#chronic fаtiguе ѕуndrоmе

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

#signal boost #please reblog #chronic pain #chronic illness #disability #fibromyalgia #cfs #chronic fаtiguе ѕуndrоmе #actually disabled #spoonie #me/cfs #cfs/me #long covid #important #invisible disability #ehlers danlos syndrome #lyme disease #chronically ill #cpunk #cripplepunk

[chronicallycouchbound]

I’m allowed to be lazy. Disabled or not. Laziness isn’t an inherently bad thing y’all just too caught up in hyper capitalist hustle culture to care. I don’t owe you productivity. I’m allowed to rest.

My rest is radical.

#chronically couchbound #disability #disabled #cripple punk #cripplepunk #disabled pride #disability pride #lazy #i'm lazy #im lazy #chronic fаtiguе ѕуndrоmе #chronic illness #chronically chill #chronic disability #chronically ill #chronic fatigue #cfs (chronic fatigue syndrome) #me cfs #cfs/me #spoonie #spoonie community #spoonies #low spoons #radical rest #tired #rest #this shit is exhausting #leftist #anti capitalism #abolitionist

[johnnyiscaged]

ily disabled people

ily disabled people who are dependent on aids

ily disabled people who are too scared to use aids

ily disabled people who have been bullied out of using aids

ily disabled people who feel like they don't need many aids or any at all

ily loud disabled people

ily quiet & mute disabled people

ily disabled people who "make being disabled your entire personality"

ily disabled people who are punk, goth, emo, scene, grunge, metal, vkei, decora and any "wierd" fashion style (especially if you decorate your aids to match you're the coolest)

ily creative disabled people

ily disabled activists

ily disabled people who need a helper

ily disabled people who want to be independent but can't be

ily disabled people who love your independent

ily disabled people who wish they could have a helper

ily disabled people who feel like you're not disabled enough to be valid

ily older disabled people who help younger disabled people

ily young disabled people who help older disabled people

ily overweight disabled people

ily underweight disabled people

ily disabled people trying to lose weight for health

ily disabled people trying to gain weight for health

ily disabled people with invisible disabilities

ily stigmatized disabled people

ily disabled people who don't feel like they fit into any of these phrases

ily disabled people !!

#cripple punk #cripplepunk #cpunk #disabled #crip punk #physical disability #disability #chronic fаtiguе ѕуndrоmе #chronically ill #chronic fatigue #chronic illness #chronic pain #arthritis #rheumatoid arthritis #invisible illness #invisible disability #positivity #disability pride

[autisticsociologymajor]

Lazy: I should clean that thing but I’d rather sit here & let someone else do it.

Executive dysfunction: I have to clean that thing but I can’t get up. I like cleaning, I want to clean that thing I left out��� Get up. Get up. Just get tf up. It’s not that hard. Why am I stuck like this. Stop scrolling. Clean the fkn thing. Just get up and clean the fkn thing. Why can’t I just get up and clean it. Why am I like this. Am I just telling myself I have executive dysfunction? What if I’m really just lazy? Oh great someone else is already cleaning the thing. I ruined it. I failed. Idk why I exist. I can’t do anything right.

The person who cleaned the thing: “why can’t you just clean up your messes? You’re so lazy.”

-

Lazy = willfully won’t do it

Executive dysfunction = unwillingly can’t do it

#adhd #spoonie #actually autistic #adhd things #actually adhd #adult adhd #chronic disability #chronic fаtiguе ѕуndrоmе #executive dysfunction #neurodivergent

[ironwoodcollective]

🌳 For any spoonies for whom trauma and/or abuse are a contributing factor in your physical disability or physical chronic illness, we see you and we love you.

#🌳 talon #It definitely was for us... #spoonie #fibromyalgia #chronic pain #chronic illness #chronic fаtiguе ѕуndrоmе #plural system #adaptive system #physical disability #disability #Obviously much love to those whose mental illness stems from trauma or abuse too but we don't see this talked about as much. #People seem to forget or just not know that trauma or abuse - even of a nonphysical variety - can lead to chronic physical illnesses. #endo safe

[introvertedx10]

#funny #lol #funny post #lolol #comedy #funny pics #funny images #meme #dank memes #humor #chronic illness #myalgic encephalomyelitis #chronic fаtiguе ѕуndrоmе #its meeee

[byler-alarmist]

CHRONIC FATIGUE GANG RISE UP LIE DOWN

#chronic fatigue #chronic fаtiguе ѕуndrоmе

[autisticdreamdrop]

constantly fatigued autistics.. we see you

#blurry #group post #autism #chronic fatigue #chronic fаtiguе ѕуndrоmе #fatigued #fatigue #chronic pain #chronically disabled #chronic illness #chronically ill #disabled #disability #actually autism #actually chronically ill #actually autistic #autistic #asd #autism spectrum disorder

[hellyeahsickaf]

When I say "I can't do that" what I'm not saying is:

I don't feel interested in doing that

I don't care enough to

I'm too good to be doing that

I don't think you deserve that of me

I'm not in the mood to do that

Not now, I'll do it later

Maybe

If that's what I meant, that's what I would say

What I am saying is:

It will negatively affect me in ways I can't afford

I simply can't physically fucking do that

I can't risk the potentially severe consequences I may experience if I overestimate my ability to do that

And if I explain that I am unable to do that, it is not an invitation to:

Tell me how much my disability hurts your feelings

Ask if I'm sure

Interrogate me because you believe yourself to be the judge of how unwell is unwell enough

Put words in my mouth ("why don't you care?")

Tell me how easy it would be

Remind me of how many other things I've been unable to do. I keep the score more than you do

Accuse me of exaggerating or faking to avoid doing it

Ask me again shortly

Make assumptions about additional explanations. (I must be mad at you, I must not care about this)

Offer compensation in return ("I can pay you" "we can do something you want to do after" "I'll get you something you like")

Ask what it would take for me to suddenly be capable of doing it

Tell me how you do things you have to do when when you're tired and then you can just rest and recover. I am not like you

Remind me of a time I was able to do that. Either I had more spoons or was less severely disabled if at all.

Say that if I was well enough to do X today, I should be able to do this as well. Energy doesn't work that way. Are you capable of running 8 miles right this minute just because you were okay to work a 10 hour shift today? That's what I thought

Suggest simply doing it a certain way ("take your time", "do it sitting down", "we can stop and take breaks", "just take your painkillers", etc)

But it is an invitation to:

Leave me the fuck alone about it 💕

#chronic illness #chronic pain #disability #actually disabled #chronic fаtiguе ѕуndrоmе #spoonie #cfs #fibromyalgia #cfs/me #me/cfs #cpunk #cripplepunk #pots #long covid #yes this is about something that happened lmfao #feel free to add more #bc I am sick of this! #this is about physical disability. please don't derail it

[cryptskeep]

anyone with cfs?

I'm assuming this means chronic fatiuge syndrome and boy do I have IDEAS!!!!

Okay so I was originally going to do Bdubs but I realized Xisuma gives off the same vibes as my friend with CFS

so here we go!!

Xisuma

General Lore:

drawing from some of my favorite aus where Xisuma is a very exasperated manager/owner of a store (my favorite it coffee shops) but personally I think he would absolutley own a craftstore

is Cleo's fabric supplier

thinks his employees are hilarious but is trying so hard to be the Big Boss Manager Man and serious (he is failing)

loves doing table flower arrangments with fake flowers (it's his guilty pleasure)

actually used to work in a flower shop

loves cosplay and spends so much of his money on building cosplays

CFS Lore:

mans big sleepy

constant headaches or brain fog, no in between

he has sticky notes EVERYWHERE that remind him of things that he doesn't want to forget

uses a wheelchair and decorates it for every cosplay he does

#i disable the hermits #hermitcraft #fanfic #fanfiction #xisumavoid #xisuma #hermitcraft au #hermitcraft fanfic #hermitblr #au #mcyt #mcyt au #actually disabled #disability #chronic fаtiguе ѕуndrоmе #chronic illness #chronic illness au #disability au

[johnnyiscaged]

when you just layed down in a position that makes the pain more bearable but have to use the toilet and now you have to decide what to do. fatigue and chronic pain are just so damn exhausting i wish i could just take a shit

#cripple punk #cripplepunk #cpunk #chronic pain #disabled #chronic fаtiguе ѕуndrоmе #chronically ill #chronic fatigue #chronic illness #vent post #vent #c punk #rheumatoid arthritis #arthritis

[monachopsis-11]

One of the hardest things for me about being disabled that I don’t see many people talking about is the guilt of not being able to do the kind of activism I want to do. I try to educate myself as much as possible when I have the focus/energy to read up on things but no matter how much I learn and how many petitions I sign and how many creators I try to support it feels so small.

I want to do so much more for the causes I care about, I don’t want to be complicit in the things going on in the world when I see calls to action by people who need help, to be at protests and events lifting up peoples voices who need it as best I can. I have so much admiration for the people who stick out unbearable circumstances without any choice or those who choose to show up for months until change happens but I don’t know how to do that.

I feel guilty for not helping as much as I want to and not being able to donate either. It feels like I’m at the same level as the people who say things are awful and then ignore it and turn away and do nothing.

But I am fatigued, overstimulated, in pain, and barely able to keep up with my life. My job, self care, chores etc. are already too much to handle to the point where my therapist has even told me it would be a bad idea to try to volunteer because I just don’t have the energy.

There’s only so much I can sacrifice without destroying myself in the process but I feel like I owe it to the people who are being hurt to suffer with them, I’m not better than them, what excuse do I have to protect myself when they don’t have that ability themselves? What excuse do I have not to help?

I don’t know what the point of this post really is, just that it’s hard and if anyone else experiences this I’m sorry.

#actually autistic #autistic experiences #late diagnosed autistic #invisible disability #disability #complex ptsd #physical disability #physically disabled #ambulatory wheelchair user #generalized anxiety disorder #chronically ill #chronic pain #fibromyalgia #me cfs #chronic fаtiguе ѕуndrоmе #myalgic encephalomyelitis #activism #activist #guilt

[idolkisses]

A flower blooms from above...

ME / Chronic Fatigue Syndrome flags!

i wanted to make these since i rarely see posts about my condition and id like to be able to have a flag attached to it like my other conditions!! free to use without credit, but just my handle somewhere is appreciated..

need IDs, tagging @accessmogai for them ^^

please do not retag gender tags, theyre just for reach!

#☘ — new blooms #cfs #cfs/me #me cfs #chronic fаtiguе ѕуndrоmе #mogai #mogai coining #xeno coining #xenogender #flag coining #gender coining

[thanakite]

Scientists are currently working on a blood test for Chronic Fatigue Syndrome and the early results are apparently showing a 91% accuracy rate!

Now to be fair this is still early days and the testing done in question had 61 people with ME/CFS, 16 healthy controls, and 21 people with MS (as MS and ME/CFS apparently have enough in common that being able to tell between the 2 in a blood test is big/important) which overall isn't a great sample size and likely could benefit from having equal numbers of each and of course will have to be able to repeat the result consistently

But this is a good and important step in the right direction for many

#chronic fаtiguе ѕуndrоmе #cfs #me/cfs #chronic illness

[chronicallycouchbound]

I am sick and tired. There is no “of” just sickness and tiredness.

#chronically couchbound #disability #disabled #cripple punk #cripplepunk #tired #sick crip #sickpunk #chronically ill #chronic illness #chronic fatigue #chronic fаtiguе ѕуndrоmе #me cfs #cfs/me #spoonies #spoonie #spoonie community #no spoons #low spoons #spoon theory #no spoons only knives #sick

[fromthepinnacle2thepit]

hihi <3 can I request some headcanons for mountain with a s/o (gn) who is just,, chronically fatigued because I am,, going through it rn :(

exhausted but can never sleep, joint problems, forgetfulness, clumsy

all those kinds of things if you don't mind <33 have a great day !!

𝘔𝘰𝘶𝘯𝘵𝘢𝘪𝘯 𝘹 𝘤𝘩𝘳𝘰𝘯𝘪𝘤𝘢𝘭𝘭𝘺 𝘧𝘢𝘵𝘪𝘨𝘶𝘦𝘥! 𝘳𝘦𝘢𝘥𝘦𝘳 hc

pairings: mountain ghoul x gn! reader

warnings: descriptions of pain (from joint problems), frustration

authors note: hello! i tried to do a little research on chronic fatigue before i wrote this! if it’s inaccurate i apologize. this is also my first time writing for a ghoul! and i don’t know a bunch about mountain so i really tried! anyways, enjoy!! take care of yourself!

• Ok so i think mainly his way of taking care of you is just doing things completely unexpectedly and really without much of an explanation.

• like think about it-

• you’re laying on the couch one day, heating pad on the joints that hurt the most

• AND BOOM

• mountain appears out of nowhere with a steamy warm cup of herbal tea

• and yes, he did research on how the certain herbs would help, what their health benefits were, and if they were of help to people with chronic fatigue

• or one day, you’re around doing chores, but you’re dropping things and your muscles feel so sore

• THEN ONCE AGAIN BOOM

• Mountain is there, giving you muscle exercises to try to help, and offering a massage

• if you’re having a day where it’s really bad, and it’s hard to get out of bed, he will…

• BOOM

• you guessed it!

• he’ll show up with a care package. it’s filled with loose and comfy clothing, a large water bottle, a weighted blanket (if it helps), an ice pack, and a extra heating bad

• then some of his own clothes

• ALSO if you have muscle pain that lessens when you put warmth on it (like heating pads), cuddling with him would help a lot

• in my opinion, ghouls would be SUPER warm, like furnaces. huge furnaces.

• so if you cuddle with him, it might help.

• if you have really bad muscle pain that can get so bad it causes mobility issues, he’ll try to get you a shower chair, and he’ll gently wash your hair for you, or help you in any way

• he’ll make sure you’re getting plenty of rest

• if you can’t sleep, he’ll stay with you. he’ll help you with tasks if you didn’t feel up to doing them

• if you’re feeling really down about things, he’ll remind you that it’s ok to be clumsy, and that you’re not being lazy. he’s proud of you, and wants you to be as comfortable as possible.

authors note: hello! i’m so sorry if i portrayed chronic fatigue incorrectly in any way! i do not know very much about it, but i did try, and did research. if i was incorrect or used any stereotypes i deeply apologize and would like correction! thank you!! take care of yourselves!

#ghost #the band ghost #nameless ghouls #mountain ghoul #mountain ghost #mountain x reader #mountain ghoul x reader #mountain ghoul fluff #mountain ghoul ghost #mountain nameless ghoul #chronic fatigue #chronic fаtiguе ѕуndrоmе #ghouls x reader #nameless ghoul x reader