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#auto immune disease
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Like this post if you are allergic to anything
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gypsy-that-i-was · 1 year
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mindblowingscience · 2 years
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Five seriously ill lupus patients have seen their disease driven into remission after a single infusion of modified immune cells, in a small trial that borrows from cancer therapy to harness patients' own cells to treat the autoimmune condition.
Scientists are calling the results "spectacular" and "incredibly exciting", saying the findings may herald a new era of managing autoimmune diseases that, like cancer, are notoriously hard to treat.
Lupus is a lifelong condition that, at its worst, causes organ damage on top of disabling joint pain and affects around 1 in 1,000 people, mostly women of childbearing age.
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The five patients (four women and one man) have been in remission for between 5 to 17 months, and in that time, their disease has not relapsed despite a resurgence of B cells a few months after treatment.
Crucially, those newly made B cells haven't churned out the autoantibodies their dysfunctional predecessors did, so the researchers suspect they have indeed succeeded in rebooting the patients' immune systems – although time will tell.
Continue Reading.
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Implying her auto-immune disorder isn’t real is kinda fucked up, y’all. She’s posted about health issues and surgeries for years. I know she lies about other things, but the countless hospital pictures, surgeries, and trouble with eating seems like plenty of proof for me. As someone with an invisible chronic illness that gives me digestion issues, I worry that people see me and think I’m lying too. Invisible illnesses are real.
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clairaworlds · 5 months
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Two days ago I rode over a mile and a half on my scooter.
Tonight I did 10 (admittedly pathetic) push-ups, heald a wall sit for a minute and a half, heald a plank for almost 20 seconds and did 10 step ups!
Maybe that sounds pathetic, to me it sounds like victory, last Last December I couldn't walk up more than a flight of stairs without nearly passing out up. Last winter I was wracked with low grade fevers every night for weeks. The fall of 2022, I was sick so often I failed two classes, the summer off 2022 I never thought I'd get better. Winter 2021 I walked with a cane. Brusing my knees on the pavement when I tried to go without it, my joints to weak to hold me up.
Tonight I did 10 push-ups, two days ago I rode a mile and a half, a month agao I walked across campus in the rain (for the first time in two years I was outside in the rain without feeling sick).
Who knows what tomarow will bring
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jj-exe · 20 hours
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Holy orange bottles, Each night I pray to you
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bbapplehoneybbw · 6 months
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Guess who starts immuno suppressants tomorrow?
This girl….
It’s nice when you finally get medication and can breathe. Feeling like you’re crazy because your symptoms just don’t make sense. Anyways, vent over. Doctors currently thinking psoriatic arthritis. It’ll be trial and error now for awhile. But here’s me 🙃
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sonyakiii · 2 years
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life is hell
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I did it 🙊
I worked out. And I had a cold shower. And a smoothie.
And I felt better.
And I went to work and did all the things.
I’m motivated to keep going. Moving forward.
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adamslilith · 1 year
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Pretty much 6 months ago I had my first clinic flare up and got diagnosed with MS.
And here I am now.. again with a flare up. Again my immune system is destroying my central nervous system. This is way too early. This is not good at all.
So once again I can post "Gloria" who is my visualisation of Multiple Sclerosis.. from my art project A Thousand Faces created to raise awareness of this invisible illness by visualising every aspect of it.
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thoughtportal · 5 months
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New COVID-19 variant raises concerns, long COVID becomes third leading neurologic disorder in the US
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gypsy-that-i-was · 1 year
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There is no cure.
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sentimental-apathy · 27 days
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Would anyone be willing to help me buy some hemp thca products? Their anti-inflammatory effects are extremely helpful at relieving my chronic nerve pain and arthritis. It's 100% legal and I can order online. I'd need about $50 to get what I need. It's basically a less potent version of regular thc, and has a relaxing effect on top of the pain relief. Helps me sleep better too.
Cash app
Venmo
Paypal
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Celiac disease Is classified as an autoimmune disorder.
If you’ve been an EA fan long enough, you’ll know she’s been largely gluten-free for a few years.
She seems to have an issue eating. And has always been a fan of “Digestive Buiscuits” which are meant to aid in digestion.
Just my opinion, with no actual evidence, but I do think that her autoimmune disorder might be celiac disease……..
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cripple-culture-is · 9 months
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could you tell us about question 7 in the ask game? Also 1 if that's ok.
Hi! Yeah, of course! No problem at all =D
Question #7: What's a struggle you wish more people talked about?
Oh, there's honestly so much. I wish more people talked about the struggles and importance of accessible household items, I think. I don't think people talk enough about how accessibility is really important when considering buying certain things.
For instance, I struggle to open the handle at the house my family and I live in. We bought our new house a few years ago, and we couldn't change the handle. My parents have been intending to change it, but they haven't.
We are also currently looking to get a new vehicle, which means we have to check how accessible it is for me. How hard it is getting in, how much leg room I have, where the handles are, and how easy it is to handle/drive.
Accessibility is about more than ramps and wheelchair accessible vehicles. Even though I don't 'look disabled' (whatever that means), I still have to consider accessibility wherever I go and anytime I'm looking at something new.
It could simply be the difference between squeezing a tacky glue bottle vs. squeezing an Elmer's glue bottle, which is a struggle I have dealt with. Tacky glue bottles are CONSIDERABLY harder for me to use due to wrist strength than Elmer's glue is.
It's as simple as needing someone else's help to put on a fitted sheet, or having glass containers that are hard to open. I don't 'look disabled', but I am. And because I deal with wrist pain and my disability affects my wrists, it leads to issues with wrist strength.
So while there are many struggles I'd like to hear about more, I think that is my choice.
Question #1: What disability/ies do you have? (and are they mental, physical, or both?)
I have one diagnosed disability. I believe I have some undiagnosed ones (autism, ADHD, anxiety, depression, c-PTSD and/or PTSD, either celiac or non-celiac gluten sensitivity, and hyperthyroidism).
But for the sake of accuracy, I am only going to explain my diagnosed disability =)
I don't think I have gone into full on detail of what my disability is, even on my main blog. I honestly can't remember.
I have an autoimmune disease called RF (rheumatoid factor) negative polyarticular juvenile idiopathic arthritis. Because I am 20, this would (I think) be referred to as juvenile-onset arthritis, but again, for the sake of accuracy, I am going to give the diagnosis I have on my medical record. By 'juvenile' it means that it is diagnosed/occurs when someone is 16-17 or younger.
Polyarticular means 5 or more. This means that at least five joints in my body are affected by my arthritis. In my case, I have arthritis in every single joint in my body.
It affects my neck, jaw, spine, collarbones, ribs, shoulders, elbows, wrists, fingers, hips, knees, ankles, toes, etc. All of it. Pretty much my entire skeleton is affected. I mostly tend to have problems with my knees, jaw, and wrists. But they are all affected. Because of my disability, I do deal with chronic pain. I struggle when walking sometimes, though I often push myself due to familial expectations, and the fact that I don't like 'complaining'. I also can't stand for long periods of time because of my disability.
My disability is physical. It is mobility related. My disability is categorized as a physical disability, an autoimmune disease, a chronic illness, a musculoskeletal condition, a connective tissue disorder, and a mobility impairment, which is honestly a mouthful XD
I think my arthritis has affected other parts of my body that don't inherently have to do with my joints (potential livedo reticularis on my legs, watery eyes, etc.), though because those aren't confirmed, I just went with what the condition is said to cause (the other issues might be caused by RA, which I am technically not diagnosed with [though I feel like I might have seronegative RA, which would just end up being the more adult type of the JIA I have])
Thank you for the questions!
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lifethroughfingertips · 11 months
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I am so depressed today… just everything weighing on me heavily. I feel I’ve had undiagnosed ADHD my entire life and it makes living very difficult. My brain never stops and I can’t focus. I’m messy and have to write lists of every single thing I want to do because if I don’t I will never remember I want to do that. It makes me feel like I am not good enough on top of everything I already deal with. And then it pisses me off that I’m 31 and no dr was ever like hey maybe we could try medication and change your life! But if I were a dude I feel I’d have been diagnosed early on. Everything is a fight all the time constantly.
Feeling physically terrible after gardening and I have so much to do this week. Like really… gardening!? I want to go on a run! I want to lift weights! I want to do it all! And I’m sooo limited. I want to be a boss ass bitch!
I’m planning on having a yard sale this weekend, gotta finish getting my plants in the ground and make some sample strawberries to sell for graduations. Doing this on top of working is tough but I know I’m good at it and I know I could get better and have it turn into something I can do and enjoy more. I get so tired of having to be so strong and push myself so hard. Some days I just want to quit but I know I want more for myself. It just feels so unfair that I have to work so much harder to do normal things I enjoy. Saw something on Twitter about how different countries kill dogs in insane ways to eat and now I’m like man this world is…. Too much for my soft heart. I’m too soft. Just wish the universe would let me wear pink and look pretty and make everything get easier. Fuck.
I know I will keep pushing and keep finding ways to move forward. Some days I just have a lil breakdown as a treat and then I keep on trying.
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