#chronic inflammation

[my-brain-is-soup]

#brain fog #foggy brain #chronic pain #spoonie #chronic illness #chronic illness memes #autoimmune disorders #spoonie life #spoonie memes #spoonie strong #chronic inflammation #spoonie stuff #chronic fatigue #fibromyalgia #chronically ill #fibromyalgia warrior #fibro #fibromyalgiasucks

[420spoons]

Meme painting of a woman adorned in royal clothing and jewels. The text over the image reads, ‘Disabled people, watching all of the accommodations that were created because of COVID get ripped away as part of able-bodied peoples’ “attempt to get back to normal.”

#Spoonie #accomodation #disabilties #chronic inflammation #meme #chronic illnesses #Covid #ableism #mecfs #hidradenitis suppurativa #rare disease #Spoonie strong #sickandtired #neisvoid #sad memes #rheumarthritis #pots #sepsis #disability #actually mentally ill #actually neurodiverse #cancer #chemo #truth

[thecovenhouseco]

The scariest thing about being chronically ill and waiting to figure out wtf is wrong with you is dealing with scary symptoms you don’t know is just a symptom or something else that’s really serious. The anxiety from that itself is debilitating. My body feel like a torture device that I will never escape.

#chronic disability #chronic migraine #chronic inflammation #chronic illness #chronic pain #im scared #invisible disability #disabilties #disabled #dissociative identity disorder #did system #physical illness #disabled creator #disabled artist

[pcos-and-endo-awareness]

#endometriosis #pcos #chronic illness #chronic pain #invisible illness #chronic fatigue #chronic inflammation #sickness scale

[kellylynncurry]

The skeleton inside me is begging to be free

To feel the dirt between its calcified toes

And the sea rush around its marrow core

Let the osteon flourish amidst the wildflowers

— Kelly Lynn Curry

From the book Radiant Poppy

#poems and poetry #writers and poets #my poem #original poem #original poetry #original post #poem #poems and quotes #poems on tumblr #poetic #chronically ill #chronic fatigue #chronic illness #chronic pain #chronic inflammation #chronically fatigued #invisible illness #illness #short poem #poets on tumblr #poetry #poetscommunity #poetsandwriters #poets corner #chronically disabled #sickness #sick #i hate being sick #disability #disabled

[beenovel]

I dream of things, just like anyone else. The things I dream of are so far beyond my reach I may as well be dreaming of riding a dragon.

I dream of a body that does not hurt. I dream of a mind I can trust. I dream of a life where I don’t have to down medication the second I wake up. I dream of travel, without the worry of where I’ll get my medication, without the worry of how the new environment will hurt me. I dream of holding a steady job, of being able to provide for myself, something I may never have. I dream of going through my day without having to calculate how much energy each task will consume.

I will never have most of these things. They will never exist in my life. And that is harder to accept some days.

#chronic illness #chronic pain #chronic fatigue #chronically ill #chronically fatigued #chronically disabled #chronically sick #autistic #autistic spectrum #autism #actually autistic #autistic adult #autistic experiences #autistic community #actually autism #bipolar #bipolar disorder #bipolar type 2 #bipolar type ii #bipolar tag #bipolar things #pcos #chronic inflammation #audhd #actually audhd #audhd problems #adult audhd #audhd life #rosacea

[baja-blastoise]

So I went to the rheumatologist the other day and they prescribed me gabapentin. However, the doctor never went over any of the side effects, so being the overly cautious person I am I decide to look them up and HOOOO BOY idk if I want to even try gabapentin anymore. They say it can ultimately cause dementia as well as:

• cause memory loss

•weight gain (which I already have problems losing weight anyway)

• clumsiness

Among many other things. Don’t get me wrong, I’m in a lot of pain, but I’m too scared to try it at this point. Has anyone tried gabapentin for chronic pain/fibromyalgia? If so, how was your experience and did you have any side effects?

#gabapentin #chronic pain #chronic illness #chronic inflammation #fibromyalgia #autoimmune #autoimmune disease #joint pain #muscle pain #spoonie #gastritis #what a great way to spend disability pride month #with getting diagnosed with fibromyalgia #they’re still doing the other tests

[lillypadcrochet]

After a busy medical week I’ve updated my big girl beads of courage

(For those who don’t know, kids with medical needs can join the beads of courage program, where they receive a bead for each medical encounter to keep track)

I made my own because god knows this chronic illness journey can be hard, even as an adult.

This week I had an abdominal MRI with glucagon (which made me puke)

Then my brother and his partner had a gender reveal for their baby girl (!!!) and I had to sit and watch everyone eat celebratory pizza bc I had to do clear liquids for colonoscopy prep

Then prep made me puke again, but thank you zofran for saving my ass during part 2- I think I’m gonna have to request that be a set part of my prep plan cuz ugh puking straight liquids is gross and annoying.

My scopes went well, though I woke up wizard high and they had to bring my mom back to hang out with me in recovery because it was taking me too long to sober up 😅

Evidence of gastric and ileal inflammation, so we’ll see where to go from here I guess

I went back to work on Thursday and was immediately told by a student that I looked sick 😂

I still haven’t gotten my mri results back which is frustrating me- I recently had crazy itchiness and some wonky liver number in my labs (though they were trending down) so I want to see what that looks like on imaging.

Anyway!

Next week I have my first rheumatologist appointment and a follow up with my GI! Another busy week 😬 but I’m glad to be making moves and not just waiting waiting waiting.

I love my doctor and I really trust her expertise, even if I know I’m gonna have to switch to a less convenient drug (lifestyle wise)

#lilly chit chats #bitching and moaning #crohns disease #chronic inflammation #chronic illness #medical life #colonoscopy/endoscopy

[spooniestrong]

#spooniestrong #spoonie #chronic inflammation

[authorkarajorgensen]

My fav thing about having type 2 inflammation is how patients knew it existed before doctors did.

Patients had stomach problems/IBS, allergies, asthma, eczema, etc., and when they went to the doctor to get oral medication for their asthma, they noticed their eczema would clear up.

The doctors were like you're lying, it's a coincidence, you're just less stressed.

Then, it turned out, no, these things are all tied together, and there are medications (usually biologics) that can tamp down the immune reactions that happen simultaneously all over the body.

Some doctor could have figured this out years ago if they just listened to their patients connecting the dots.

#type 2 inflammation #inflammatory disorder #asthma #eczema #IBS #chronic illness #chronic inflammation

[autistic-value]

It's a hard knock life

#chronic pain #chronic disability #disability #hypochondria #ehlers danlos syndrome #eds #EDS #joint pain #urinary pain #chronic inflammation #hypermobilty syndrome #hypermobility #It sucks #flare ups #pain flare #meme

[my-brain-is-soup]

They want to remind you!!

#chronic pain #spoonie #autoimmune disorders #chronic illness #chronic illness memes #chronic inflammation #spoonie life #spoonie strong #spoonie stuff #chronic fatigue #spoonie memes #chronically ill #fibromyalgia #fibromyalgia warrior #fibro #arthritis #autoimmune #take your meds #reminder #reminder to take your meds

[thecovenhouseco]

Being physically ill and going to the doctor is the same as bringing in your car to the shop because it’s acting funny and the car running perfectly fine while at the shop.

#dissociative identity disorder #ehlers danlos life #ehlers danlos syndrome #ehlers danlos awareness #hypermobile ehlers danlos #physically disabled #i physically cannot #chronic illness #chronic pain #chronic migraine #chronic inflammation #chronic disability #gerd

[pcos-and-endo-awareness]

#endometriosis #pcos #polycystic ovarian syndrome #pcos awareness #endo awareness #chronic illness #chronic pain #invisible illness #chronic fatigue #chronic inflammation

[kellylynncurry]

The IV hits a certain way

And the sweet violence of my heart beating

Rocks the cavities of my bones

Sweeps the blood cells through my veins

Swells my skin two sizes too big

And I’m a mess again

- Kelly Lynn Curry

From the book Radiant Poppy

#poems and poetry #writers and poets #my poem #original poem #original poetry #original post #poem #poems and quotes #poems on tumblr #poetic #poets corner #short poem #my post #sad poem #poetry #poets on tumblr #poetscommunity #poetsandwriters #chronic inflammation #chronically ill #chronically fatigued #chronic pain #chronic illness #chronic fatigue #invisible illness #illness #sickness #disability #disabled #lupus warrior

[ichorandseafoam]

literally every single part of my body I can feel is in pain, except for my lips, which are only mildly uncomfortable. gotta love chronic pain & inflammation! I am having such a good time rn. also, do I have to tell my dentist about the toothaches if I know the cause isn’t related to the teeth themselves? cause everything’s inflamed as shit rn

#chronic pain #chronic inflammation