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#blood cancer
levikra · 9 months
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I have Acute Lymphoblastic Leukosis aka Blood Cancer
buckle up :D
This post should've been here for sometime now cuz I prefer keeping everyone updated across all the platforms that I use as an artist.
So - Hi! My name is Evein, on 1st of May 2023 I turned 21 and since then, from 5th of May my health decided to pull a quick one on me, propelling the events that currently make me reside at the hospital with an oncology.
It all started with a tonsillitis-like fever, accompanied by furunclosis in three places on my body, a high fever that lasted for 5 days in the first half of May itself and other unpleasant symptoms. It felt weird, I've never had such an intense streak of sicknesses kick my ass like that, but of course - I went to doctors to get checked, the classic blood testings and general examinations and stuff.
That's when on 10th of May my blood test was checked by a dermatologist regarding my furuncle problem and - after some brief moments of her talking with the main doctor at the clinic - I was rushed to the governmential hospital due to the fact that my blood results had... no white blood cells. Literally 1.83 at the accepted range being much higher than that.
Needless to say I was fucking shocked, I've never dealt with the severity of the situation and let alone while being completely on my own as a human person (working, living, providing for myself, you call it).
At the hospital, after several examinations and another blood test came the recommendation paper that doctors signed with urgency, first and foremost I needed to get to an appointment at the hematologist's. That I did on 14th of May and since that point of time, till 19th, I'd been monitored, given antibiotics for my tonsillitis-like symptoms, along with my furunclosis and after 19th we ruled out the condition to be leukosis, became my white blood cells started coming back to normal with the antibiotics aiding my immunity, but despite that - thr condition still seemed as something more reminiscent of mononucleosis (which, however, in another blood test was disproven).
After exactly a week of feeling better, albeit dealing with leftover anemia, I started developing the same symptoms back and even worse, to the point of losing consciousness and thrwoing up in an elevator on 29th of May after going out for the second pack of antibiotics my hematologist had then already approved of to use to help out.
That's when I was rushed to the hospital again and - the next day - my hematologist arranged an appointment at the big clinic that has an oncology ward specifically for my situation. On 1st of June I was officially admitted with Acute Leukosis (the diagnosis doc attached is in Russian).
Since 1st of June the treatment has been ongoing, I've received three rounds of chemo along with supporting hormonal abd antibiotic therapy. Me is balding too, ofc. :D
And thus, this story leads to a logical question - what's now?
It's day 24 of my treatment, out of 4-6 weeks of inital induction period of leukosis' treatment (the overall chemotherapy to destroy tumor cells down to <5% in my bone marrow). After the induction period, if it's proven to lead to remissions - I'm then admitted out to certain periods of time in between infusions + need to take supporting medicine by myself (hence buying it too).
As an independent freelance artist who's existence is tied to being able to do creative work out of, well, any circumstances, I was sadly forced into situation of asking for monetary support, simply because it's stupid to expect to break your own back trying to work harder when you're body is collapsing on itself.
I have a goal on Boosty open for donations and I deeply appreciate ANY and I mean ANY traction of this post. I made a similar thread on Twitter covering the situation and have recieved a lotnof incredible support that has helped me a LOT so far, but my treatment is ongoing, or to be precise - will last in its entirety for 2-3 years. With the momentary help I was able to secure my living situation and get my pet cat to live for the current time period at my friend's, but you understand how that is just a temporary measure and, of course, I don't plan on stall myself - I simply just can't afford that even while hospitalised.
BOOSTY is very sus when it comes to singular donations higher than 120$ but if you happen to donate below that or in several different ones to bypass their antifraud system (only if you wish to) - the link to a goal is here -
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The Pressure To Be Brave
"You Are So Brave!" How often have we heard this said to us? Most times, people truly mean well when they say this. They are doing their best to be encouraging from their perspective of things. However, for many of us who are surviving cancer daily, those four words are filled with so much pressure and expectation.
When people see us maintaining our lives, managing families, enduring all the craziness that comes with living with this disease, they see bravery! Well, there is truth to that. But the real truth is we are just giving our all to live every day and live our best! It takes a lot of work just to maintain our "normal" lives.
Am I a superhero?
Indeed, we are strong and courageous. We fight uncommon battles for our lives absolutely every day. However, knowing that people can see you as this 'cancer superhero' and being given this subconscious permission to be brave, #BeatCancer, #KickCancersButt, #FightLikeAGirl, and all the other awesome hashtags can be overwhelming!
We didn't choose this fight
We definitely appreciate the love and encouragement! But the reality is that some days we are just SICK! There is nothing we can do about it and to be honest, we don't even have the energy to do anything. We get weak. Not tired but fatigued; downright exhausted! We have mood swings. We battle depression and sometimes it actually fights back...and wins! LOL!!!!
We deal with feeling isolated and alone. We are oftentimes in pain. We are in agony, and it doesn't always go away. Some of us live in pain. We lose weight and we gain weight! We lose our hair, our precious hair! Until you have experienced this, you just have no idea what this does to someone. We think about our mortality more times than the average person does.
Tell me it's going to be okay!
So, it's not that we don't want to be told we are brave. Here is the thing, we know living with cancer requires a special measure of bravery. We know we are brave. But it would mean so much more if we heard, "It's going to be okay", "it's ok to feel how you are feeling", or "no matter how you feel today, I will be here to help and support you!"
Our loved ones believe they keep us strong by coaching us through this and pushing us. If they just speak positively and keep us thinking about how we "should" think then we will feel and live how we are supposed to. Please remember we are human beings with real feelings, who happen to be surviving cancer daily. Just let us be that that's how we are Brave!
Leya R. Elijah
This Is What a Fighter Looks Like
CEO/Founder
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mak-and-chill · 1 month
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Join the fight against blood cancer!
I am participating in The Leukemia & Lymphoma Society's (LLS) Student Visionaries of the Year campaign to raise money and awareness for blood cancer patients & their families. 
Our campaign is coming close to an end so PLEASE consider donating! Even just a dollar is greatly appreciated!
My fundraising page link: https://events.lls.org/ga/svoyaugust24/MDowd
Thank you for your support!
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Bentley Continental GT Speed Convertible SagerStrong, 2022. A special one-off has been created to be auctioned with the proceeds going to fund blood cancer research. The car is a tribute to the late Hall of Fame Sportscaster Craig Sager and is inspired by Sager’s iconic flare and bright, eye-catching blazers. It will gather key signatures of notable sports, entertainment and celebrity figures ahead of 2023 auction to benefit SagerStrong Foundation’s fight against blood cancer
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bpod-bpod · 11 months
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In a Bind
Multiple myeloma is a blood cancer affecting plasma cells, white blood cells that produce antibodies, causing them to multiply abnormally in the bone marrow. Right now, only half of patients can expect to survive five years after diagnosis, so better treatments are sorely needed. Promising targets include fatty acid-binding proteins (FABPs), a multi-functional family of proteins that can pick up lipids, involved in a variety of processes. A recent study found that cultured myeloma cells (pictured, their nuclei in blue) expressed high levels of one member in particular, FABP5 (in red); blocking it reduced cell proliferation, while patients with higher FABP5 levels tended to experience worse outcomes. Inhibiting FABPs more broadly appeared even more effective, improving survival in some mice with myeloma. To build on these results, further research needs to investigate why not all mice responded so well, and whether inhibiting FABPs would be safe and effective in humans.
Written by Emmanuelle Briolat
Image from work by Mariah Farrell and colleagues
Center for Molecular Medicine, Maine Health Institute for Research, Scarborough, ME, USA
Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)
Published in eLife, March 2023
You can also follow BPoD on Instagram, Twitter and Facebook
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bloodcanceruncensored · 10 months
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Market Research on Car T Therapy--a paid study for USA residents from Health Union
This opportunity was sent to us by our friends at Social Health Network Blood-Cancer.com is conducting a market research study on behalf of a sponsor, to understand the treatment experiences of blood cancer patients who have received or discussed CAR T therapy. If you complete the screening survey and qualify for the study, you may be asked to participate in a 30-minute interview, which would be…
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nalyra-dreaming · 1 year
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re: yesterday's ask about drinking blood of the sick people. I always saw it as blood cancer being a very specific disease which affects blood cells directly. Gabrielle was dying from tuberculosis, so her problem was in her lungs, not her blood. And I don't remember vampires drinking blood of people with leukemia in the books, and effect of it on them.
True, though Lestat also fed on old, sick people (for example) and iirc the books don’t really make a distinction. It stands to reason the would encounter this before, though of course Anne didn’t need to explicitly note it in the stories.
As @lioncunt has added correctly the poison Claudia used in the books was to keep the blood warm, not to have the poisoning effect on Lestat.
But… I personally like the adaption/evolution they made from the book canon ability to get drunk on people who are (wine/beer) drunk, and which is on display with the wine cellar and the bottles laying around in ep 5 in the show. Because I think they twisted that into an interesting lore update for drugs and other substances, since it is also canon in later books that infusions/hormones do work after all.
But yeah, blood cancer probably … tastes real bad to them 😅
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kooks71 · 2 years
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Three years ago my husband was in hospital with sepsis caused by stage 4 blood & liver cancer.
I am so blessed that he is still in remission being told by his oncologist today ❤️❤️❤️❤️
#cancer #bloodcancer #remission #gratefulcandace #gratitude #nhs #macmillan #macmillancancersupport
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ckdrr · 1 year
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Hey friends! I’m battling leukaemia right now and have open up a gofundme page so I can be able to survive through this journey. I would be so damn happy if you could repost or share it elsewhere too if you can’t donate. Help me fight this disease and let’s spread awareness!!!
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jerseydeanne · 2 years
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kenalbert · 2 years
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Leukemia Awareness We Fight Together Gift T-Shirt: https://rdbl.co/3ci4kdc #leukemia #cancer #cancerawareness #bloodcancer #childhoodcancerawareness #cancersurvivor #leukemiaawareness #lymphoma #activism #USA #lastoffer #inspirational #trending #nft #bnb #Btc #gift #love #life
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@piecesolvingapuzzle replied to your post “The first day the MRI was scheduled (2 weeks ago), I spent the night in the hospital as a precaution. They found that my tumor...”
i think that’s supposed to be a wojak
I can't figure out what the joke is supposed to be. I do know that the person in the second image is "wojak" (meaning the image has some features of a cartoon face and some of a cartoon body). But this image has no features that look like any cartoon wojak, and so it's hard to find a "visual reference," if you know what I mean.
Here is an image of an actual "wojak," a bit more recognizable:
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artsbynorhan · 2 years
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(via Leukemia Awareness In September We Wear Orange - Orange Ribbon Leukemia Awareness Month Gift Classic T-Shirt by norhan2000)
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Symptoms of blood cancer
The symptoms of blood cancer are not specific and can be overlooked as flu or other common illnesses. Thus, you should immediately contact your doctor if you witness persistent signs that might affect your routine.
Check out our site if you need a blood Cancer Specialist consultation for blood cancer.
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drdodulmondal · 6 days
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wellxpath · 10 days
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For many illnesses/diseases that we have, the symptoms don't show up until it's too late. For instance, many cancer patients find out that they have cancer until the cancer has progressed very far into their system. By getting your DNA checked, you can get ahead of any health issue that might arise.
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