#and also some good commentary on luck and oppressive structures

[theroyalmile]

No Returns, No Exchanges

Disclaimer: I have debated for quite a while whether or not I should post this blog.  Social media is such a curated space for joy and happiness, it can feel oppressive at times.  There is so much life-changing positivity, from engagements to new jobs; and don’t get me wrong, that happiness is great to see.  But on the other hand, all of that positivity makes me feel like sharing any kind of negative information is attention-seeking and an immense overshare.  So let’s ask ourselves why I feel that way.  Why is happiness celebrated while the sad, sometimes harsh realities of life are thought to be oversharing?  More specifically, why do we feel like life-changing news can only be shared when it doesn’t make other people uncomfortable?  Our expressions of pain should not be regulated by the comfort levels of the people who surround us.  There comes a time when not sharing something begins to feel like hiding something, and hiding something turns to shame.  That is a feeling that I refuse to welcome into my life right now.  So here we go. 

It has been a while since I posted anything… a really long while.  It has been rare, these past few years, that I have even felt I had anything much to say let alone write anything, mostly because my life has been fairly normal, fairly unextraordinary, and I am rather blessed to be saying that during such a difficult time for so many. The few moments where I have felt like I had something to say have been fleeting, and after a good 2am word vomit on paper, I have filed these musings under “not to be seen by the light of day” which is probably for the best.

 Sometimes in the past I would find myself wishing I had something interesting going on in my life, something worthy of commentary… I don’t know, I was thinking like a cool hobby, an interesting skill, a kick-ass career, or a run in with Tom Hardy like I’d always dreamed of… something.  

 Well, to whoever is in charge, this is not what I meant, and I would like to request a refund. 

 Because as its final parting kick in the ass 2020 decided to gift me with breast cancer.  This isn’t a bad punch line, it’s just the truth.Let me give you a second to process that one.  I certainly needed a few.

 The thing is, a little itty bitty 3-centimeter tumor- that’s not something I can give back, as much as I might want to.  It’s not a too-large sweater you can return with a gift receipt, and it’s not a bad haircut you can complain about and get your money back (though it certainly will include one in a week or so!)

 A lot of you already know this story and frankly it’s not one I can tell with much finesse or humor, so I will keep it brief.  It was a dark and stormy 6pm when I found a lump in my breast in the shower back in November.  My initial thought was “you’re a crazy lady and a hypochondriac, let’s give it a few weeks since this is probably nothing.”   A few weeks, when my imaginary lump seemed to not actually be imaginary, I figured okay, it’s time to see my doctor, it’s probably nothing but we need to make sure.  I was in fact so unconcerned about it that I didn’t even see my regular doctor. I figured I just needed a medical professional to feel me up and let me know what to do next.  I didn’t even bother mentioning it to my parents. (For context of my laissez-faire, when I was 14 I found a lump in my breast that turned out, after little fanfare, to be a cyst which was unceremoniously drained on a cold metal table by a male doctor in a somewhat traumatizing but ultimately benign event.  That’s a longer story for later). 

 Cue a physical exam, confirming I was not crazy and there was a lump, but it was probably nothing; an utltrasound, confirming the lump was a shape that they did not like, but it was probably nothing; and an ultrasound guided biopsy, in which the probably nothing was sampled.  The week between Christmas and New Year’s was spent impatiently waiting for the news, increasingly feeling that my probably nothing was maybe, actually something.

 On December 28 around lunch time I received a phone call in the middle of the work day from the radiologist, who while very nice, was someone I had only met once while she shot a needle in and out of my boob.  She asked me how I was doing and then told me my test results were in.  “I’m sorry to say it’s not good news,” she said.

 And believe it or fucking not my immediate thought was “It’s not good news… it’s great news!” My brain supplied this as if on autopilot like some kind of 90s game show host, knowing fully well that I would not be so lucky because we are not living in a Brooklyn 99 episode.  It’s weird where your brain goes under duress.

 It was one of the most uncomfortable phone calls I have ever had, wherein I found myself trying to reassure a complete stranger that I was okay and I’m pretty sure I even said, “it is what it is.”  I was told a breast surgeon and oncologist from my provider network would be in contact and the call ended. Ultimately, I was diagnosed with Stage 1B Triple Negative Invasive Ductal and Lobular Carcinoma.  No returns, no exchanges.

 I am two months into my diagnosis, and 1/8 of my way through chemotherapy, the first part of a three series treatment (to be followed by surgery and then likely radiation.)  This Friday, after my second chemotherapy treatment, I will begin to lose my hair.  Anyone who knows me at all knows that the hair loss will be a pill likely far harder for me to swallow than the chemo itself.  And while the look may have worked for Demi Moore in GI Jane, I do not have her bone structure, nor her body.  I anticipate I will look more like the yellow peanut M&M, which while obviously the best M&M of the bunch, I think we can all agree is not a cute look for me.

 I do not say this to be melodramatic, I just say this because I am cynical and pragmatic by nature: I am not particularly surprised that I have cancer.  And this is for several reasons, some of which probably deserve a longer blog later.  To put it simply, I have been surrounded by cancer, both by choice and by cruel fate and happenstance, my entire life. 

 Cruel Fate and Happenstance: Having several relatives who have gone through cancer, and a mother with a BRCA 1 genetic mutation (which I had a 50% chance of inheriting, and in fact did) I always figured it would eventually happen to me.  The odds this condition dealt me? “About 13% of women in the general population will develop breast cancer sometime during their lives. By contrast, 55%–72% of women who inherit a harmful BRCA1 variant… will develop breast cancer by 70–80 years of age.”  That 55-72% is the kind of percentage you want winning the lottery, but the lottery this most certainly is not, and that much I understood. So, I always figured something like this would probably happen.  Did I think I would be 28? No. But I figure that just makes me an overachiever. 

 Choice: I volunteered at a cancer support non-profit from the time I was 12 to the time I was 22, and I wrote my college senior thesis in anthropology on women with ovarian cancer, the cancer that killed my aunt Lizzy when I was 4 years old.  I have likely read more books on cancer than your average newly diagnosed person, which I find to be both a blessing and a curse.  On one hand, I know some of what’s coming.  On the other hand, I know some of what’s coming.  Of course I don’t think any of these things gave me cancer but you might say I have been training for this my whole life.  I think this joke is far funnier than pretty much everyone I say it to except my immediate family, because the Tenney/Koss folk are very big on gallows humor, in which case this is hilarious.  Comedy is our family coping mechanism, and I am guilty of occasionally forgetting not everyone is wired like that.   

 So where are we right now? Taking it day by day.  Do I frequently find myself wallowing in self-pity these days? Sure.  But all the same I feel truly lucky.  This is a feeling I am trying to hold on to, because I think the other options might be truly unbearable.  Why? Well, I found this tumor.  I’m 28-years-old, which means I am hardly old enough for a regular mammogram and MRI.  My last yearly physical was a TeleHealth appointment (hence no actual physical) and I will be honest, I never made a habit of regularly checking myself like I should have.  But this tumor just presented itself casually during a shower.  Breast cancer, when caught early, is highly treatable and curable, and I am fairly confident, knock on wood, that is where this particular nightmare is headed.  The fact that it was caught early: pure luck. 

Another reason I feel lucky is for the most part, I feel like I actually have the stability to handle the oncoming struggle.  I have a large and wonderful support system, an incredible and supportive partner, a savings account with actual savings in it, and a job where I am cared about as a human.  If this had happened to me three years ago, almost none of these things would be true.  There will never be a good time to have cancer, but some times are apparently better than others.  Of course, the ongoing pandemic means I can’t have people go with me to chemo, or my wig fitting, or my surgery consultations, and alone a lot of this seems much more daunting and difficult than it might otherwise have been, but I am trying to make a habit of counting my blessings, and despite this terrible thing I’ve been given, my blessings are many.

 There isn’t a “right way” to have cancer, but I think there might be a “right way” for me.  I am a private person and I find sharing some of these details difficult and more than a little uncomfortable, but I am also intimately familiar with the healing nature of writing and comedy, so I am going to give it a shot.  

 And now that I think of it… the peanut M&M is going to make a really great Halloween costume. 

#cancer #breast cancer #personal #newly diagnosed