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andthebeanstalk · 11 months

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Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

#hlep #original #mental health #my sympathies and empathies to anyone who has to rely on this kind of hlep to get what they need.#the people in my life who most need to see this post are my family but even if they did I sincerely doubt they would internalize it #i've tried to break thru to them so many times it makes my head hurt. so i am focusing on boundaries and on finding other forms of support #and this thing i learned today helps me validate those boundaries. the example with the milk was from my therapist.#the example with the towing company was a real thing that happened with my parents a few months ago while I was age 28. 28!#a full adult age! it is so infantilizing as a disabled adult to seek assistance and support from ableist parents.#they were real mad i was mad tho. and the spoons i spent trying to explain it were only the latest in a long line of #huge family-related spoon expenditures. distance and the ability to enforce boundaries helps. haven't talked to sisters for literally the #longest period of my whole life. people really believe that if they love you and try to help you they can do no wrong.#and those people are NOT great allies to the chronically sick folks in their lives.#you can adore someone and still fuck up and hurt them so bad. will your pride refuse to accept what you've done and lash out instead?#or will you have courage and be kind? will you learn and grow? all of us have prejudices and practices we are not yet aware of.#no one is pure. but will you be kind? will you be a good friend? will you grow? i hope i grow. i hope i always make the choice to grow.#i hope with every year i age i get better and better at making people feel the opposite of how my family's ableism has made me feel #i will see them seen and hear them heard and smile at their smiles. make them feel smart and held and strong.#just like i do now but even better! i am always learning better ways to be kind so i don't see why i would stop

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solarmorrigan · 4 months

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Hands Where I Can See Them, Part 4

Part 1 | Part 2 | Part 3

The only thing Eddie is dreading as much as Steve’s return for his things is Wayne’s inevitable question about where Steve is at all.

After all, Steve has practically been living with them for weeks – something that Eddie may not have allowed himself to consider the significance of, but which Wayne cannot have failed to notice. Though Steve had (apparently) felt the need to do things around the trailer to stay in Wayne’s good graces, he really didn’t have to worry about it; Wayne likes him, and he’ll be asking sooner or later just where Steve has gone.

‘Sooner’ comes two nights after Eddie royally fucks things over. It’s Wayne’s night off, and there’s really no avoiding him; their new trailer is bigger than the last, but it’s still close quarters, and Eddie gets caught when he passes through the living room to get a drink from the kitchen.

“Noticed Steve isn’t here tonight,” Wayne says, blunt as hell, because he doesn’t see the point in doing things any other way.

“Nope,” Eddie says shortly, grabbing a glass from the cabinet and filling it from the tap.

“Wasn’t here last night, either,” Wayne goes on.

“He was not,” Eddie confirms.

“Wasn’t here when I got in yesterday morning,” Wayne says.

“You are a veritable font of observation tonight,” Eddie says, only a little snarky.

Wayne shrugs. “Hard not to notice when he’s here nine days out of ten, then suddenly up and disappears,” he says. He pauses a moment before adding, “Stuff’s gone from the bathroom, too.”

Eddie occupies himself with slowly swallowing down half his glass of water before he answers. “Yeah.”

“Don’t suppose he’s going on a trip,” Wayne doesn’t quite ask, and Eddie lets out a bitter sort of laugh.

“Loving the optimism from you, but no, not… not so much.”

There are a few beats of silence, and then Wayne lets out a slow sigh. Eddie knows him well enough to understand the sound of it – he’s just decided to get involved.

“You two have a fight?”

“Something like that,” Eddie mutters.

“Well that’s vague as hell, son. You have a fight, or didn’t you?” Wayne prods.

Slowly, Eddie shakes his head. “No, I– I don’t think so. I think it was all me,” he says, finally looking up from his glass and meeting Wayne’s questioning gaze. “I fucked up, Wayne.”

There’s no immediate judgement coming from Wayne, no suspicion or scorn, not even a shake of the head and some variation of “Of course you did.” There’s only a measured sort of curiosity in his stare, the same way it’s been since Eddie was a kid and Wayne was trying to figure him out; it’s sort of comforting in its familiarity, in its neutrality.

“You wanna tell me about it?” Wayne asks.

Eddie knows that if he says no, Wayne will let it go. He might keep sending curious and worried looks Eddie’s way, he might ask a few more prodding questions over the next few days, but he won’t make Eddie say anything he doesn’t want to. And Eddie doesn’t really want to – but he thinks that maybe he needs to.

“If… you had to define mine and Steve’s relationship, what would you say?” Eddie asks after a moment.

Wayne cocks an eyebrow at him. “I’d say that feels like a trick question.”

Eddie lets out a little huff of a laugh. “It’s not, I swear. I’m seriously curious,” he says. “There are no wrong answers – go.”

“Well,” Wayne says, still eyeing Eddie consideringly, “I don’t know if you kids put labels on things these days or what, but from the outside, I’d say you’re dating. I’d say that boy is fully in love with you and that you’re at least halfway to loving him back.”

“Right.” Eddie gives a jerky nod. “Seems like that’s what pretty much everyone thinks.”

“But that’s not what’s going on,” Wayne takes a guess.

“Well, that depends on your perspective,” Eddie says, a little high and tight.

“Well, the only perspectives worth a damn here’re yours’n Steve’s,” Wayne shoots back. “So what would those be?”

Eddie drains the last of his water, turning away to put the glass in the sink. “Steve… shares your perspective. Or, uh– he did. But I… I didn’t realize he was so serious. I thought we were just kind of messing around.”

The silence from behind Eddie is so thick that he can’t help but finally turn around and meet Wayne’s gaze again.

“That’s a hell of a blind spot, Ed,” Wayne says simply, and Eddie folds in on himself a bit, crossing his arms over his chest. His main defense has always been to become larger than life – to make big gestures and even bigger speeches, but everything about this situation makes him feel like nothing so much as small.

“Yeah,” he says quietly.

“So, what, you figured out how serious he was and thought you didn’t want that?” Wayne asks, and Eddie hunches a little further in on himself.

“Nope. No, that– would’ve been better, actually. If that’s what happened. But that’s not what happened, because did I mention I fucked up? Because I seriously fucked up.” Eddie’s rambling is stemmed by an expectant look from Wayne. “It’s just – the other night, when the guys were over, we got to talking about it. The whole… me and Steve thing. As in, they thought me and Steve were a thing. And they asked me about it. While Steve was out of the room. And then he, uh. Hm.” Eddie rubs a hand nervously over his chin. “He walked back in when I was in the middle of telling them that he's just a friend and that we’re just having fun. And that’s… when I found out how serious he was.”

“Eddie…”

“I know. I know!” Eddie doesn’t even have to look at Wayne to catch the disappointment coming off of him, so he doesn’t. He scrubs hands over his face and then just leaves him there, telling the rest of the story to his palms. “He was so fucking upset, Wayne, I think– I think I actually made him cry? And the only reason he hasn’t been here to get the rest of his stuff out of the trailer yet is because he was down with a migraine the next day. Like, I hurt him so badly I made him physically ill. So I didn’t just fuck up, but I’m actually a horrible human being and should probably spend the rest of my days living in isolation so I don’t ruin anyone else’s life.”

Wayne is silent for so long that Eddie is eventually forced to peek out from behind his fingers.

“You’re not gonna tell me how bad I fucked up?” Eddie asks, still a bit muffled.

“Seems like you have that covered already,” Wayne says, then he holds up one arm in offer, nodding towards the empty spot beside him on the couch. “C’mere.”

He doesn’t need to ask Eddie twice. No matter how old he gets, Eddie doesn’t think a genuine hug from his uncle will ever stop being comforting, and regardless of whether or not he thinks he actually deserves it right now, he’s going to take it. He crashes down onto the couch and leans heavily into Wayne’s side, sighing as Wayne wraps his arm around his shoulders.

“You’re not a bad person, Ed. You made a mistake, s’all,” Wayne says, and Eddie scoffs.

“Pretty big fucking mistake,” he mutters.

“Yep, that was a doozy. You hurt someone you care about, and you might not be able to fix it all the way. But that doesn’t make you terrible. Makes you human.” Wayne gives Eddie a comforting squeeze. “And Steve ain’t a bad person, either. He’ll know you mean it when you tell him you’re sorry.”

“Yeah,” Eddie says quietly.

“You think about what you’re gonna do when he does show to get the rest of his stuff?” Wayne asks.

“Besides grovel?” Eddie shoots back.

“I mean, what’re you gonna grovel for?”

Eddie lets out a long breath. “I… I know I might not be able to fix it, but I just – I want the chance to try. I’m hoping he’ll just give me that chance.” Eddie pauses for a moment, choked by the dread of the thought that Steve might not give him that chance. “Things don’t have to go back to the way they were, but I at least want him to know that even if I’m shit at showing it, I do care.”

“Sounds like a decent place to start,” Wayne says.

“Think so?” Eddie asks.

“Mm.”

“Well… I hope Steve thinks so, too.”

Wayne gives his shoulders another squeeze and says nothing more, but he doesn’t really have to. He’s already settled Eddie’s nerves more than he’d thought possible; just this is more than enough.

Now Eddie just has to try to hold onto the feeling long enough to talk to Steve.

It turns out, Eddie doesn’t have to hold onto the feeling for very long at all; the very next morning—two days after Robin had read Eddie the riot act and left him to begin tentatively planning—another knock comes at the door.

It’s ten in the morning – not as early as Eddie had expected, but early enough that he’s not long out of bed when he opens the door to find Steve on the other side.

In contrast to Eddie’s sweatpants and t-shirt, Steve looks like he’s trying very hard to look like he’s alright. His polo is clean and tucked in, the collar is straight, his hair is as perfectly styled as ever – but there’s still something off. There are dark circles under his eyes, stark against a paler than normal complexion, and none of the ease or contentment that Eddie has grown used to shines from his face. He feels a little like he wants to mourn its absence.

“Hey,” Steve says, nodding in greeting.

“Hey,” Eddie says back, because for all his thoughts and planning, he hadn’t really considered how to start this encounter.

“I came to get my shit out of your way,” Steve says, and Eddie frowns.

It’s not in my way, he wants to say. You’re not in my way. Leave your stuff. Stay.

“Uh. Yeah, sure,” Eddie says instead, stepping aside to let Steve in.

Steve is carrying a cardboard box, but doesn’t seem to have anything or anyone else in tow. For as spread throughout Eddie’s life as Steve has become, he wonders if all of him will fit into that one box.

“Kinda surprised you didn’t bring Buckley to help pack,” Eddie says, glancing back out the screen door, as if Robin might appear out of nowhere.

“Just dropped her off at work,” Steve says. “I figured she probably already had… words for you when she picked up my meds, and I didn’t think any of us needed an encore.”

“I don’t know,” Eddie says quietly. “The stuff she said got me thinking.”

In the process of grabbing a jacket he’d left behind off one of the hooks by the door, Steve only glances back at Eddie. “I’m sure she had a lot to say,” he says, carefully neutral.

“Yeah. She, uh – definitely did. Can we talk?” Eddie asks.

Steve sighs. “Eddie…”

“Just hear me out, please. Then I’ll get out of your way and let you pack in peace, I promise,” Eddie says.

“We don’t– have to talk about it,” Steve says, turning back to face Eddie. “Look, I’m sorry for putting my weird expectations on you. I was reading into stuff that wasn’t there, and I made assumptions instead of just talking to you, and that’s on me. So I’m gonna just – get out of your hair, and you won’t have to deal with my stupid, delusional bullshit anymore.”

“No, that’s not– Steve–” Eddie reaches out for Steve as he tries to brush past on his way to the bedroom, where most of his belongings are. He gets a hand around Steve’s bicep and, though Steve doesn’t jerk away this time, he goes stiff and still beneath Eddie’s touch, prompting Eddie to let go.

It hurts; even though Eddie’s done it to himself, the reaction still hurts. He’s always reached for Steve in the past, always had his hands on him, and Steve had always welcomed him, even before they’d started sleeping together. Now, Eddie takes a step back, forcing himself to give Steve some space.

“That’s not what I want to say at all,” he says. “I mean – I would’ve liked if we’d talked about it, because then I would’ve known, and I could’ve appreciated what it was – what we were doing.”

Steve turns back to face Eddie, his gaze snapping straight to him with equal suspicion and confusion. “What?”

“Steve, you weren’t reading into things that weren’t there, you’re not– you’re not stupid or delusional, I was just – I was sending you mixed signals,” Eddie says. “I was so wrapped up in thinking that I knew what was going on, that I didn’t look at what I really had, and I’m sorry. But if I knew, if I’d just gotten my head out of my ass, you have to believe that in a heartbeat, I would have–”

“Don’t,” Steve cuts in sharply.

“Steve–”

“I don’t need whatever this is, Eddie,” Steve snaps. “You don’t need to have pity on your pathetic ex-whatever I am to you, okay? It’s okay, just– just let it go.”

“This isn’t pity,” Eddie insists with an incredulous little laugh. “It’s fucking not, I swear! This is me saying that I fucked up and I hurt you and I want to make it up to you. I haven’t done anything to deserve it, but I want the chance to show you how sorry I am and how much you mean to me– in whatever capacity you’ll let me.”

“Whatever capacity?” Steve stares at him, brows furrowed.

“Whatever you’ll be comfortable with. As a friend, or… as more, if that bridge hasn’t burned,” Eddie says.

“What, so now I’m relationship material?” Steve asks, pointed.

Eddie winces. “I shouldn’t have said that. I shouldn’t have said any of that, and if I could go back in time and slap myself upside the head before I let any of that shit out and hurt you with it, I would. I know that… I know I didn’t pay enough attention to you, but I also wasn’t paying very much attention to how I was feeling,” he says. “Because honestly? I’m kind of a moron, Steve. I’ve never had sex with someone I really liked, with someone who was anything like a friend, and when I started wanting to be around you all the time, and always wanting you within reach, and when every little thing started to remind me of you, I just thought… yeah, this is what friends-with-benefits feels like. Y’know, like a fucking idiot.”

Steve doesn’t laugh. “I don’t know if I can trust you on that,” he says softly, and that’s fair.

It hurts, but it’s fair.

“Then let me earn your trust back. Please, Steve, just… give me the chance,” Eddie implores, doesn’t even care that he’s basically begging – Eddie doesn’t beg, but for Steve, he’ll make an exception. For Steve, he thinks he’ll do just about anything.

Pursing his lips, Steve looks at the floor beside Eddie’s feet for a long moment, and Eddie gives him the time to sort his thoughts out.

“I want to say yes. Part of me just wants to accept your apology and pretend that none of this happened. Just keep going the way we were,” he says. “But I can’t keep doing that – ignoring shit. I just… can’t.”

“I’m not asking you to,” Eddie says. “I don’t want things to be like they were before, I want – I want to be better. I want to do better.”

“How?” Steve asks, both challenging and curious.

“I want to do it right. I want to show you how much I appreciate you, and how much you mean to me. I want to treat you like you deserve to be treated,” Eddie insists. “And if that’s just by being the best friend I can be, then that’s what I’ll do, but I would love—love—if you’d let me romance you.”

That briefly breaks through Steve’s stony façade, and he lets out a huff of a laugh. “Romance me?”

“Shit, yeah. Flowers and chocolates and candle-lit dates – the whole nine yards,” Eddie says with a slow grin. “All the things you’ve given other people but that no one has ever given you.”

“I…” Steve starts, his own humor fading quickly. “I don’t know.”

It’s better than an outright ‘no.’

“That’s okay,” Eddie promises. “You don’t have to know right now. I can wait. I’m a patient kinda guy.”

(That’s an absolute lie, and they both know it, but Eddie will find all the patience in the world if Steve needs time to think.)

Slowly, Steve nods. “I think… Just, give it a couple of weeks, okay? Really think about it, and if this – if I’m something you still want by then, come talk to me again,” he says. “Alright?”

“Yeah.” Eddie nods rapidly. “As much time as you want. I’m not going to up and change my mind. Two weeks, I’ll ask again.”

Steve shrugs, taking a step back towards the bedroom.

“I will,” Eddie promises – not defensive, but certain. He can wait two weeks. He can wait as long as Steve needs him to. Maybe he can take the time to get his shit together.

He does care about Steve. He does pay attention – and he’s going to prove it.

But in the meantime, the only thing Steve has asked for is space, so Eddie gives it to him. He retreats to the kitchen to let Steve pack up in peace, trying hard not to feel bereft at the thought of the gaps Steve will be leaving behind.

If he’s lucky—if he’s very, very lucky—it won’t be forever.

Part 5

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