#dissability

[heart-stars]

I appreciate able people wanting to be helpful, but it is so funny that when I actually bring my cane into work, everyone wants to suggest me something that will help my knee feel better... as if having the cane there isn't already the accommodation to make my knee feel better.

#also i fully understand being curious when you didnt realize i had bad knees but some of y'all i have literally already told you the issue #dissability #again like its pretty much harmless and i know you want to help but i know what i need to do for my own legs

[spidertwine]

I've NEVER felt pity for my conditions and dissabilities, always lived as I should. Even as I got more and more pills added throughout adulthood, more news, more possibilities, more health issues, I stayed.. almost apathetic, really! Except for my blind left eye - it's just super cool to feel unique, yknow? All the creative ways I could make my sonas and personal characters half blind is fun.

Today, though, I saw a post on twitter. It was the mane six (MLP fim), and they were drawn so well and so cute, and as I scanned across, I noticed they all had dissabiltys! That made me super happy, it must feel great to be represented, to see yourself, your struggles, and to feel like you're not alone! It was so well done.

And then it all went away, because I realised that SOD, chiari malformations, and even to an extent blindness in general is never really represented, because it's so rare! For the case of SOD, it's mostly parents who are proud of their kid, but it's always leaning towards pity than individual pride. For once, I felt alone and invisible. I want to see more SOD and included people be proud of themselves! It's a part of you, you shouldn't have to just DEAL with it, celebrate it and everything you've dealt with!!!

'Oh, but we might as well be alone! We're 1 in 10,000! / We ARE proud, we're just rare!'

That just makes us cooler. And even if we are proud of it.. maybe there's just not that many sod people who are interested in pride that way, or even artists.

I'm gonna make a redesign for either pinkie or fluttershy (cause they're my favourites :)) with SOD. maybe not Rn as I have owed art but it'll be fun!!

#dissability #sod #septo optic dysplasia #chiari malformation #optic nerve hypoplasia #pride

[ghostdog1999]

OK so my friend is making fun of me for not #knowing my cardinal directions so I just wanna check

lmk how old u are & where you're from in the tags?

#like i literally found out north is up on maps Today bcs he Told me #but in my defense i have a learning dissability that affects my spatial insight & sense of direction lol

[monstercollection]

Does anyone else with keratoconus feel like they are constantly yo-yoing between needing the lights super bright to compensate for bad low-light vision and also needing to turn them down because of light causing halos and doubling and just generally being uncomfortable?

#keratoconus #dissability #literally turning them on and off 50 times because there is no winning

[50044w44s]

Hey, i see that you're drowning. Here's some arm floaties, hope they help.

Oh, I see they are really helping huh?

"Why is that person using arm floaties? they're not drowning..."

I see that you're not drowning, you're doing good so I'm gonna take the arm floaties away from you. Wait, why are you drowning again? You were fine one second ago, you must be faking it.

"Can I please have some arm floaties?"

"But you haven't entered the pool yet."

"Yeah but I can't swim, I know that I can't swim, so some arm floaties would really help me not to drown."

"You're asking for arm floaties without even trying to swim, you're just lazy and you want more help than the others have, the others are doing just fine..."

"I don't need to get into the watter to know that I can't swim. You're telling me I can't have arm floaties unless I'm actively drowning? You won't give them to me even though I warned you I will drown?"

This post was never about arm floaties.

#disability #accomodation #autisim #neurodivergent #adhd #dissabled #invisible disability #disabilties #autistic things #this needs to stop #actually autistic #autistic adult #autistic experiences #adhd experience #adhd problems #adhd brain #burnout #meltdown #neurodiversity #neurodiverse stuff #mental health awareness #mental health #mental illness #support #support needs #high support needs #low support needs

[whydidisavethistomyphone]

Under capitalism, if you cannot contribute to the wealth of the few you are a liability that needs to be disposed of. They call this the “cost of living”.

#dissabled #politics #political cartoon #capitalism #cost of living

[begaydoslay]

Me to myself: pick yourself up! What would idgie Threadgode do?

Me: give her 11 year old whiskey

Me: give her 11 year old whiskey?

#like it was to cheer him up and tell him that he was capable and could work with his dissability #but like girl he’s 11 #his brain’s developing #like she’s a great mom #but like why #idgie Threadgode #idgie x ruth #idgie threadgoode #fried green tomatoes at the whistle stop cafe #fried green tomatoes

[luzxii]

★ ) creepy / evil / villianous autism

a flag for those with autism who feel a connection to being creepy, evil and/or villainous

id :: a dark black flag with two light red stripes and a wavy darker red trimming. A variant depicting a stylized version of the autism symbol in the center.

#coining #flags #dissability pride #autism #add #autistic #creepy #villian #villianous #evil #creepy autism #evil autism #villianous autism

[sideshowkaz]

When I was a child every Sunday meant being in primary. Basically the early lessons for Mormons. One thing I remember from then very clearly was a cartoon of the first vision. I also remember being put too far back to see much. This is what sight problems do. Where things were kind of clear they all ended up fuzzy as there was the bit with the darkness. Darknesss surrounded Joseph Smith. What I could see was things that looked like maybe something recognisable were suddenly not. Now I was maybe four or five and that bad video darkness to me looked horribly like any fuzzy darkness especially any darkness at distance. Little me ended up scared of the dark because I couldn’t tell the dark in the cartoon from the dark that’s just the lights being turned off. And no amount of praying could get rid of real darkness like the cartoon darkness. You can’t pray away multiple eye conditions and actual darkness.

Now I’m older and wiser but I’ve been in sunglasses constantly for months because my normal glasses are broken. Looking down hallways where I’m in the light of a lightbulb but I’m looking at the front door is like being little and looking down the hallway to the stairs. I have to keep reminding myself I’m older and this is just a bit of dark and not a problem or something that shouldn’t be. I just want my glasses back so I don’t have to deal with a reminder of childish fear.

#dissabled #exmo #exmormon

[smartwheelshop1]

#wheelchair #buy electric scooter #scooter #dissable #mobility aid #electric mobility #mobility scooter #wheelchairs

[ariibox]

So, y’know those little wooden figures that you could put into different poses that artists use for anatomy? I had one of those, just smaller.

One day, I decided to take it to my Chinese class with me out of pure boredom. Halfway through the lesson one of its legs fell off, the thigh, knee, calves, and foot all stopped being connected to each other and fell apart. While the leg was dismembering, one very important metal piece inside the leg fell out and onto the rug on the floor, I tried looking for it but it was like looking for a nail in a hay bale.

so I couldn’t fix the leg until I got home. I got home and decided it was a good idea to hot-glue the leg parts together to fix it, although it would leave my wooden figure unable to move its leg it was one of my best ideas since I’m not very smart and thought I would come up with a solution as I go on. So that’s exactly what I did.

Once I had done that, I wanted to cover up his leg with some sort of bandage because I thought it would look nicer. So I did that

With the help of my mom and some slightly sticky bandages I found in my family’s medical drawer, I made him a little cast, but unlike real life, it would stay there, but I could take it off whenever I wanted to.

After a couple of little adjustments, I had finished!

I had made a disabled wooden guy, and I only burned my arm twice on the hot glue while making it.

Overall, I think he looks quite nice, but I really wish I hadn’t broken him in the first place, don’t do what I did, I’m very unexperienced and only had limited items I was able to use so don’t break your personal little guy.

Thank you for getting this far and have a lovely day/night!

#Fixed #dissabled #broken #Omfg why did I do this #Should I make him crutches? #Nah I don’t have the things

[realwomenofgaming]

Positive News: 2022's Miss Dallas Pageant Winner

A little positivity for the beginning of the month!

Photo: Miss Dallas Pageant Living with a disability can be many things. Some of them can be negative. There are a lot of challenges in a world that is tailored for people who live without disabilities. Perceptions and expectations can add to the difficulty. Ultimately though, living with a disability should be just that, living.  One teen in Dallas decided to follow a dream of hers last year.…

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#beauty pageant #dissability visablity #miss dallas pageant #news #Opinion Piece #positive news #service animals #Texas beauty pageant

[thoughtofadumbteenprotagonist]

broke: midoria’s quirk being given to him so he can compete with the other kids at UA

woke: midoria being qurikless and getting into the hero course anyways, he works closely with the support classes and we have a good disability and accessibility discussion going on

bespoke: midoria does have a quirk, but it’s not combat based, it’s that he can break the fourth wall; he knows he’s a shonen protagonist and constantly has to adapt to fight the narrative

#midoria izuku #mha midoriya #mha #my hero acadamy #my hero academia headcanons #midoria izuku headcanon #midoria izuku hc #no I am not equating quirklessness to dissability #I’m just saying it’s a good hyperbolic analogy for it #that’s two different things #oh yeah #and even with his fourth wall ability #midoria still needs the help of the support class #so we still get that discussion in the bespoke idea #perhaps even more overtly #cuz midoria himself could discuss it #look #I’m generally not a midoria fan #but this would be an insane Galaxy brain take #if anyone wants to write it I’ll happily beta for you👀👀 #fanfic #ao3 fanfic #headcanons #wright writes

[annunnaki7]

ARE DISSABLED PEOPLE LAZY? COULD REALLY DO BETTER IF THEY TRIED HARDER? This is an example of an average bad week, like 6/10 bad on mental health and 5/10 on the physical level. Oh yea it gets so much worst! Read this and tell me how I could have improved.  

MAY 2023 

Sat 29.04.23 

-Asthma bad all night. I coughed myself awake so often I didn't get any deep sleep. 

-Fibromyalgia not happy about this, and is flaring up on its way to STOPPING FLARING up instead! 🤬 Joy! So now going to pee has extra general pain added to it. 

- Allergies & Sinus bad. My nose runs non stop. Used 1/2 roll of toilet paper blowing my nose just today. And no, I don't like waisting things. Throwing meds at it. 

-Managed to work with my carer, sorting paperwork. I can't help with much else anymore. I don't have the hand strength to cut a carrot. That's annoying as taking away from my autonomy. 

Sun 30.04.23

- Allergies & Sinus still bad with non stop daily headaches, with migraine sometimes.

-Fibromyralgia flare. Pain feels like I feel down badement cement stairs or  when I had major surgery on day 3 with 5 days hospital stay. I'm in too much pain to eat. Exhaustion worst than Covid & Pneumonia! 

-Asthma bad. I have to rest for 1 minute every 10-15 meters I walk. Going to the loo takes 5 breaks.

- Urinary incontinence dissability related not happy about so many breaks to get TO the loo. I need buy more trousers! (I used 3 in one day twice this week)

- I'm in so much exhaustion & pain I can't even face watching TV. Strong painkillers increased. I'm not happy. I was hoping to decrease them this week! 

Mon 01.05.23 

-Migraine. 

-Sinus inflamed for past 4 weeks. Related to but not only cause of migraine. I'm a migraine sufferer.

-Fibromyalgia medium flare. Hands hurt as well as eveywere else. A plate is heavy to lift. I can't stab potatoes to zap them in microwave by myself. 

-Hayfever slightly improving.

-If I didn't have a carer coming to help me with a wash, I don't know how I would cope.She helped more today. She's so nice. People don't appreciate them enough.

-Concerned how I'll make hospital appointment of Thursday. And got builders in tomorrow. 

Tuesday 02.05.23

-Migraine at night. 

-All body pain bad. Been worst before though. 

-Builders poped in to say they'll be back tomorrow. And no neither owner nor estate agents told them about all the work needing doing. 

- This is in fact my comparativly, the "best day" to date. I can't sit in a chair re pain. And I have a high pain threshold. Had major surgery and got up by myself the next day when everyone else did on the 3rd day with help. Nurses said it was shocking to see me trot - carefully -  about.

- Hospital appointment of tomorrow changed for latter on. It's not a vital one. 

-District Nurse popped in to assess if I need to worry re swealing in legs. I'll have to go to the specialist clinic after all. 

-Blood Pressure still high & Pulse going nuts. Say hi to all types of allergies as a possible cause! I take the strongest anti histamin, plus 6 over the counter allergy tablets daily. Yep, the specialist doctors advised that. It stop skin for literally falling off and other horror stories! 

Wed 03.05.23 

-Vomited blood all night (5hrs of hurling on off) from ulcer, blood clots included! Yuck! 3rd time in 1 month.

-Day Migraine following as haven't been able to drink much 

-Im past normal exhausted as part of Fibromyalgia. It feels like I did a 14hr shift and haven't slep the next 2 nights. (Yes, I've done that in the past. Joy of nursing & midwifery whilst having dissabilities)

- Spoke to GP, meds increased. I don't want another endoscopy. Don't see what else it will tell us. It's costly to the NHS, I'm going to be in so much pain for at least 2 weeks after due to dissability, not the test. Urinary incontinence will be a pain. I'm not even for resuscitation (DNR) anyways. 

-Not hungry. Disordered eating means it will kick in if I can't eat at all today. Gods even cake don't sound appealing!

- Builders back. Same thing, back tomorrow instead. But now they got the list of job. 

-District Nurse decided I need compression stockings! My severe eczema might not like the extra heat in summer! & Scratchy material.

-Migraine afternoon - nightime.

-Did eat eventually. Yea me! 

Thursday 04.05.23

-Food helped with migraine & dissorted eating. 

- Pain and extreme exhaustion same. I can't hold a plate of food.

- Severe anxiety started in afternoon after flat owner demanding I get the garden clean that night. Message was passed to me by builder at around 4.40pm. to be done by tomorrow morning. Oh yea, I'm dissabled with poor balance, walks some 15-20 meter with 2 stick, uses wheelchair otherwise. And it would get dark even if I miraculously find someone for, ... work that's not urgent! And oh yes, there's no place to eat at the kitchen table due to building work. Like that's not a priority after builders leave rather than garden. Also. Thunder and rain so bad, I though thunder had struck nearby. 

-Complex Post Traumatic Stress Disorder (C-PTSD) few times last night (originates from past child abuse) but attacks due to the way the flat owner and estates agent treats me.

Friday 05.05.23

-Irritable Bowel Syndrome (IBS) exacerbated since around 2am started with the stress.

- Headaches back

- Severe anxiety rising progressively

- C-PTSD flash back early morning. Good thing I know how to manage it.

- I ate with carer, yea! Well she made me eat. 

Saturday 06.05.23

-Anxiety still high

-C-PTSD same high during day, not typical of abuse. Definitely flat owner & Estates Agent related.

Sunday 07.05.23

- Actively managing the mental health side of things. 

- Bad Heaches day time 

- Friend brought me yummy KFC. Could only eat a tiny bit. Oh great, that's Dissordered Eating not happy with all the stress!

- Migrainy headach lasted 2-3 hrs. Resolved with management.

-Asthma attack in evening for over 2hrs. Was so rough couldn't do lung capacity measurement until finally calmed down. 

- I won't be able to finish my KFC now. I'm pissed off. I'm so tired of juggling several deseases. It wouldn't be so bad of people acted like human being. 

So. Do you still think I'm leisurely lying around having a relaxing time as a dissabled person?

Did you realise that it takes managing one thing after another everyday? 

So everyone can do better of they "really wanted"? I really wanted to not loose my mortgage and dog. It's my dog I missed the most, not even one of my things. From a Midwife I became homeless. From working 16hrs or work followed by Union Rep work (IE talking to staff, not official meetings before you quote the law) I'm now not able to eat independently at times, or wash alone now. I'm still acting?  Have a good, lazy life? You want to swap? 

#Dissability Awareness #Discrimination #Ableism #disableism #health management

[bumblebeeanie]

🌞🌞🌞🌞🌞🌞🌞🌞🌞🌞

🧡💛 For the little rays of sunshine 🧡💛

(Pintrest find)

#cglre #little #little space #baby #agere little #sfw agere #agere blog #age regression #agere community #dissabled agere #dissabled little #sunshine #yellow #cglre little #cglre blog #nonbinary cglre #cglre friendly #cglre positivity

[kleefkruid]

I'm in one of those complicated "There is no clear good answer you just have to go with your gut" situations but I have generalized and social anxiety so I have one gut feeling and it's a deep sense of dread.

#anxiety #mental health #I need a IRL tag blocker so I can put 'but what do YOU think is best?' on it #short version of the problem is I can't live on dissability in this economy anymore but I'm also kind off to ill to just throw myself into #all the work I'm doing bc suprise suprise I was on dissability for a reason #so like there's not good ideas