#bladder pain

[thatsprettylane]

Fucked up that society conditions us to be ashamed of bladder and bowel problems. Like those are organs. Nobody is embarrassed if their kidneys don’t work right.

#ibs #ic #interstitial cystitis #irritable bowel syndrome #bladder problems #bladder pain #bowel problems #incontinence #chronic illness #ableism

[vizthedatum]

Really struggling today because I realized and then checked that I do indeed have a UTI (based on the urine cultures that were done last week when I had my bladder instillation and then on Tuesday when I dropped off a sample at the hospital) and the nurse last week called me and told me I didn’t need antibiotics and I trusted her.

And I shouldn’t have. This is the nurse I specifically have written on my chart WHO IS NOT ALLOWED TO CATHETERIZE ME OR DO MY BLADDER INSTILLATIONS ANYMORE. She literally cannot even treat me right and I’ve been so patient with her.

I just took her word for it even though I know better.

I’ve just been so overwhelmed with my mood swings and emotions and my fucking job… that I didn’t check.

And now I’ve left multiple messages at the hospital (WHERE I WORK AT OMFG) and on my health portal… and I’m so angry.

I am so angry.

My office and fucking UPMC doesn’t even consider Intersitial Cystitis (IC) a disability. And having a UTI when you have IC is SO FUCKING PAINFUL.

I am all alone. I live all alone. I am broken and traumatized with no nesting partner and likely no one who will ever live with me again because I’m not okay. I need a lot of help and stability in my life, and my experience with humans have been: they’re selfish and unkind and NOT STABLE. My stupid ableist ex-spouse hated that I was disabled and yelled at me for all the shit I couldn’t do even when I took care of their abled ass - what a fucking loser.

I always have to end up taking care of my live-in partners while I get more and more disabled then I can’t do anything and then they all resent me for it. Or they try to control and limit my autonomy when I dare to try to help myself.

What even is the point of all this?

I’m never going to stop having pain and I have to use my other diagnoses such as PTSD and IBS to get disability accommodations for work.

Do you know what IC feels like?

It feels like a forever UTI where it burns while you pee and your urethra keeps burning when you’re not peeing. Your energy gets zapped. Lower abdominal pain. Sharp pain when you have penetrative sex. Sometimes you pee blood. Sometimes the pain gets so bad, you can’t think no matter how many skills you have or what you’ve done to prepare.

People with disabilities are also expected to lead VIRTUOUS lives - following the best diets and exercise routines to help alleviate their condition.

I try.

But do you know how hard it is to be a fucking human with so much trauma and a desperate need to be loved by a community because their parents couldn’t love them… and try to follow the best diet and exercise routines?

Laughable that I get blamed for my poor upkeep of my health when I’m literally disabled.

Laughable because I’m still fucking here despite it all even though I’m a mess.

I feel betrayed by everyone in my life who has ever claimed to have loved me. I feel betrayed by the medical system, a system where I have made my career. I feel betrayed by my own body because I don’t know if anything I do will ever be enough.

#interstitial cystitis #bladder pain #pain #vent #healing #trauma #neurodivergence #harm #medical negligence #anger #betrayal #chronic pain #disability #it doesn’t stop #it will never stop #upmc #Pittsburgh #healthcare #what is a disability

[nooooough]

Alright, who the hell is putting a Pain Pain 10000 Bites Forever curse on my tummy ?

#you better stop that #ramble #ouch #bladder pain #stomach pain

[disabilityhealth]

My bladder is just. The worst.

What do we need bladders for, anyway? I don’t need to drink liquid. It’s not worth it.

#interstitial cystitis #bladder pain #painful bladder syndrome #spoonie #chronic pain #chronic illness #health #bladder #my text

[welcometothegatewaylove]

heeyyyy my insurance company yanked my uribel two weeks ago

I haven’t been able to get out of bed and have bled from my bladder three times and my docs want me to get another cysto

I have to go to an out of state, 4 day bachelorette party on friday 

h e l p

#IC #interstitial cystitis #uribel #bladder pain #chronic illness #about me

[magnetothemagnificent]

My bladder is deciding to malfunction again....stop giving me the painful urge to pee when you're not letting me actually pee. I hate you so much oh my god.

#tmi #bladder pain #ic #interstitial cystitis #oab #overactive bladder

[shaisha]

I want someone to control my bladder for me...I get desparate too fast...but I want to experience the pain of holding in.please I want u to control me fully

#bladder control #bladder holding #bladder pain

[mcatmemoranda]

Interstitial cystitis (IC), a type of bladder pain syndrome (BPS), is chronic pain that affects the bladder and pelvic floor.[1] Together with Chronic prostatitis/chronic pelvic pain syndrome, it makes up urologic chronic pelvic pain syndrome (UCPPS).[2] Symptoms include feeling the need to urinate right away, needing to urinate often, and pain with sex.[1] IC/BPS is associated with depression and lower quality of life.[5] Many of those affected also have irritable bowel syndrome and fibromyalgia.

#cystitis #interstitial cystitis #bladder pain #UTI

[pumpkino0]

no one is talking about the horrible kidneys pain during a depressive episode because you can't get up to go to the bathroom

#depressive episode #depression #mood disorder #bipolar #mentally unstable #mentally ill #sh #bladder pain #cope #vent #venting #self haarm #self h@rm

[dialectical--revolution]

When you're in pain and yet still have to pack:

#Bladder pain #bladder pain #spilled thoughts

[naomiknight-17]

My poor Tiny Tim is not feeling well today

I think the stress of yesterday's vet visit and needle biopsy may be causing a cystitis flare-up. He's sitting in my lap but not purring. He's easily agitated and bitey. Was acting restless all morning

I'll keep an eye on him. I have painkillers and such on hand for him for just such an occasion, so if he's not feeling better by this evening I'll medicate him

My poor boy

#cats #mod post #tiny tim the cat #the anti worm #sick animal #chronic cystitis #his bladder gets inflamed and painful. poor baby

[barelyfunctioning-amber]

Being disabled is exausting, and even more exausting if you're not fully diagnosed.

I just

...

Want to function more but I just can't.

-Amber

#disabilities #disability #disabled #actually disabled #chronic illness #autism #ocd #severe misophonia #autism spectrum disorder #me/cfs #cfs/me #myalgic encephalomyelitis #chronic disability #chronic fatigue syndrome #chronic pain #chronic fatigue #bps #bladder pain syndrome #oab #actually compulsive obssesive #obssesive compulsive disorder #ibs #ibd #fd #functional dyspepsia #irritable bowel syndrome #inflammatory bowel disease #invisible disability #invisible illness #incontinence

[muiromem]

You know, it would be a LOT easier to explain to doctors where my pain is on my body

A: If the pain wasn’t in my BACK and therefore impossible for me to SEE or properly POINT TO with my short fucking arms

B: If every diagram of the human body available to me wasn’t made for TALL PEOPLE and therefore way harder guess where I should be pointing in reference to my own short fucking body

C: If the doctors examining me would just PUSH HARDER ALREADY. I literally have so much radiating pain, your fucking butterfly taps of “does it hurt here?” are NOT HELPING. You need to DIG IN THERE or I can’t TELL YOU WHAT HURTS MOST.

#really cranky tonight #and pissed about having chronic pain for THREE YEARS #and not a SINGLE DOCTOR can actually tell me what's WRONG #oh they want to give me drugs and physical therapy #and the PT only made me hurt MORE #but they didn't LISTEN #stop fucking trying to give me bandaid measures #when you can't even tell me WHY I hurt #and now I have to listen to my little sister #fucking moan and whine and have fucking drawing room anguish #every goddamn night #because she's been fighting a bladder infection #for a few months #bitch I was never ALLOWED to bitch this much #all I got was my mom getting mad at me #for being vocal #when there was nothing she or anyone else could do about it #so I had to keep my depression to my damn fucking self #god get a fucking grip

[somecunttookmyurl]

my body alert me to having an entirely full bladder with more than 30s warning challenge (impossible)

#it! is! so! annoying! just! be! normal! *screams* #genuinely i did piss myself as a kid a LOT until i was like. 10. no lie. #bc i would not know - at all! no inclination whatsoever! if i went anyway nothing would come out! - i needed to pee #until we hit 'you are going to piss yourself immediately' #just 0 to 100 in 0.35 seconds #and i did not have the control or muscle strength or whatever to not just. piss myself if i wasnt in immediate reach of a bathroom #i went though two. years. of 'bladder retraining' therapy #which is MEANT to retune you into signals or whatever so you know you need to pee with a fucking resonable amount of warning #spoiler: it did not do this #it did not improve the signalling at all whatsoever #what it DID do was develop the necessary strength and control to become doubled over with sudden OH GOD RIGHT NOW pee pain #BUT be able to hold it off for 5-10 min if necessary #which to the adults around me was a success bc it looked like i knew how to pee properly now #i don't. i just know how to NOT pee MYSELF and make it embarrassing. difference. #look man i'm 33 presumably there will literally never be a point in my life where i will know 'oh i kinda need to pee' an hour before #i will always be playing Highway To The Danger Zone every day forever #i just live like this #CHRIST it's so FUCKING annoying though #i mean this applies to all functions i have no internal signalling for anything until it is Super Right Now Urgent #my body notify me of anything at all ever challenge (impossible) #god if this aint the most annoying one though