#cf personal

[hamadynes]

So Pokémon Scarlet story time

Decided to name my Pawmi after my hamster, Cleo, as soon as the design released, but the night I was set to pick up the game, my hamster’s health took a steep downward turn… she was older and slowing down visibly, but I figured I had at least a little more time…

She passed a few days later and tbh, the game kept me sane during the few days she was in the process of dying. Got to be with her in her last moments which was terrifying, but I like to think my presence was a comfort.

Well, apparently the game has a feature where once you max out a Pokémon’s friendship, it gains a title, so, out of the blue, sent out my Pawmot and the game says “Go! Cleo, the Reliable Partner” and I BAWLED.

So yeah, Pawmi is one of my new all time fave lines and I’m glad Cleo’s spirit gets to live on

#cf personal #my most prized Pokémon 😭 #Also Arven’s storyline and then Celestial playing at the end of the game HIT DIFFERENT #cried like 4 separate times during my play through #thanks for being there for me pokemon

[katiebell]

you know, I actually think the moment byleth steps in front of that blow meant for edelgard, an action that changes EVERYTHING about their fate, really is monumental, especially after warriors came out and added context

you have this mercenary who’s known for being stone cold, emotionless, and who can annihilate entire mercenary camps in minutes blank faced, as we saw with shez - by all means, they should never, WOULD never take a blow like that so carelessly for someone they don’t even know, much less with such an angry, determined expression - and yet.

the game draws some clear parallels between byleth and edelgard, and in all routes they have a connection that seems unbreakable - all of this starts at that very moment, when the merciless demon gets swept by a wave of emotion so strong that they throw rationality out of the window.

idk, one of my favourite fe3h analyses mentions the ‘literal divine intervention triggered by edelgard’ and that’s exactly what that moment is. not even because of sothis, but because that’s exactly when byleth takes their first step towards humanity and their freedom - i honestly think that byleth only fully regaining their humanity in crimson flower is the only outcome that makes sense, since that’s exactly what we see in one of the first scenes in fe3h. excellent foreshadowing, I’d say

#edeleth #byleth #edelgard #fe3h #few3h #byleth eisner #I’m a byleth fan as you all know lol was just listening to the very cool ashen demon ost and thinking about this #idk it’s just wild to see people saying that edeleth’s interactions in non cf routes come out of nowhere and don’t make sense like guys. #their meeting was THE pivotal moment of the series. it’s more obvious with el and many people unfortunately dismiss byleth’s personality but #el immediately is taken with byelth we all see it AND BYLETH IS THE SAME it’s just more subtle #even in non cf routes their interactions are always… intense and charged. el caught byleth’s attention as much as the other way around - so #much that she pulled on the power of the god inside her I mean come on. you can’t get more intense and dramatic than that

[hellyeahsickaf]

Cooking While Disabled

One of the things I miss most about being less disabled is cooking. It was one of my favorite things to do and something I've always been good at.

On good days there are things I can do that make it easier. It's not the same as before, but I hope that sharing what makes it possible for me to cook helps others who struggle with it.

Tips for cooking while disabled:

You can incorporate precooked food in your meals. For example, stir fry with precooked rice with the ingredients of your choice, or taking frozen pasta (like the ones with maybe sauce and a couple other things) or plain microwave pasta (I prefer these, but heat it first) and putting it in a pan adding other ingredients like vegetables, cheese, garlic, etc

If it comes frozen or canned that can really help. Frozen rice you can just microwave, frozen cut veggies and garlic and onions are good as well

Buy a chopper with different shaped blades, spiralizer, electric slicer/grater, food processor, or any appliance that will save you energy. Ideally machine washable. Stand mixers are also better than manual ones. Especially helpful if you have joint/wrist issues

You can always prepare ingredients ahead of time. I find that sometimes it helps to prep (chopping or mixing ingredients, etc) earlier in the day or even a day before. Then you can put it in the fridge or freezer until you're ready to cook the full meal

Look up easy recipes or recipes for elderly/seniors. With the latter you may find more nutritionally balanced food but an unbalanced easy meal is better than none

You can sit while you prepare ingredients.

You're allowed to take breaks. You can turn the stove off, maybe put a lid on it to retain the heat, sit down, maybe take something for your symptoms. Some things you may not be able to stop in the middle of like making pancakes or deep frying something, but if you're making soup or curry or chili or something, often you can turn it off for a bit and take care of yourself.

If you need help and can get it, please ask for help. I know many of us need to work on asking for help including myself. Even if it's just washing the pots and pans or chopping something. You are not a burden you hear me?

Stretch before and after cooking just as one would before a workout. It will likely lessen any joint pain or stiffness as you are still exerting yourself

Listen to your body. Just as you're allowed to take a break, you are allowed to decide you won't be able to finish what you're doing. You may put away your food before it's done (if this won't ruin the meal). You are allowed to leave a dirty pot in the sink and come back to it later (just make sure you or someone else does before it gets gross). You can wash them in the dishwasher. I know this is bad for the seasoning on pots and pans but you can reseason them to be nonstick again and use nonstick spray

You can buy seasoning mixes rather than using individual seasoning. Instead of parsley, oregano, basil, etc you can buy Italian seasoning. Instead of paprika, pepper, cumin, oregano, salt, etc, you can just get taco seasoning. This may sound obvious but it can save a lot of time and energy

An issue I have is buying perishable ingredients thinking I can use them, having a bad week or two, and the ingredients have gone bad. Try to plan out your meals before shopping and ask yourself if there's an easier alternative for any ingredients. Maybe pre chopped fresh onion instead of a whole one, sliced mushrooms instead of whole, frozen vegetable blends instead of individual, powdered ginger instead of the root, bullion instead of stock that you may not be able to use all at once. I know this is like one of the other points but these are what I find most helpful

Use supercook.com! You input the ingredients you have on hand and you'll get a list of recipes you can make with what you have. Often there's a wide range of complexity and difficulty

Make enough food to freeze or refrigerate leftovers. It helps if you can portion it into single servings in Tupperware or freezer bags. You can prepare frozen burritos for your next few lunches or dinners, separate portion sizes of spaghetti, portion salads, etc

Feel free to add any additions!

#spoonie life #chronic pain #chronic illness #disability #cfs #long covid #actually disabled #chronic fаtiguе ѕуndrоmе #fibromyalgia #spoonie #me/cfs #cfs/me #pots #postural orthostatic tachycardia syndrome #cpunk #cripplepunk #cooking #spoonies #disabled life #idk if this helps even one person I'm happy tbh #especially anyone more recently disabled still learning to navigate it

[sparkles-and-trash]

Sometimes it feels like people kinda forget your pain when it’s chronic.

When someone healthy/able bodied gets sick or injured, people will pour out their support and understanding right away, which is good, obviously.

But after a while, people get tired of hearing about it.

They get tired of having to work around it, tired of having to be understanding.

But just because your empathy fades, doesn’t mean our pain and grief does.

I’m so, so tired of my pain. Of having to be understood. Of not having any chance to have a proper career, or dreams, or relationship.

I’m tired of my hands not working enough for me to write, draw and craft, which is what is normally keeping me going.

They just keep getting worse.

I’m tired of the pains related to my endometriosis and pcos making me unable to eat properly, get any exercise, and for making me bedridden more and more these days.

I’m tired of having to beg for support in what little buisniess I manage to make sure I survive during my rough recovery periods after surgeries and bad flare up’s.

I’m tired of knowing my life will not be a long one.

I’m tired of complaining, of being in pain, of grieving, of feeling like a burden.

There are no breaks for me.

That doesn’t mean I get used to it. I will never be used to it.

And I think I should be allowed to talk about all of this without feeling like a burden.

I probably won’t ever get to that point, but this is me trying to get there.

By being open and honest, and hoping that at least one person takes the time to read.

If you’re still here, still reading, thank you. It means the world.

Be kind to those around you who are like me.

We’re not happy about our situations, either, but having people willing to stick around and listen makes it a little easier to survive.

Thank you ❤️‍🩹

#chronic illness #chronic illness awareness #chronic illness psa #chronic illness support #disabilties #disability #lupus #lupusawareness #living with lupus #endometriosis #pcos #cfs #scoliosis #chronic migraine #chronic mental illness #mentalheathawareness #irl tag #personal

[localratwithcowboyhat]

Ahw what’s this, the Human nervous system what a silly lill guy look at him. Look at him CAUSING ME SO MANNY FUCKING PROBLEMS

#ramblings #silly lill personal post #disabled #anxitey #cfs #cronic fatuige #this is a cry for help #spoonie #cronic pain?? #tic disorder

[punisheddonjuan]

Turns out this guy has been trawling the Something Awful forums for content because I found out this morning that he's twice ripped off research I did for posts on ME/CFS in the Covid-19 thread in C-Spam.

Back in March of last year he straight up plagiarized some of my posts:

vs. my original posts on Something Awful. Everything he links and mentions is here in my original posts, he even repeats my phrasing. (I guess I'm outing my SA username here.)

And he did it again yesterday which is when I found out.

Vs.

Literally hours after I wrote it he's posting. There's no way in hell he would've known about this otherwise.

Very weird. And kinda shitty, I have less than a 100 followers on Twitter, and just 56 here (390 on my old blog), I don't make money off my posts, and this dude has 41k followers.

#blog #personal history #me/cfs #plagiarism

[yin-shimo]

wishing all creators who still use curseforge a very big ‘fuck you & i hope your life gets worse’ until and after Palestine is free 🍉

#i will never get behind any creator excusing their use of cf #just like every one person who boycotts is small alone but big in numbers #so is you as an individual using cf along with all the rest of the soulless idiots #lmao i’m just pissed rn over seeing ppl still use it #xianrambles

[mrs-snape5984]

There, there…

“You let me fall apart without letting go.

Then you pick up the pieces and you make me whole.”

In one of my darker nights (and there are a lot actually), I listened to “Break in” by Halestorm…crying in my misery, in which I’m feeling captured, since I’m struggling with severe ME/CFS.

I thought about the many stories, I’ve written for Severus and the other drawings, I’ve commissioned from wonderful artists, where I was defending and protecting him. But now, that I’m feeling helpless, hopeless and afraid, I needed some comfort from him.

The artwork of the incredibly talented artist @madfantasy have always cast a spell over me and I was searching for the perfect idea for a meaningful commission. The way @madfantasy can transfer emotions into art is just amazing, so I shared my thoughts and emotions…and Mani created this touching illustration for me! I’m glad, that I overcame my own shyness and requested this commission. Thank you so much for this beautiful piece of art, Mani! You brought some light into my darkness today. I’m looking at it, listening to the song and let Severus pick up the pieces to make me whole again.

🖤 Severus and Julia 🖤

#severus snape #fuck me/cfs #i love severus #i love snape #mecfs #he is my personal comfort blanket #snape love #snape #pro severus snape #pro snape #snape content #snape comfort #snart #severus snape art #snape art #love severus #severus snape fanart #severus #snape fanart #fanart #professor snape #severus x oc

[kimkhimhant]

ME/CFS fatigue is so funny bc it's like. i can't hold myself upright. my body is melting into the couch. typing feels like a cardio workout. my hands are shaking. I don't have the energy to speak. i am feeling this way because i cleaned out the fridge and washed the dishes.

#benji talks #personal #chronic illness #chronic fatigue #me/cfs #chronically ill #spoonie

[balgur]

Watching people take a character who explicitly notes that he doesn't view himself as 'father material' and give him children will always make me viscerally uncomfortable as someone who has also had to state multiple times that I would be an unsuitable parent and still have people try to tell me otherwise.

#bg3 #baldur's gate 3 #gale of waterdeep #gale dekarios #sorry but as a cf person it's always weird when children are pushed onto me as an idea #it's uncomfortable to have your boundaries ignored as something that is flexible or that will change under the right circumstances

[ubernaut]

#silent hill #pyramid head #edit #brain fog #chronic fatigue syndrome #me/cfs #cfs/me #disability #chronic illness #cfs #personal

[hamadynes]

ChipmunkFanatic -> Hamadyne

As much love as I have for my old username (that I’ve owned since like 2008), I felt it was pretty outdated at this point and I wanted something I felt was a little more clever and current.

Sorry for any potential confusion!

#cf personal #I’m keeping my tags though haha

[galedekarios]

g*le: im not sure i consider myself father material

g*le: quite good at setting relationship boundaries and speaking up abt them

g*le: never mentions wanting kids / actually has / adopts a kid unlike a plethora of other companions

g*le: shoos t*ra away at the mention of grandchildren

fandom: we just don’t have enough information on how g*le really feels about the topic of fatherhood

#just hc and be free #idk who needs to hear this but you don't need canon validation to have hcs #there's no need to act as if there's nothing in canon that indicates how he feels or that he doesn't know what he's talking abt as a ~40yo #bc we do have all that and nothing to indicate the opposite #it's kinda something tho to see all canon instances of a cf character confirming that he is indeed a cf character being dismissed #look i have one ( 1 ) poly hc for gale (karl/gale/alton bc they are special to me) #i know he's not in canon and i'm not going to argue for it and it's all good i make it work for me #it's not a bad thing and you're not terrible for it #text: personal #ch: gale dekarios #vg: baldur's gate 3 #series: baldur's gate #tbd #discourse for ts #i mean not really but you know #if you want to filter that out (((':

[unveilandresist]

I literally do not know how I could possibly convey to someone not having this experience...the ocean of grief that exists for immunocompromised people just desperately trying not to be exposed to covid and die or become further disabled.

I have me/cfs. A postviral illness I got after having mono my senior year of high school. and now with it and its comorbidities, I'm mostly bedbound. it's hard to look at the people around me and wonder if this is happening to them, and knowing that they have no idea they could end up like me.

at least 1 out of 4 infections cause long covid. please protect yourself and others by wearing a n 95 mask or better. you don't want this. a covid infection can shrink your life to inhabiting a single room. I've been sick 8ish years and shown no signs of recovery, only decline.

and if you have lingering symptoms after covid, please, rest every single moment you are able. snatch rest where you can (also look into the nap ministry, they are wonderful). If you are experiencing post exertion malaise (PEM) and crashing after exertion, rest is vital for not making your condition worse.

#me/cfs #personal #chronic illness #disability #ableism #chronic fatigue syndrome #chronically ill #disabled #long covid

[sparkles-and-trash]

Listen, I know it’s just a meme, a joke, but the whole «you’re literally *age*, go get a job» type of replies that are all over Twitter makes me want to shrivel up and die.

I already feel like a waste of space because I can’t contrubute to society in a «normal» way.

Seeing those tweets makes me feel like I’m not worthy of having opinions or exist in fandom spaces because I’m too sick for a conventional job.

#and I’m tired of acting like it isn’t ableist af #irl tag #personal #chronic illness tag #cw ableism #ableism #neurodivergency #neurodivergent #adhd #autism awareness #adhd things #cfs #chronic illness life #chronic illness

[deadgirlinthepool]

I went out tonight.

It’s a big deal, because it’s the first time I’ve been gone out at night since being on this preventative medication for my chronic pain.

I’m back home in bed, and I enjoyed my night out with no pain whatsoever.

This has been a long time coming, and I finally feel deserving of this.

🥹🙏🏻🤍

#thoughts #personal #chronically ill life #chronically ill #chronic illness #chronic pain #chronic fatigue #chronic fаtiguе ѕуndrоmе #cfs (chronic fatigue syndrome) #cfs/me