turned down opioids while recovering from your wisdom tooth extraction. everything else has the option. you fucking drove yourself home after it, shocked and quietly weeping, feeling like something very bad had just happened. the nurse that held your hand during the experience looked down at you, tears in her eyes, and said - i know. this is cruelty in action.
and it's fucked up because the conversation is never just "hey, so the way we are doing this is fucking barbaric and doctors should be required to offer serious pain meds" - it's usually something around the lines of "well, it didn't kill you, did it?"
you just found out that removing that little bitch will hurt just as bad. a little pinch like how oral contraceptives have "some" serious symptoms. like your life and pain are expendable or not really important. like maybe we are all hysterical about it?
hysteria comes from the latin word for uterus, which is great!
you stand here at a crossroads. like - this thing is so important. did they really have to make it so fucking dangerous. and why is it that if you make a complaint, you're told - i didn't even want you to have this in the first place. we're told be careful what you wish for. we're told that it's our fault for wanting something so illict; we could simply choose not to need medication. that maybe if we don't like the scraps, we should get ready to starve.
we have been saying for so long - "i'm not asking you to remove the option, i'm asking you to reconsider the risk." this entire time we hear: well, this is what you wanted, isn't it?
#where's the word woman in this u might wonder if u suck#good news i am nonbinary and have a uterus so that is something that can happen#im also gender fluid tho which means im immune to certain psychic damage bc if u call me a woman i'll be like <3 okay <3#writeblr#the tightrope of ''ppl need access to this''#and like also#''what the fuck is going on over there'' is like. so difficult as an activist#i was <3 punctured <3 during mine#and almost bled out on the table :) they didn't have anyone standing by bc it's ''just a little insertion''#so i started crashing and i vaguely remember apologizing for the fuss as i heard my heart rate monitor start going <3 tachycardic <3#she wasn't even a bad doctor tbh#ps btw the reason i even HAD a heart monitor is that i have a genuine heart condition and they knew GOING IN that there was a chance#i'd crash on the table#like my heart just likes to do fun little tricks and <3 stop working <3 (i do not want to discuss the specifics ty i am okay im ontop of it#and they were like 'oh u will be fine' and then she did do a puncture thru my uterus . pop!#and im sitting there dizzy and feeling my heartrate start to drop bc it feels almost. beautiful. like. the whole ground just#woosh! out from under you. and shit is like grey's anatomy. i'm looking up at her grey eyes#she's old she wears this nice shawl she's like got Cool Lesbian vibes and people are sprinting into the room#from other parts of the clinic unrelated to me. while the monitor is like a little aria singing#and shes like hey youre okay stay awake stay with me something went wrong we have to keep trying#and i remember thinking - i was trying to think of nice things. i have so many beautiful places that now overlap#with this terrible memory#i became dimly aware that there was too much on her wrists and hands. like#that was too many liters#and then when they had finished all this. i packed up and drove myself home#i have had (bad thing) happen to me. and the same feeling happened after#that numb almost lamblike bleating. you cry without noise. like. ur body is so shocked and ur mind so empty#you just stare at the road and everything everything is happening behind glass and static and you are standing so far away from it#while you hold ur hands at 10 and 2. and something in ur brain is SCREAMING at you - IT WAS BAD AND IT SHOULDNT HAVE HAPPENED#and ur just watching the alarms in your body going off and youre thinking. a little pinch! ha. i think i just lost something important.
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allsystemsblue · 2 years
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Yasmine Wüster
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leo-bandito · 2 months
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something something gman tommy something something gordon in stasis. you know how it is.
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suntails · 5 days
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toot toot!
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ewwww-what · 11 days
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Nobody is as excited about the preview as I am. I have paragraphs.
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cloudpalettes · 9 months
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i'm not him ,,,,,
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jackblackhotelmirror · 3 months
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"friendly reminder that alastor is aroace" this "alastor is sex-repulsed" that-- alastor is a demon from an animated cartoon who loves to gossip and has beef with a television set because he hates modern technology, it's not that deep
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lightningcrashes · 8 months
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SPENCER REID Criminal Minds | 14.15 "Truth or Dare"
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inkskinned · 1 year
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there are a lot of posts out there that are positive and healthy coping mechanisms for handling the holidays. this is not one of them :)
i think there's like. going to be times in your life you will be stuck in a social situation that you cannot escape from gracefully. i do not know why the internet doesn't believe these times exist. it's not always just that your physical safety is at risk - sometimes it's legit like "i just don't currently have the energy or time to put in the effort of responding to this." sometimes it's a coworker you hate so much. sometimes it's just like, fine, you know? like you know you can handle your aunt when she's cheerily horrible, but if you actually set a boundary around her, it's going to be weeks of fallout with your father.
i don't know why people think the answer is always just "cut them out!" or "don't let them get away with that!" because ... the real world is tricky and complicated. i think kind of a lot of us have an internal "radiation poisoning" meter for certain people. like - i'm talking about the ones who are absolutely giving you gradual ick damage. like, you can handle them, but you'll be exhausted.
and yes. you absolutely should listen to your therapist and the good posts about handling others and set good boundaries and take care of yourself. prioritize peace.
HOWEVER :) ...... since im often in a situation with a Gradual Sense of Ick person i cannot just "cut out" of my life (without losing someone else precious to me) - i have sort of developed the most. maladaptive form of mischief possible. because like, if i'm going to have to listen to this shit again, i like to have a little bit of private fun with it.
now! again, i am physically safe, just mentally drained by this man. you should only do this with people you are not in danger with. which leads me to my suggestions for when your Unfortunate Acquaintance shows up and says oh everyone pay attention to me.
my favorite word is "maybe!" said as brightly and happily as possible. whenever the Horrible Person starts in on a topic you do not want to go further with, particularly if they make a claim that you know to be inaccurate, do not respond to it. you and i have both tried to actually argue with this person, and it hasn't gone well, because this person just wants the drama of an argument. however, "maybe!" gives them literally nothing to go on. it is incredibly disarming. they are used to people having some response. they know they can't prove what they're saying, and maybe! treats them like the child they are. it dismisses them in the politest way possible.
i like to say maybe! and then, in their stunned silence, immediately change the subject. this is because i have adhd and i will have something unrelated to talk about, but if you can't think of topics fast enough, i recommend just pointing to something and saying, "isn't that lovely?" because fuck you let's bring in some positivity.
by the way. that second trick - of pointing to something and stating an opinion about it? - that just works on its own, like, 70% of the time. i picked it up from teaching preschoolers. it's an intentional "redirect". it stops children crying and it also stops grown adults from finishing their explanation on why women belong in kitchens. dual wielding!
keep it silly for yourself. i absolutely do not care if people think i'm fucking stupid (it's more fun if they do) and as a result i will purposefully misunderstand things just to see how long it takes them to realize i've completely removed them from the subject at hand. when they say "women aren't funny" i get to be like. "which women." "all women." "all women in america?" "no in the world." "like the mole people? the people in the world?" "what? no. like, alive." "oh are we not counting the mole people?" "what the fuck are you talking about." "you don't believe in the mole people?"
similarly, i play a personal game called "one up me." my Evil Acquaintance literally knows this game exists (my family & friends caught onto it and now also play it) and it always fucking gets him. i don't know why. you have to be willing to be a little free-spirited on this one, though. the trick is that when they make one of those horrible little bigoted or annoying comments they are always making, you need to go one unit weirder. not more intense, mind you - just more weird. "you don't look good in that dress." "yeah, actually, my other dress was covered in squid ink due to a mishap at the soup store." "you shouldn't wear such revealing clothes." "wait, what? oh shit. sorry, your son tears off strips when no one is looking and eats them. i swear it was longer before we left the building."
the point of "one up me" is to completely upend this person's narrative. we both know this person likes setting up situations where you cannot "win" and then they really like telling other people how badly you handled it. in a usual situation, if you respond "please don't say something that rude", you're a bitch. but if you let it happen, you're letting yourself be debased. they are not usually expecting door number three: unflappably odd. because what are they going to say when they're telling everyone how badly you behaved? "she said my son eats her dresses" ".... okay?"
if you can, form an allyship with someone whomst you can tagteam with. where they can pick up on your weird "soup store" story and run with it.
the following phrase is amazing and can be deployed for any situation: "oh, be nice :) it's the holidays!" i do not know why this works as often as it does. i'll say it for the most random shit. i think this is bc most of the time these people know they're being impolite, they just like to fight.
godbless. when in doubt, remember that you could always start stealing their pens.
the whole point of this is - if you can't escape. maybe see how long you can just be. like. a horrible little menace.
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borzoilover69 · 9 months
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heres your food im redesigning some other idiots for a lineup
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gallusrostromegalus · 6 months
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Kenpachi Realizes Nobody Else Actually Read The Employee Handbook And Decides To Get Inventive, A Story In A Ranking Chart
Yamamoto Thought He Was Punishing Everyone Including Zaraki By Making Him Actually Fill Out That Report, Was Not Ready For Zaraki To Deliver A Twelve Hundred Slide Powerpoint Category Seven Autism Infodump About It A Week Later, A Sequel
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shanblackwood · 2 years
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techno <3
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sugarcoatednightshade · 5 months
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thinking about how Humans Are Space Orcs stories always talk about how indestructible humans are, our endurance, our ability to withstand common poisons, etc. and thats all well and good, its really fun to read, but it gets repetitive after a while because we aren't all like that.
And that got me thinking about why this trope is so common in the first place, and the conclusion I came to is actually kind of obvious if you think about it. Not everyone is allowed to go into space. This is true now, with the number of physical restrictions placed on astronauts (including height limits), but I imagine it's just as strict in some imaginary future where humans are first coming into contact with alien species. Because in that case there will definitely be military personnel alongside any possible diplomatic parties.
And I imagine that all interactions aliens have ever had up until this point have been with trained personnel. Even basic military troops conform to this standard, to some degree. So aliens meet us and they're shocked and horrified to discover that we have no obvious weaknesses, we're all either crazy smart or crazy strong (still always a little crazy, academia and war will do that to you), and not only that but we like, literally all the same height so there's no way to tell any of us apart.
And Humans Are Death Worlders stories spread throughout the galaxy. Years or decades or centuries of interspecies suspicion and hostilities preventing any alien from setting foot/claw/limb/appendage/etc. on Earth until slowly more beings are allowed to come through. And not just diplomats who keep to government buildings, but tourists. Exchange students. Temporary visitors granted permission to go wherever they please, so they go out in search of 'real terran culture' and what do they find?
Humans with innate heart defects that prevent them from drinking caffeine. Humans with chronic pain and chronic fatigue who lack the boundless endurance humans are supposedly famous for. Humans too tall or too short or too fat to be allowed into space. Humans who are so scared of the world they need to take pills just to function. Humans with IBS who can't stand spicy foods, capsaicin really is poison to them. Lactose intolerance and celiac disease, my god all the autoimmune disorders out there, humans who struggle to function because their own bodies fight them. Humans who bruise easily and take too long to heal. Humans who sustained one too many concussions and now struggle to talk and read and write. Humans who've had strokes. Humans who were born unable to talk or hear or speak, and humans who through some accident lost that ability later.
Aliens visit Earth, and do you know what they find? Humanity, in all its wholeness.
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