Just wanna throw this out there that it's super fucked up that the expectation to work ourselves to the bone is so ingrained in our psyche that me crying to a friend about how unwell I am and how badly I want to kms is actually a bit relieving to the little voice in my head saying, "they all think you're faking your illness to take a leave off work." Like THIS is what it takes to convince myself that I won't be hated for taking time off work for mental health.
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“You wanna fight someone, you fight me” seemed like a silly rule at first. but after there was more than one batkid living in the Manor at the same time, suddenly the prospect of having to spar with Bruce on the mats because you couldn’t stop yourself from throwing a punch at Tim earlier is terrifying.
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the thing is that they're so fascinated by sex, they love sex, they can't imagine a world without sex - they need sex to sell things, they need sex to be part of their personality, they need sex to prove their power - but they hate sex. they are disgusted by it.
sex is the only thing that holds their attention, and it is also the thing that can never be discussed directly.
you can't tell a child the normal names for parts of their body, that's sexual in nature, because the body isn't a body, it's a vessel of sex. it doesn't matter that it's been proven in studies (over and over) that kids need to know the names of their genitals; that they internalize sexual shame at a very young age and know it's 'dirty' to have a body; that it overwhelmingly protects children for them to have the correct words to communicate with. what matters is that they're sexual organs. what matters is that it freaks them out to think about kids having body parts - which only exist in the context of sex.
it's gross to talk about a period or how to check for cancer in a testicle or breast. that is nasty, illicit. there will be no pain meds for harsh medical procedures, just because they feature a cervix.
but they will put out an ad of you scantily-clad. you will sell their cars for them, because you have abs, a body. you will drip sex. you will ooze it, like a goo. like you were put on this planet to secrete wealth into their open palms.
they will hit you with that same palm. it will be disgusting that you like leather or leashes, but they will put their movie characters in leather and latex. it will be wrong of you to want sexual freedom, but they will mark their success in the number of people they bed.
they will crow that it's inappropriate for children so there will be no lessons on how to properly apply a condom, even to teens. it's teaching them the wrong things. no lessons on the diversity of sexual organ growth, none on how to obtain consent properly, none on how to recognize when you feel unsafe in your body. if you are a teenager, you have probably already been sexualized at some point in your life. you will have seen someone also-your-age who is splashed across a tv screen or a magazine or married to someone three times your age. you will watch people pull their hair into pigtails so they look like you. so that they can be sexy because of youth. one of the most common pornography searches involves newly-18 young women. girls. the words "barely legal," a hiss of glass sand over your skin.
barely legal. there are bills in place that will not allow people to feel safe in their own bodies. there are people working so hard to punish any person for having sex in a way that isn't god-fearing and submissive. heteronormative. the sex has to be at their feet, on your knees, your eyes wet. when was the first time you saw another person crying in pornography and thought - okay but for real. she looks super unhappy. later, when you are unhappy, you will close your eyes and ignore the feeling and act the role you have been taught to keep playing. they will punish the sex workers, remove the places they can practice their trade safely. they will then make casual jokes about how they sexually harass their nanny.
and they love sex but they hate that you're having sex. you need to have their ornamental, perfunctory, dispassionate sex. so you can't kiss your girlfriend in the bible belt because it is gross to have sex with someone of the same gender. so you can't get your tubes tied in new england because you might change your mind. so you can't admit you were sexually assaulted because real men don't get hurt, you should be grateful. you cannot handle your own body, you cannot handle the risks involved, let other people decide that for you. you aren't ready yet.
but they need you to have sex because you need to have kids. at 15, you are old enough to parent. you are not old enough to hear the word fuck too many times on television.
they are horrified by sex and they never stop talking about it, thinking about it, making everything unnecessarily preverted. the saying - a thief thinks everyone steals. they stand up at their podiums and they look out at the crowd and they sign a bill into place that makes sexwork even more unsafe and they stand up and smile and sign a bill that makes gender-affirming care illegal and they get up and they shrug their shoulders and write don't say gay and they get up, and they make the world about sex, but this horrible, plastic vision of it that they have. this wretched, emotionless thing that holds so much weight it's staggering. they put their whole spine behind it and they push and they say it's normal!
this horrible world they live in. disgusted and also obsessed.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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i cant get over the ball being so CLEARLY all for crowley i can't get over aziraphale trying to woo him with a WHOLE FUCKING BALL because that's what he knows that's what romance IS for him because he's been wanting to dance with crowley ever since dancing was invented and he's so stuck in time with the way he dresses and talks and he still thinks a dance is the high of romance AND HE MADE A WHOLE ENTIRE FUCKING BALL FOR CROWLEY JUST SO HE COULD DANCE WITH HIM like now it's so fucking obvious he gave away his BOOKS without a second thought and it was all for crowley he organised a whole JANE AUSTEN THEME BALL just so he could have an excuse to finally dance with the love of his life and i can't get over this i'm shaking my fists and pacing up and down he did not give a single fuck about anything other than dancing with crowley and HE BARELY TOUCHED OTHER PEOPLE'S HANDS WHILE HIS WHOLE FUCKING PALM WAS PRESSED TO CROWLEY'S AND i need to lie down
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I think when people think of mental illness and what helps, especially with things like anxiety and depression, the treatment involves pushing yourself. Pushing yourself to get out of bed, to exercise, to take a shower, to go out in public, to order your own food from the cashier, etc.
And because the mental health movement has grown so much, people think that's the default of ALL illnesses. That the only way someone will get better is if they push themselves. That practice makes perfect. That you'll become more comfortable or strong over time the more you do something.
But what people need to realize is, with physical disabilities and chronic illnesses, pushing yourself in most cases is DETRIMENTAL. Pushing yourself past your limits can lead to flare ups or further injury. That's why it's important to know your limits, how certain activities may affect your condition, and learn how to either adapt or get help to complete the activity in question.
Also, most of us are already pushing ourselves. Most of us don't have access to the help or equipment we need. Most of us live in places where we frequently encounter inaccessible obstacles. Most of us NEED to rest.
So please don't try to be our physical therapists or doctors. There are people specifically trained to help us navigate our own conditions and limitations. There are people trained to help us strengthen our body's resilience without causing flare-ups or injury. Do not tell us "it'll be good for you" or "you need the exercise" when we say something is too heavy or too far or when we say we need our mobility aid(s). Your friend with depression may need to be encouraged to get out of bed, but your friend with chronic illness definitely doesn't.
Respect our rest.
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