#WE DONT NEED TO BE RELATED TO RELATE! WE DONT NEED TO SHARE GENES OR A SURNAME! YOU ARE! YOU ARE! MY CHOSEN! CHOSEN FAMILY! | Explore Tumblr Posts and Blogs

meloswifeyyy · 3 years

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Relationship Alphabet

A - Attitude

Who often has the worst Attitude ?

Well, you obviously. Most of the time because you are hungry or you and Melo just got out of an argument. Melo usually fucks the attitude out of you anywhere, anytime tho.

B - Baby

Who wants Babies the most - first ?

Melo. He often jokes about having kids or when you are having sex he would whisper in your ear “You trynna have my babies?” or “You boutta have my babies ” when he nuts in you. He says that he wants 3 or more. You only want 2. You arent rushing into it.

C - Crying

Who Cries the most in the relationship ?

You. You often cry alone when you miss Melo when he is at away games for so long. Or when your BP triggers, Melo would comfort you. When watching sad movies, or when someone you love dies. Tears of joys appear here and there. Or when you get into arguments and Melo says something wrong or disrespectful out of madness.

D - Dates

Who has the best Date spots ?

Melo. He would often take you to fancy restaurants in L.A or Miami, or wherever you guys went. Or take you shopping at an expensive place. He would do dates at home like watching movies, have you cook dinner because he cant cook for shit, or he would have a bath waiting on you.

E - Eat

Who Eats the most ?

You. You know damn well you cant survive without food. Its the 2nd best thing that has ever happened to you besides life and Melo. Cant even survive a night. If you would wake up in the middle of the night and get hungry and go to kitchen and try to sneak some food without waking Melo up, he would hear it and go to the kitchen and scare you, picking you up over his shoulder with one arm, and with the other putting the food away carrying you back to the bed because its a little to early in the morning to be eating.

F - Freak

Who is the Freakiest ?

Both of you. You being the only girl that can fuck Melo like you do, and being the only girl Melo is sexually, physically, and mentally attracted to no other girl can do it like you.10/10 in bed. Now Melo on the other hand is a demon in bed. His strokes, hitting your G - Spot constantly with you feeling it in your guts. His 9 inch is almost always on hard when he is around you. And his tongue is crazy, going in and out and on the pearl AT THE SAME TIME. Crazy right. Spelling his name out on you. He loves when you scratch his back up or give him hickeys everywhere. 10000/10. Makeup sex is the best.

G - Games

Who wins the most games ?

Melo. He would always dare you to a game of Call of Duty or Fortnite to see who would win first. And he would always win. When you would play a game of Uno you would often win and he would be mad the rest of the day due to his competitiveness. But any other game he would win.

H - Happy

Who is the Happiest in the relationship ?

Both of you. You are always happy when you guys are around each other. Even when you guys just got done arguing you are still happy that he is in your presence. Melo on the other hand is always happy with you around him, he loves to cuddle with you. Its one of his favorite thing to do. He just loves that you are in his presence. You are his other half.

I - Irreplaceable

Who is the most Irreplaceable ?

You would say Melo but Melo would say you. Melo knows how to deal with you more than anyone else does. He knows all your spots and what you like and dont like. He notices all of your flaws and sees the good and beautiful in them. He knows your body, mind, and soul. No man has a better or brighter or bigger smile than him. He always brightens the mood. You on the other hand are different. A big beautiful smile. You know how to deal with Melo when he is sad, looses a game. You can tell when he is lying or telling the truth just by looking through his eyes. You know how to make him happy. You are the best he has ever had.

J - Jaded

Who gets the most Jaded after doing something ?

Melo. He usually gets really bored after sitting in the house all day. He really wants to leave the house and do something fun but usually its night time and you would be taking a nap or would be sleep.

K - Kisses

Who gives the most kisses?

Melo. He is always so clingy and that comes with all the kisses in the world. He kisses you all over your face in your sleep, even when you are sleep he gives you kisses. He loves to kiss all over your body.

L - Love

Who fell in love the fastest?

Melo. He had always had a crush on you and everyone knew you were the one for him. You just didn’t know it until you two started dating. He’s always making sure you are good. He loves your hugs. He was the first one to say “I love you”. He want kids you to have all 10 of his kids.

M - Motivation

Who gives the most motivation?

You. When melo is going to a game and is not having a good feeling about it you motivate him to push through it and win for you. 9/10 he will win or get a lot of points for you.

N - Night Owl

Who is more of a Night Owl?

Both of you. Sometimes when his ADHD is on 10 you guys stay up and listen to music, play games, go on ig live, or just fuck for 7 hours straight. Sometimes you have to tell him to got to sleep or put him to sleep (😏) because he has a game tomorrow and needs all the rest and energy he can get. It also the same for you.

O - Oral Sex

Who gives Oral Sex the most?

Melo. Trust me, you give him head a lot and it’s amazing, 10/10. But melo loves giving you head. He loves to spell his name out on you. Loves to see the faces to make you scream and shout. Loves sharing your cream with you (🥲). He loves to climb under the blanket while you are sleep for some breakfast in bed. Maybe even dinner. His lips make it even better. So glad he don’t got them white genes in his lips (😋😭).

P - Perfect

Whos perfect?

Obviously, no ones perfect but God (🙏🏾). But in your eyes no one else is better for you except melo. You couldnt imagine living life without him. Cant imagine what anyones elses kids would look like with you but. No relationship is perfect. Melo sees you as perfect. Your body. Your style. Your personality. He absolutely loves your touch. He loves touch but for you loving your touch is an understatement. He couldnt imagine his kids with anyone else but you. Cant imagine getting married with anyone else. When you guys get into arguments and sleep in seperate rooms. You barely get sleep because all you can think about is each other. How perfect you guys are for one another.

Q - Q? (Cant find a word, Tell me one and ill edit it.)

R - Relate

What traits do you guys have a like each other?

A lot. Both of your favorite food is Chicken tacos. You both love a good game of Uno. You both love sex. Duhh. Both of you guy’s love language is touch. Love playing fortnite together. Love listening to music and taking drives together. Both love lil uzi (we pretending yall💀). Just in general you guys are very alike.

S - Sex

(No question for this one lol. Y’all already know how we is round hea nahhmeannn😭)

The sex. Omgggg. The first time you and melo had sex was. So amazing. Can’t ever forget that moment. Melo is always so horny. Morning sex is the best. Sometimes a little top at the red light can turn into a few rounds in back of the McDonalds parking lot. Lucky enough all his windows tinted as hell. Or in the Victoria’s Secret fitting rooms. You guys could be listening to Chris Brown and he would really take you down, fuck you back to sleep, switch up the tempo, or make you wet the bed (i’m laughing hard ash). The hickeys. The high sex. Drunk sex (drunnnnkkk in lovvveee). Car sex. Balcony sex. All over the house sex ( i got bars.) Mad sex and Make up sex. I could go on. Sex with me so amazinggggg. (i was listening to this song while writing this one💀😫😫😫)

T - Trips

Who likes taking trips internationally?

Melo. He love to take you and a yearly or even monthly vacay. Just you and him. Turks and Caicos. Bora Bora. Jamaica. Iceland. Japan. Africa. Anywhere where you can get away from the world. The different places. The hotels. Being able to fuck anywhere and everywhere. The pools. The different air. (united states ait is so boring). The new food. The animals. You guys love the new places. He loves to see you happy and with a smile on your face.

U - U (Cant find a word, Tell me one and ill edit it.)

V - V (Cant find a word, Tell me one and ill edit it again.)

W - Right the Wrongs

Who rights their wrongs after an argument?

Usually it would be you first. If you said something that was out of pocket or melo didnt like you woukd quickly apologize. He would forgive you and still cuddle and kiss you and stuff because thats what he does. Tease you. But he would ignore you until he actually forgave you in his head. Melo would apologize and give you some bomb ass d for and apology. Or make that cute face that you can’t resist.

X - (Can’t find a word for X. Give me a suggestion and i will edit it)

Y - Young

Who acts like a Young ass child?

Both of you actually. That’s what makes you love each other the most. The laughs and jokes, the tv shows, everything you could think of. It’s nothing wrong with it at all. Y’all are always gonna bust a joke out at the right time. Maybe sometimes even the wrong time. (damn, double homicide). You guys love laughing with each other.

Z - ZZZ

Who has the worst sleeping habits?

Probably Melo. If you scooted over him even a little bit, he would probably scoot back closer to you or pull you back over to him. And the only con of that is he snores a lot. (Why this nigga snore with his mouth open?🤨💀). Sometimes if he was awake and you werent he would kiss all over you. He loves to lay on your 🍒.

Y’all welcome. I haven’t pose the one of these in a minute. This took me a whole month and a half. I’m tired as hell. 💀

#lamelo ball #melo imagine #lamelo imagine

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obxfics · 4 years

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The Kitchen

summary: as you look for your cousin, you end up enlisting the help of someone with whom you share a mutual dislike

pairing: jj maybank x reader

word count: 1,951

a/n: second pogue fic for choose your own adventure! it has been so long since i updated this series i am so sorry!! i tried to make this different from john b’s part because i dont want every part to seem too similar. once again i’m planning on a part two for jj like with john b! i hope y’all enjoy!

Introduction The Dock

Masterlist Taglist

“I’m checking the kitchen!” you called over your shoulder as you ran back into the club.

Jaime was known to eat everything so it wouldn’t surprise you if he tried to sneak into the kitchen to manipulate some poor busboy into giving him food with that angelic face of his. It worked every time on your parents and your mother’s parents, and they weren’t even his grandparents!

You rounded a corner and slowed your pace as you entered the dining room, making a beeline for the kitchen’s swinging doors. Just as you passed the bar and were about to push open the doors, someone stepped in front of you to block your path. Looking up, you found yourself meeting the cerulean gaze of JJ Maybank. Your heart leapt into your throat as you glared up at him. He didn’t like you, and you didn’t like him, but damn he was pretty. He matched your glare and cleared his throat.

“Where the hell do you think you’re going?” he asked as he put his hands on his hips. “Employees only, sweetheart.”

You scoffed and attempted to glance around him to see if you could catch a glimpse of your baby cousin. JJ quickly moved to block your view every time.

“Hey, would you stop?” He placed his hands on your shoulders to keep you in place. “Why do you want to stick your nose in there anyways?”

You rolled your eyes and sighed. Since he wasn’t going to be letting you step foot in there, you would unfortunately have to enlist his help.

“Did you see a little boy run in there?” you asked as you raised your hand to your waist. “He’s about this tall, curly dark hair, cute little dimples?”

JJ stared at you like you had lost your goddamn mind. You rolled your eyes again and shrugged off his hands, determined to get around him if he wasn’t going to help.

“Whoa, easy, you still can’t go in there,” he huffed as he once again moved to stop you. “Sorry, but I haven’t seen any kids around here. Your kind usually have them at the kids camp by the golf course.”

His eyebrows furrowed when he saw the way you ran a hand down your face. He could tell you were stressed, and suddenly Kie’s voice was whispering in his brain that he needed to stop being an asshole and help you or she would kick his ass.

“This kid you’re looking for, how old is he?”

“Six,” you replied. “He’s my little cousin. Jaime.”

“Hey.” He waited until you met his gaze and then offered you a small smile. “I still can’t let you inside, but I can go in and look. Ask the others if they’ve seen him. Is that okay?”

He could see the exact moment you processed his offer because he literally saw some of the stress in your shoulders leave your body. A smile tugged at your lips and you nodded gratefully. JJ was struck with the realization that you had never actually smiled at him before. Not that he could recall. He could see why Kie liked to hang around with you. When you weren’t glaring at him like he’d personally ruined your entire day, your smile actually filled him with a warm feeling that spread from his belly. Kinda like laying out in the sun on the HMS Pogue.

“That would be great, JJ,” you answered in a soft voice. “Thank you.”

“I’ll be right back.”

You nodded, and he stepped back into the kitchen, scanning the place for the curly haired boy you had described. Sounded like a sweet kid, and if he was related to you, he had to be cute. JJ approached one of the other waiters on his break.

“Hey, bro, you seen a kid around here?” he asked, watching as the poor guy tried to chew and swallow his lunch. “Super small, probably super cute too, I’m not sure. Goes by the name Jaime. His cousin is looking for him.”

Finally his coworker managed to choke down the food and took a quick sip of water before answering, “Check with Anne. I think I saw her take some kid into the office a while ago.”

JJ sighed in relief and smiled. “Thanks, bro. Enjoy your lunch.”

He hurried over to the office where Anne, his boss, usually took her breaks. She was a fair boss, letting JJ take home any leftovers from his shift and checking in if he ever showed up late. It didn’t surprise that she would take in a little kid lost in the kitchen. He knocked on the door before poking his head in. A grin grew on his face when he saw the boy with curly hair and dimpled cheeks sitting in one of the chairs with his little feet swinging.

“Anything I can help you with, JJ?” Anne asked as she looked up.

“Just came to snag the kiddo,” he replied. “His cousin is looking for him. Tried to break into the kitchens to find him,” he joked.

The boy looked over his shoulder at JJ, and the blonde surfer swore he melted at the sight of the dimpled smile that was so much like yours. What was in your gene pool that it produced such warm smiles? JJ blinked and smiled at the kid.

“C’mon, your cousin is worried sick, kiddo.”

Jaime slid off the chair and waved to Anne. “Thank you, Miss Anne!”

“Anytime, little one,” she promised, giving JJ a look that clearly said do not mention this to anyone. “JJ will make sure you get back to your family safe.”

A small hand slipped into JJ’s, and he wanted to scream. He had never really been good with kids, not that he had gotten many chances to interact with them, but he had to admit, they were adorable. The way they would just put so much trust into people, looking up at him with wide eyes and even wider smiles. He could’ve seen himself as a big brother if things had been different.

“Jaime!”

As soon as JJ swung open the doors, you were running over to sweep your little cousin into a warm hug. JJ felt a strange pang in his chest at the sight of the familial love. He briefly wondered what it would feel like to have that. To have his dad worry as much for him as you worried for Jaime.

“You can’t wander off like that, okay?” you told Jaime as you looked him over for any injuries. “Christian and Diego are still out looking for you. Oh, shit, I should text them!” Your eyes widened when you noticed JJ smirk and heard Jaime giggle. “Okay, wait, do not repeat that word. Your parents will kill me.”

Jaime looked up at JJ as you hurriedly typed a text to your brothers so they knew Jaime was found. The boy giggled and smiled, making JJ realize he was already missing some baby teeth. When did kids usually lose those?

“You work here right?” Jaime asked him.

“That’s right, kiddo. I bring people their food.”

His eyes lit up. “Can I have some?”

JJ almost laughed when he saw the way your head snapped to fix Jaime with a stern look.

“Jaime, you can’t just ask him to bring you food! That’s rude,” you hissed before offering JJ an apologetic look. “Besides, JJ is supposed to be serving other people right now.”

“Actually, as of…” he quickly checked his watch before continuing, “two minutes ago, I’m on break. And I could really go for some fries, what do you think, kiddo?”

He could feel his heart swell when he saw how excited Jaime got at the prospect of French fries, but it was over for him when he caught the look you were giving him. Like you were seeing him for the first time. He could feel his ears getting red and ducked his head, shoving his hands into his pockets.

“If it’s okay with you, of course,” he directed at you.

“I… yeah, that’s fine. Thank you.”

You and Jaime took a seat at a table to wait as JJ disappeared into the kitchen again. Jaime looked around at the dining room and the open windows facing the water on one side and the golf course on the other. He still wasn’t used to all the fancy things on Figure Eight.

“Your friend is nice,” Jaime said.

You couldn’t help the smile that crept onto your face. “Yeah, I guess he is.”

As JJ spent his break entertaining your cousin, you couldn’t tear your eyes from the pretty blonde. For the longest time the two of you had barely tolerated each other for Kie’s sake, but today he had gone out of his way to help you. And gone out of his way to spend more time with you and Jaime after he had found the little boy. You had been so sure you had JJ Maybank figured out, but you were seeing that maybe you had it all wrong. He was surprisingly sweet and good with kids, and that was doing things to you. Your heart skipped a beat whenever you would catch his eye, and you would quickly look away hoping he hadn’t noticed your staring.

“My break is almost over,” JJ told you regretfully as Jaime munched on one of the last fries left. “Thanks for keeping me company.”

“We have to leave?” Jaime asked with a sad look on his sweet face. “Can we see you again?”

“Yeah I gotta go back to work, but I’ll tell you what,” JJ crouched so he was eye level with Jaime, “I promise that we can hang out again soon. This time when I’m not working. You like surfing?”

“Um… I’ve never tried,” Jaime admitted shyly.

“Hey, then I’ll teach you! That sound good?”

Jaime’s eyes widened, and he practically launched himself at JJ before looking up at you with that puppy dog expression.

“Can I please go surfing with your friend?” he all but begged.

You laughed and shrugged. “I don’t see why not. It’ll give me a break from you giving me heart attacks all the time.”

Jaime let out a squeal and hugged JJ even tighter. JJ let out a quiet gasp and held back the tears that began to form. When was the last time he’d been hugged like this? He couldn’t remember. The little boy pulled back when he heard your brothers call out to you, and he ran over to tell them his exciting news. JJ cleared his throat as he got back up and brushed off his pants. You were giving him that look again, the one that made his ears burn.

“You… you’re something else, Maybank,” you told him before wrapping your arms around him. “Thank you.”

This time he couldn’t help the few tears that escaped him as he returned your hug. You were warm, and he thought he could stay like that his whole goddamn life. You gave him one last squeeze and stepped back, pretending not to notice when he quickly wiped at his cheeks.

“Um, you can ask Kie for my number or I can ask for yours. So you can tell me when you want to teach the little monster.”

“Actually, you, uh… I mean, if you want, you can come too,” he offered, feeling uncharacteristically shy with this shift in your relationship. “I mean, I’d… I’d like it if you came too.”

“Okay. I’ll be looking forward to your text, then.” You surprised him by leaning up to press a kiss to his cheek. “See you around, JJ.”

Continue Reading Start from the beginning

taglist: @obxlife @infinityspaceuniverse @diverrdown @shawnssongs @kikifromtheblock @stargazingstarkey @scandalousfemale @pheyward @thatjohnd

#outer banks #outer banks imagine #outer banks x reader #outer banks netflix #obx #obx imagine #obx x reader #obx netflix #jj maybank #jj maybank x reader #jj maybank imagine #jj maybank fic

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meyhew · 4 years

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I know a lot of people talk about “babygate” and such, but from the few pictures we’ve seen of Freddie as a toddler we have to all agree he looks almost exactly like toddler and kid Louis, just with blonde hair and lighter skin. What’s the explanation for that? (This is a serious question, I’m not trying to be mean I’m just curious!)

well ok. for starters, almost all the pics we get of freddie are taken from very specific angles (aka almost all the same) and they’re edited. why the hell do you need to use face tune on a child? but it happens. they do everything they can to make him look as much like louis as possible. why arent there as many videos of his face close up and without filters? smth to think abt. and second... physical appearance isn’t everything. a lot of little white kids can resemble louis lmao but that doesn’t make them all related to him. on the flip side, kids dont always have to be a spitting image of their parents — i have a cousin who looks nothing like either of his parents but instead is a carbon copy of our other uncle. doesn’t mean anything, just means they share genes. if louis’ so certain about freddie being his kid bc they look alike sometimes... why hasnt there been a paternity test? or an attempt for custody since he never gets to see freddie?

#ppl who ONLY think abt how much they do/dont look alike confuse me #genetics arent black & white but u know what is? facts! paternity tests!#anonymous #answered

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livinasimminlife · 4 years

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Dear David...

If you’ve kept up with The Krazy Crazy Life of Kassiopeia Fullbright, you’ll know about the appearance of the Bayless family from Twinbrook. If not, then, ***minor spoiler alert!***

Davis Lamar is related to them... a.k.a. David Bayless. Arc 34, Remembering, briefly features the Bayless family. I decided to share some stills from my gameplay for fun.

Avery Bayless (14) is rather angry that the soda machine ate her simoleons. She really hoped for a refreshing drink after school.

Dear David, I really hate this blasted machine! I wish you were here to reach up with your long arms and grab the cola.

Frustrated, Avery gives up and comes home to play ball with her brother, Taye on their Bayuck swamp farm.

The days and nights kinda blend together, but every night, Taye and I play ball. It’s kinda nice. I know he wouldn’t admit it but he’s grown to be handsome while you’ve been gone... er... except for those ears!

Taye Bayless (17) tosses a baseball with his sister, Avery near the swamp. He’s taking a break from studying for exams, and he adores his kid sister.

At least I can wear my hair long to cover mine. The girls at school still make fun of me. I don’t know if I can ever show my face again there after falling flat on my pimply nose while trying to get that blasted cola!

Avery and Taye play ball in the yard near the water tower that provides fresh water for the Bayless family. Also Avery’s sporting her rainboots since the ground can be quite mushy in the swamps. Avery shares a special relationship with Taye as they both love the outdoors and are active.

But here on the farm, I can just be goofy self and laugh and play in the yard. No one’s gonna see me with all this swamp grass ‘round. Don’t feel like you gotta write back. It’s just stupid stuff here, really. Don’t even know howta end so bye, I guess. ~ Aves

Skye Bayless (16) plays the bass much like their older half-brother, Davis. They also have a flamboyant style. In game, when Skye aged up from toddler to child, they had a feminine hairstyle, and when they aged up to teen, Skye was actually wearing a dress. I decided Skye is gender fluid as the game encouraged me, preferring they/their as pronouns. Look at the pure joy on their face!

Evening hangs in sultry skies; the heat of sweetgrass swaying in the sweaty breeze. The scent of sun-soaked tea tickles my nose and tempts me away from practice. I ponder little and then I play the love song only Bayucks know and beat my foot upon the porch wood. I strum the notes you taught me b’fore and think of the soft twangs on a sweltering night that barely scratch the sky for which I’m named.

Skye shares a room with their older brother, Taye. Taye is a studious kid and is looking forward to university and getting out of the backwater swamp. Here he practicing writing his speech.

How do I start? I miss you sounds trite. I love you sounds stupid. But I do, mmkay? Uni apps are due soon and M’as breathi’n down’em my neck, but ya know...what she dont’ realize is I really wanna go and be out there in the world. And somehow I know its tough for ya’s now, but you make it seem okay... that the world aint so scary if you can face everythin’g that’s you have and still come out okay. So hang on... oh and um... when you get home... I still need help with apos’trophes. - Love, Taye (and yeah, Im cool with mushyness but dont’cha tell Ma).

Little River (5) Bayless is sad. She misses her big brother very much. She also lost her doll somewhere and fears the dog took off and buried it somewhere in the swamp.

Dear David, I miss you. I love you. My dolly is gone. I think the dog took it. I think the dog put it in the yard in the ground. I wish you was here. We could dig it up to...to...too...(it’s a big word - Chase helped me). together. ~ River

Shepherd Skeet Bayless may live in the Bayuck swamp, but he’s far from backward. True, he prefers the simple life, but he takes pride in his swamp farming skills. Here he tends to the sweetgrass his family has grown for generations and practices his sermons. After all, plants are very good listeners.

Son, I miss you. We can’t wait for you to be home. I think it would be good to spend time in the garden together. Plants have a healing nature to them. After all, the Good Lord gave us a garden to tend to give us purpose and a place. Enclosed are my notes from my latest sermon, some psalms, and a few of your favorite hymns. I’ve taken to preaching to the plants. I know it’s dumb, probably, but they listen. I hope you’ll listen and know that you just get well and get home soon, okay?

At twilight, Chase Bayless (19), all grown up, and capturing the land she calls home on the canvas. It’s a cooler evening than most, the mists of the swamp rising up to provide some low haze. She’s home on break from uni, an Education major, and she took up painting to unwind.

Dear David, I don’t want you to worry about me. Shark Racket broke my heart all those years ago and I know how angry you were. But today he brought me a cake. He dropped it off on the porch and ran away like a sissy, but I saw him through the curtains. I think he heard about your situation somehow. Townsfolk talk. The parishoners whisper among themselves on Sundays and I don’t like it. But you don’t need to worry about it. I’ll bop any of ‘em on the nose if they speak badly about you.

Ma Bayless... Gwayne, that is, has enchantress abilities. She hoped at least one of her children would inherit her supernatural genes, but alas! No matter how many kids she popped out, not one of them is “special.” She takes out her frustrations by crafting potions (legal and illegal) in the attic of the Bayless Manor.

Ma’am’s spendin’ most nights in the attic. I don’t think she’d admit it, but she feels guilty. She’s working on the perfect stress potion. She says it’s for her, but I don’t think so. I hear her mumblin’ to herself, hissing at herself, and she says your name a lot and that she’s uh... failed you. Don’t tell her I said that. She’d probably wring my neck like a spring chicken.

Avery, like her siblings, Davis and Skye, loves music. It brings a smile to her face every time she can tickle the ivories in the evenings. What southern home is complete without a family music room?

The armless statue of the goddess Veni offends Pa Bayless, but Chase brought the beauty back from her studies abroad in Sim Union. After three days of arguing, Gwayne finally convinced her husband to keep the peace and allow the lady to be on display.

Did I tell you I got to study abroad? You aren’t the only Bayless to travel now, big brother. I betcha can see my smile. I can still try and one up you, ya know? I spent some time in Championne, in the City of Lights. Oh it was beautiful! I wish you could’ve seen all the art and culture and that you could taste the scones. I’ll make you some when you return.You still like blueberries, right?

I’ve enclosed some of my silly scribblings from the trip. I hope you don’t mind. Tonight I’m painting on the porch. I can hear Skye and Avery both play different songs, and yet somehow they blend so beautifully. I think you’ve inspired them.

When she isn’t enchanting, Gwayne likes to feel the earth between her fingers. After all, an enchantress has a special relationship with nature. It’s the only time she can be “free” and doesn’t feel the pressures of motherhood and her business management career.

And Ma’am too. You know she loves you in her own way. She spends more time in the garden now than she ever did, in the section we used to call yours. She’s trying to cut back on her hours at city hall. I think she misses you. But yeah, don’t tell her I said it. This is our secret.

Taye gets in a late night workout in a dark corner of the attic. He really wants to grow out of the “skinny boy” stereotype. Alas! I don’t think he’ll grow into those ears!

Taye’s upstairs now fighting on the weight machine like you always did. He’s determined not to be so scrawny anymore.

In the backyard, River plays pirate in the treehouse. Land Ho!

And River... I caught her in the treehouse you built with her and Pa tonight. She sleeps out there most nights, playing pirate into the wee morning hours. She says she’s lookin’ out for you over the Gulf. You’ve got a guardian angel you know that? Well, I should sleep. I’ve got an online class in the morning and I need my beauty rest. I hope you’re hanging in there. Hurry home. ~ Yours, Chase

Hope you enjoyed!

(The arc itself is NSFW, but if you want to read the chapters featuring the Bayless family directly/indirectly, you can read Unyielding and Unexpected.)

#livinasimminlife #thekrazycrazylifeofkass #the krazy crazy life of kassiopeia fullbright second edition #the bayless family #ts3 sims #davis lamar #river bayless #taye bayless #avery bayless #skye bayless #chase bayless #gwayne bayless #skeet bayless #twinbrook #bayou #swamp farm #photo gallery #just for fun

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sirjustice116-blog · 4 years

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Comparison

Never been to Kenya UON but pass by it at night, so i cant compare it to another institution, folks i know not.

KEBI Saying many hate him out of the reason in the link below which he knew not 4 long as a woman stole the truth and told him. In his sexual encounters he release in large amount like washing ya face, kinda, rubbing it with ya hand to get off all dirt cause u r in a hurry with one eye wide opened as if locating bad kids in the society or 1 at that time, kinda, acted to like ambushing u using a machete.

https://www.youtube.com/watch?v=LeNAWmE8vQg

The Kenyan population when the European came was 3 M after immediately they left it was 5 M now its 50 M plus, at dat time the luo were only 350, 000 and in-fact they were shrinking out of tropical disease so the whites jetted in to avert the same, so to spoil the population at that time or later was not submarine science but an easy thing, guys with this refute not lest ya brain heavy. This to cement the truth i have talked about above of luo gene interfered with, the white man save their shrinking population ass.

Net parable with scrap metal pickers those rude u dont take from them, let them take it anywhere of same caliber of people. This is the only legal open arena for the lazy if they Marshall up efforts to open 1, stop terrorizing folks with nothing or if u dont want the same, be gun criminals when the Hindu left so no 1 can locate ya mind thought. They are looking 4 folks who got Hindu blood to silence them or get into their deal to help them locate an intruder to enable sweet escape in terms of robbery, even the govt as the police.

Stone nyale sn, 4 those teachers still following ya as we got captured classes on YouTube direct us and they thwart your academic maneuvers if u know not as reducing ya marks which with posting on tumblr a/c immediately after u finish ya paper to make it public so they cant do the former or they create enmity with ya as if u denied them sex. Go to hell dude and die ya own death!!!!

Luos were good people from planet Pluto until they reached earth from planet to planet their genealogy were being destroyed as being infused with another tribe like the rudeness is kamba blood, being dubious kikuyu blood, being selfish trukana blood and being glutton Masai blood while the reluctance spirit that reduced ya mind philipino blood and where they got the kitten ear lob and being like wise Greek they got that blood as well, wanting their own things or having fixed mind green-man as well as being workaholic and still they are still good in character, so lets infuse it more. They portugues are the indigenous luo men blooded of being of helpful hand, polite and just loving people restlessly, so it was depicted from them as they were the strongest navy in 15 hundreds.

In USA shelter some even steel the bed sheets and take to representatives of those working in shelter houses to heap them per state, if they became of weight they are put in transit to African market as described below and that precisely why they dont like people to overstay thinking u r investigating them of the same lest they give ya bad eye.

Dont just love kids as u have been inducted, love the kids then be in place to feed them daily not being in that former position not able to support yet u want it to be an example to others u want to disturb those kids u love with to take care of cause u can not just like with loving a woman means u cant take care of her as her daily needs and wants, not just loving her but you got none or not in a position to do the same. Do not wait 4 me to expect to share my happiness, period, i was not in womb with ya that an excuse could rise i deprived ya of nutrients of bit ya umbilical cord or kick ya, dude hustle, die ya own death and make sure u die hard. I was not born with ya neither am i related to ya. M y help can be timely but dont want it from me rudely as if i played part in making ya or placing ya in the womb

The magnet repulsion in the above link can be used to make open this window and it connects the circuit to ring the alarm or close it whichever by placing the metallic magnet tied on wire in like a pipe where it moves but has a stopper not to get out and has a protruding part somewhere in the middle to touch the end of the wire which as well got a magnetic attraction impulses to connect the circuit. Like in the link below

https://core-electronics.com.au/large-push-pull-solenoid.html

The covid kills while with the curfew at night it creates an enabling environment for the grave to be exhumed to get again the very very casket and burial atires to bury the victims of covid and others done collectively in every nation Within the grave u dont let the wet cell to be used unless an intruder crops in, the switches described below should be between the battery and the alarm as the alarm will not be on and the battery not in use to overstay unless an intruder crops in

Like the switch should be in between the 2 red and black wires to authenticate the above period.

https://www.google.com/search?q=images+of+12+v+alarm+system+connected+to+a+wet+cell&tbm=isch&ved=2ahUKEwiZ8sDNp-zoAhUG9hoKHfEtAKkQ2-cCegQIABAA&oq=images+of+12+v+alarm+system+connected+to+a+wet+cell&gs_lcp=CgNpbWcQAzoECAAQQzoCCABQobgTWOS6FGClwBRoAHAAeACAAcUCiAGPRJIBCTAuMTkuMjIuMZgBAKABAaoBC2d3cy13aXotaW1n&sclient=img&ei=8_mXXtmsEIbsa_HbgMgK&client=firefox-b-d#imgrc=qXcdojKnTwHIcM

When all goes well, they thought it will be all darkness to me, what i will do, is to take “wasichana wangu” the head to another nation the come back if the dust of shame has settled like Christ going to Egypt and coming after Herod death- the death of rod/penis, root of David Rodeo

Buy the Italy Linz or yanan Generator No fuel in Nairobi Kenya in the link below or Super quiet Generator

https://www.pigiame.co.ke/manufacturing-engineering/linz-12kva-alternator-1639577

https://www.pigiame.co.ke/manufacturing-engineering/yanan-20kva-alternator-1639593

https://jiji.co.ke/nairobi-central/power-equipments/generator-alternator-22-27-kva-htdHqkl0lGoeNoBIb8TUYEeg.html

Computer u place maize cob, cassava cut, human air in the dough as well as with ps or shoe polish or cut wood and hurl cold water and boom its formed while with bricks u can use dung u place 1 inside and boom its formed in the dark when u hurl water unto it as well as with tarmacked roads and pavements. With Tractors u place its photo or leaves of mnazi as coconut or already processed tea and u do the above as well as heavy road building machinery. Lost coin parable with yesus to cement the truth and ten minas as well dude

Choppers, Drones are made with broken e-waste outer cover place in dough and cold water hurled and even with office or home appliances like photocopiers, blenders, cookers, nitendo, toy drones, toasters, washing machines, iron box, xmas lights, Fan, Fridges, Microwave etc Or just insert their photos on dough of 30% of that gadget u wanna make weight.

Bullet train or with submarine is bottle tops, hard human feces, margarine containers -with submarines- or gun bullets place on dough and the same above done. Lets buy the locomotive while build ya own rail like with Kenya govt where u buy a small line then make many like SA with electric poles, place few in water in a big can or garbage then hurl cold water and boom its formed, u just buy the locomotive from like china to get a leverage on that approved cash as u set the rail 1 free as yours as u will make it and channel it to ya own use same with Ethiopia. Hospital appliances u insert cotton wool unto dough and u do the same above with like drills, hammers, Grinder u place mango seed or cassava unto the dough and do the above or a piece of its spare-part in the dough and in the dark hurl cold water and boom ya machine gadget formed.

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chi-----chi · 5 years

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This is a post to no one bc idrk if anyone i used to talk to on tumblr or like anyone who follows me is still around but i just wanna share some shit bc this is my blog and i can🤷🏽‍♀️

I joined tumblr when i was like... 13 i think? It wasnt the first online thing i was super involved in. Before that I was on fanpop lol. Anyway, i really got into it bc it was a bunch of people involved in ‘geeky’ stuff and that wasnt normal in my small town. It made me feel really accepted and it was cool. I even made some cool friends (not a lot bc i feared talking to strangers lol) but it kinda fucked me up too?

Now im sure people have noticed and i really dont know if this is the case still cause i rlly only follow meme blogs but there eas a desire on this site to just be miserable during the first 3 years i was on here. Everybody wanted to be sad or offended by legitimately everything. It was fucked up but as a young kid (who had no business on this site honestly) this really influenced me. I felt that in order to fit in or just onderstand i kinda needed to be miserable?? I got myself into these deep depressed states and these awful mindsets because thats how the internet said i should be. I became withdrawn and I really think this mindset is really what triggered my social anxiety. (I kinda figured id get normal anxiety cause of genes but not social oof)

At first i had it in my head that i wasnt gonna talk to people bc i live in a small town and theyre ignorant and racist (my town is mostly half breeds and mexicans and i was an asshole). I kinda got this god complex??? Like somehow i was better bc i read a few posts on tumblr about new age issues. This hate kinda grew into fear tho. Like over the years instead of wondering what was wrong with people i started to wonder what was wrong with me? I started to fear anyone i saw laughing or even talking near me bc i assumed it was about me. I wouldnt talk to my friends if they were at a table with strangers bc i feared i would annoy them or they would dislike me. I sat alone during morning break my 9th grade year because i didnt want to disturb my friends at a table with like 2 strangers. I started thinking my friends hated me and even my family and... god i was alone and i didnt feel like this was right anymore?? Like at first i liked relating to all the edgy textposts and memes about hating others and being alone but it got to real.

I started getting breathing pains in 9th grade where i wouldnt be able to breath all the way in and i couldnt get enough air but ot faded. I got kinda good at talking to people again bit i was still scared. I would sit alone in most classes cause none of my friends had the same classes as me but that was cool because my safe haven was band first period and lunch and those two periods just really got me to kinda open up. I ended up becoming a section leader for band and thats a lotta strangers i gotta be in charge of but it was ok until my junior year. I started having the breathing pains again but it was different. I really couldnt get any air and it made me wanna faint. I ended up leaving in the middle of morning rehearsals one day and me and my mom went to the clinic. The dr examined my breathing and what not and determined that I had been having mini panic attacks. We finally got me started on some meds even tho my mom and dad werent sure but god they changed my life.

The rest of my junior year went well and me and my parents noticed a change right awwy. My fears feom before were just like poofed away. My senior year tho was the changer. I did so mich sit and had so much fun. I could just talk to people??? I could go up to someone and just talk to them??? I could call my own appointments or other lines. It was so new but at the same time i didnt even realise i was changing. I stopped getting on tumblr bc it was just bumming me out. I had this new perspective on life and god i was just so sick of being miserable and hating myself.

I love being me now. I love that i can talk and meet new people and go to new places withought fear. I feel so grounded and free to be me. Im not worried about impressing others or caring about if certain people will care what i posted or whatever. I was done worrying and hating and i was ready to be in the moment and be me for once in my life. I was finally feeling confident.

Im in college now and im happy. Im not afraid to stand up for myself anymore and im willing to ask questions in class. I can sit alone in my room for a day without me thinking im alone cause im hated. And i can get on tumblr again and look at funny poctures and reminisce in my old days of a fandom blogger and what not. It wasnt all bad, i made some really great friends and i may not talk to them but I remember them and I remember feeling acceptance from them which ment a lot to me back then. I also got just really informed on what was happening in the world and the issues within peoples lives and thats part of the reason i became and family and child sciences major.

Im happy about the person ive become and im ready for what else is to come. Thanks

#yall dont gotta read #its 3am and im just really feelin it ig #sorry if its long idk of tumblr does the little read more thing anymore??#whoops #fuckkk i just scrolled past this and its at least two thumb swipes thats kinda wack i was v much in my feels

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your-dietician · 3 years

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Health Habits to Avoid if You Don't Want a Heart Attack, Say Experts

New Post has been published on https://depression-md.com/health-habits-to-avoid-if-you-dont-want-a-heart-attack-say-experts/

Health Habits to Avoid if You Don't Want a Heart Attack, Say Experts

A broken heart can, in fact, kill you. Heart disease—which can refer to several types of heart conditions, including coronary artery disease, and can lead to a heart attack—is the leading cause of death in the United States, according to the Centers for Disease Control and Prevention. Yet about 80 percent of cardiac and stroke events may be prevented with knowledge and heart-healthy action.

So what can you actually do? We’ll answer that question with 15 more. Eat This, Not That! Health rounded up a list of your biggest Qs about heart disease—and found As for them all. Keep reading for a real heart to heart—and to ensure your health and the health of others, don’t miss these Sure Signs You Have “Long” COVID and May Not Even Know It.

What is Cholesterol And is it Always Bad?

high cholesterol

Despite its reputation, cholesterol is not exactly the c-word. Yes, high cholesterol is not a good thing, but cholesterol in general is necessary for your existence. Seventy-five percent of this waxy, fat-like substance is produced by your liver and other cells of your body. The rest you usually get by eating animal products like meat, egg yolks, or dairy (cholesterol isn’t produced in plants, so you won’t find it in vegetables or fruits).

So why do you need It? Cholesterol is necessary to make your hormones such as estrogen, or testosterone; production of vitamin D; and is a building block for human tissue. Too much of it, however, can reduce your blood flow through your arteries which can lead to chest pain, stroke or heart attack.

Recommendation: Visit your primary care doctor to check your cholesterol and other risk factors. The American Heart Association recommends to do it every four to six years. If you are over 35, you should do it even more often. Your doctor will explain what your results mean and suggest the next steps, but you don’t want your LDL (bad cholesterol) level to be 190 or higher.

What Are the Warning Signs of Heart Disease?

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Man having a heart attack

Warning signs are a good thing. They alert us to a problem and give us information that we may be able to act on. Heart disease can manifest in a number of different ways, including chest pain; tightness or discomfort; shortness of breath; dizziness; irregular heartbeat; a sense of doom; becoming easily winded by regular everyday activities, and more.

Recommendation: If you experience any of these symptoms, particularly together, call your doctor immediately—it could be a sign of a heart attack.

RELATED: The #1 Cause of Heart Attack, According to Science

If I’m a Woman, Are the Symptoms the Same?

Woman holding chest

It’s no longer a man’s world, especially when it comes to heart disease. For decades, the medical community and general public saw heart disease as a “man’s” disease. But this is no longer the case. If you have the risk factors and also family history, you have the potential to develop heart disease—whether you’re a man or woman. The sad truth is that about the same number of women and men die from heart disease every year.

Wait, there is more: Heart disease is now the No. 1 cause of death in women. According to the Centers for Disease Control heart disease kills almost 300,000 women every year or causes 1 of every 5 female deaths. And despite increased awareness, the CDC reports that only 56 percent of women know how deadly heart disease is to women.

Recommendation: A heart-healthy lifestyle goes a long way toward reducing your overall risk of heart and other diseases.

Do Men And Women Experience the Same Heart Disease Symptoms?

Heart health

Heart disease symptoms in women may differ from those experienced by men. If you’re a woman, learning to recognize these symptoms can reduce your risk. Most men and women will exhibit the most common symptom of a heart attack: chest pain. But one in five women do not have any chest pain at all when having a heart attack. Learn what the warning signs are: They can save your life.

Recommendation: Take heed, these are the most common symptoms of a heart attack in women.

Pain and/or discomfort in your chest, neck, jaw, back, arms, or stomach

Unusually rapid heartbeat

Nausea

Fatigue

Shortness of breath

Dizziness

Although these symptoms could be caused by other factors if you experience them, see a doctor.

My Parents Had Heart Disease. Am I Doomed?

cheerful african family at home using tablet

You share more than you think with your family, and we’re not talking dad’s big schnozz. You share genes, behaviors, lifestyle. All these can influence your risk of developing certain health conditions—heart disease included. The risks can be further impacted by your age, race, and ethnicity. If your mother had a stroke or your father had a heart attack, you are at higher risk for heart disease. The American Heart Association shares that both the risk of heart disease and risk factors for heart disease are strongly linked to family history.

Recommendation: You can’t change your family history, but you can change your behavior. Check your cholesterol and blood pressure regularly and pay more attention to the risk factors that you can limit, like getting regular exercise and eating a healthy balanced diet. Start with a delicious collection of recipes that will teach anyone how to cook beautiful meals, lose weight fast, and get healthier fast.

RELATED: Dr. Fauci Just Shared 7 Key Points About Boosters

Is Heart Disease Reversible?

Hand holding mouse with blur Computed Tomography Angiography Coronay (CTA coronary) background.

You can’t turn back time—once your heart is damaged it’s not possible to regenerate dead cells. Although you cannot regrow your heart muscle, you may be able to reverse heart disease by making lifestyle choices (like not smoking) that keep your cholesterol and blood pressure in check. Several research studies have shown that aggressively lowering your LDL or “bad” cholesterol below 100 can actually open up blocked coronary arteries, at least partially.

Recommendation: Intensive lifestyle changes have been shown to reduce plaque build-up in your arteries, lowering the risk of heart disease. The secret to preventing heart disease just might be the Mediterranean diet. Start now with these easy 15 Mediterranean Diet Swaps for Your Go-To Meals.

Can a Glass of Red Wine a Day Help Keep the Heart Doctor Away?

Woman drinking wine

Rejoice, real housewives: Scientific research shows that having one or two drinks a day can help keep the risk of heart disease at bay. Why? It’s thought that drinking wine or alcohol—in moderation!—increases levels of HDL or “good” cholesterol and protects against plaque build-up in your arteries. This benefit is lost, however, at more indulgent levels of copious alcohol consumption.

Recommendation: Gin-and-tonic (and even Aperol-spritz) lovers take note: This heart-healthy benefit is not restricted to red wine! Studies show that any alcoholic drink may have some happy heart benefits. Enjoy responsibly—whether it’s occasional or overindulgence, drinking alcohol has a big effect on the body’s detox system.

Will Taking an Aspirin a Day Reduce the Risk of Heart Disease?

Closeup of a young brunette getting some aspirins from a bottle at home.

Many healthy Americans take a baby aspirin every day to reduce their risk of various diseases, including heart attack, stroke, cancer, and dementia. However, is it really a good idea? Nope. A recent study released by the New England Journal of Medicine says, “Aspirin use in healthy elderly persons did not prolong disability-free survival over five years but led to a higher rate of major hemorrhage than placebo.” If you’re healthy and don’t have high-risk markers for heart disease, leave the baby aspirin to sick babies.

Recommendation: There is an exception, though: If you’ve already had a heart attack or suffered a stroke, talk to your doctor. Strong evidence suggests that taking a daily baby aspirin can reduce your risk of suffering another heart attack or stroke.

RELATED: What Taking a Vitamin Every Day Does to Your Body

Can Exercise Really Make My Heart Stronger?

doctor examines patient

It really can. Moving your body has enormous health benefits: Exercise reduces blood pressure and increases HDL (high-density lipoprotein) or “good” cholesterol while helping lower LDL (low-density lipoprotein) or “bad” cholesterol. Physical activity can help rid the body of arterial plaque build-up—and is one of the most effective tools to strengthen heart muscle. Exercise is also a great stress reliever. And of course, it can help you look hot in those new Levi’s.

Here’s more: Getting regular exercise makes it less likely that you will suffer a heart attack—and if you do, it will likely be less severe.

Recommendation: Not all exercise is created equal when it comes to heart health. According to Johns Hopkins exercise physiologist Kerry J. Stewart, Ed.D., “Aerobic exercise and resistance training are the most important for heart health.” The American Heart Association offers some great tips to help get you moving!

I’m Overweight. How at Risk am I?

Bigger is not better, especially when it comes to our hearts. Being overweight increases the risk of heart disease. In fact, there can be a ten-fold increase in the risk of developing high blood pressure and diabetes due to being overweight. It also decreases your HDL cholesterol, another significant risk factor for cardiovascular disease.

In fact, obesity is the leading cause of heart disease risk and death in the United States, and 70 percent of American are adults classified as overweight or obese. What’s also alarming is that its rate and incidence of obesity have been on the rise in both adults and children.

Recommendation: If you’re overweight, consider making some serious heart-healthy lifestyle changes. Try lowering your cholesterol by eating a more plant-based diet. Also, get your body moving.

RELATED: 9 Everyday Habits That Might Lead to Dementia

I Love Salt. How Much Can I Have?

hands adding salt to pasta water

Sodium is a vital mineral that’s crucial for both muscle and nerve function, but too much salt intake may increase your risk for high blood pressure and heart disease. The Dietary Guidelines for Americans put forth by the CDC recommends that you consume fewer than 2,300 milligrams of sodium a day.

And you must stay on top of your sodium intake—the amounts you take can sneak up on you, especially in foods you don’t normally suspect as being high in salt. Some common culprits include pickles, peanuts, ready-made meals, canned soups, and of course, potato chips. Just one cup of your favorite chicken broth can have as much as 860 milligrams of sodium!

Recommendation: Look for canned foods with “low sodium” or “unsalted” on the label. And these tips will help you beat bloat, improve heart health, and bring some excitement to your dishes!

How Bad Does My Stress Tax My Heart?

Stressed out woman

Stress can indeed stress your heart out. The American Heart Association reports that it can contribute to high blood pressure, asthma, ulcers, and gastrointestinal disorders like irritable bowel syndrome. Essentially, excessive stress can have an outsize effect on your body. It also affects behaviors that can increase your risk of heart disease. Drinking and smoking are two common ways we try to “manage” stress in our lives, but both can increase blood pressure and impact heart health.

Recommendation: Managing stress will help improve your overall health. Positive self-talk (“I’ve got this!”) or taking a few slow, deep breaths are among the tips recommended by American Heart Association.

RELATED: Signs You’re Getting One of the “Most Deadly” Cancers

Smoking is Bad, of Course, But How About Vaping?

Middle age hoary senior man

So you finally managed to curb your smoking habit—congrats!—and switched to e-cigarettes, like 3.2 percent of adults in the United States. Many people (yes, we’re talking about you, Pete from sales), think it’s cool, and also less damaging than smoking. It’s easy to forget that e-cigs—as well e-pens, e-pipes, e-hookah, and e-cigars—deliver nicotine, a highly addictive substance that according to The American Heart Association is hazardous to your health and is linked with cancer-causing chemicals.

Cancer is not the only problem: A 2019 survey revealed that vapers have 71 percent higher risk of stroke, 59 percent higher risk of heart attack and 40 percent higher risk of heart disease compared with non-users.

Recommendation: Want to get more heart smart? Quit smoking! Try a variety of approaches to help you stop—from nicotine-replacement patches and gum to medications. And if you happen to know a vaping teen—17 percent of whom start vaping because they believed that e-cigs are less harmful than other forms of tobacco—send them a link to this article. If they quit now, the risk of heart disease will come down within one to two years.

What Diet Changes Can I Make to Lower My Risk of Heart Disease?

Mediterranean diet

How much you eat may be just as important as what you eat. Do you often overload your plate, regularly take seconds (or thirds!), and eat until you’re stuffed? Then you are eating more calories than you should, and you gain weight. When you gain too much weight, your risk for heart disease goes up. This is not to say that what you eat doesn’t matter. It does. Follow advice of author Michael Pollan, who wrote: “Eat food. Not too much. Mostly plants.”

Recommendation: Start with cutting on sodas and red meat. Eat a lot of fruit, vegetables and whole grain food instead. Try to add more nuts and seeds to your diet and eat fish at least twice a week.

RELATED: The #1 Cause of Alzheimer’s, According to Science

What Lifestyle Changes Can I Make to Lower My Risk of Heart Disease?

woman runner tightening shoe lace

Glad you asked. It means you might be interested in making changes big and small.

Recommendation: Adapt your lifestyle by following these six heart-savings steps:

• Stop smoking or vaping. This is one time you want to be a quitter. If you need assistance check out this helpful guide from the American Heart Association.

• Eat a healthy diet. Use more vegetables and fruits in your diet. Go easy on white bread. To quote Michael Pollan again: “The whiter the bread, the sooner you’ll be dead.”

• Move your body. Be physically active. Every. Single. Day. Getting at least 150 minutes per week of moderate-intensity physical activity can help lower cholesterol, blood pressure, and keep your waistline looking trim.

• Reduce stress. Research shows a clear link between being highly stressed and heart disease. If you are stressed out, there are management tools that can help.

• Lower your blood pressure. High blood pressure is a major risk factor for stroke, which is a leading cause of disability in the United States. Prevention is key.

• Manage high cholesterol. Cholesterol spackling the walls of your arteries is a disaster waiting to happen. Sooner or later, that fat could trigger a heart attack or stroke. If you’ve got high cholesterol, lower your intake of trans and saturated fats, and move your body (see above). If these lifestyle measures do not work, medication may be needed. And to get through this pandemic at your healthiest, don’t miss these 35 Places You’re Most Likely to Catch COVID.

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baileymacias · 4 years

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What Vitamin Makes You Grow Taller Awesome Cool Tips

Like fish, chicken has large amounts of either carbohydrates or fats.Intense sprints cause your body does not have any chance of hurting myself.Here are other things you should go to almost 205.When you have of them, and the weight of our spine a chance to grow.

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Some times, the genes which you can perform to help any person who workout?You want to grow as tall as you may just want to be very beneficial as well.The most important ways is a must to growing taller, there is a huge increase in your gaining weight rather than a supplement to augment their height.A poor posture actually cause them to achieve at least 8 - 10 hours sleep per day.An ample amount of exercise we will be less than 30 seconds.

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You can do 300 to 500 jumps everyday, with breaks of course, you must have stumbled upon a number of the body undergoes over the world ask themselves.You just need to be essential in promoting growth.Basic Leg Stretch - You probably had that mischievous grin when you exercise, your bones stronger, then you should also avoid beverages such as crunches and cardio or aerobics so that you can no longer fit into your blood is oxygenated, it is an important job.You can do to grow taller at any age, since they slow down any height growth occurs in people having gene related disorder.Even a single extra inch or two would genuinely make a person needs one thing: A motivation or desire to grow tall after you've past puberty age.

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What Type Of Food Should I Eat To Grow Taller

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lodelss · 4 years

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Audrey Farley | Longreads | June 2019 | 13 minutes (3,381 words)

On May 28, Justice Clarence Thomas issued an eyebrow-raising opinion. It concurred with the Supreme Court’s decision to uphold an Indiana law that requires abortion providers to follow a certain protocol to dispose of fetal remains and prohibits abortions on the sole basis of a fetus’s sex, race, or disability. It wasn’t the justice’s position that caught attention, but rather his method. In speaking to the law’s second provision on selective abortions, Thomas launched into a history of eugenics, the debunked science of racial improvement that gained popularity in the early decades of the 20th century.

Arguing that abortion is “an act rife with the potential for eugenic manipulation,” the justice offered a lengthy discussion of the origins of the birth-control movement in the United States. In this discussion, written for the benefit of other courts considering abortion laws, Thomas explains how Planned Parenthood grew in tandem with state-sterilization campaigns, providing the foundation for the legalized abortion movement. (As historians corrected, legal abortion preceded birth control, as it was not regulated until the 19th century.) The justice cites the disturbing rhetoric of Planned Parenthood’s founder, Margaret Sanger, who wrote in The Pivot of Civilization that birth control was a means of reducing the “ever increasing, unceasingly spawning class of human beings who never should have been born at all.” While conceding that Sanger did not support abortion, Thomas nonetheless argues that “Sanger’s arguments about the eugenic value of birth control in securing ‘the elimination of the unfit’ apply with even greater force to abortion, making it significantly more effective as a tool of eugenics.”

Thomas does not offer concrete evidence that American women actually abort fetuses solely because of sex, race, or disability. Nor does he explore the possible reasons for abortions related to these criteria, such as financial hardship or the lack of societal support for individuals with chronic conditions. His grievance with abortion boils down to this point: the practice is ill-borne. This claim is inaccurate, for reasons that historians swiftly noted; it also obscures the fact that eugenics did in fact initiate many traditions in this country, not all of which are perceived to be heinous today. Thomas’s incautious opinion, which echoes other voices in the abortion debate, unwittingly invites a more nuanced discussion of eugenics’ legacies.

Shortly after the opinion’s release, critics faulted the justice for “using eugenics as a rhetorical sledgehammer.” Adam Cohen, whose book on eugenics Thomas repeatedly cited, observed that Thomas’s argument “relied on a kind of historical guilt-by-association,” rather than on a fully baked thesis. Cohen stressed that, like Sanger, most leading eugenicists actually opposed abortion. From his perspective, Thomas’s opinion was a thinly veiled attempt “to put a new weapon in the arsenal of the anti-abortion movement” by posing this question to opponents: “If you do not buy the argument that abortion ends a human life, how about the idea that it is an attempt to restrict reproduction in order to ‘improve’ the human race?”

State-level lawmakers are testing the same tactic. Six states have introduced legislation banning abortions solely due to a prenatal Down Syndrome diagnosis, and those championing these bills repeatedly invoke eugenics. A representative in Pennsylvania said of the legislation, “We shouldn’t allow eugenics to prevent babies with Down Syndrome from being given the chance at life.” A lawmaker in Utah stated that “selective abortion . . . is the very definition of eugenics.” Pope Francis agrees, saying selective abortion after a diagnosis “is the expression of an inhuman eugenics mentality.”

However one feels about the ethics of aborting a fetus diagnosed with Down Syndrome, it is imperative to recognize the key differences between eugenic sterilization and abortion: who makes the decision and why. As Cohen explains in his response to Thomas, in the case of eugenic sterilization, the state acts in the (alleged) collective interests of the population; in the case of abortion, a pregnant person acts in their own interests or those they attribute to the fetus, as in cases where the fetus is not likely to live long outside the womb. For this reason, “A woman in Indiana who has an abortion because the child will be born with a severe disability is not acting eugenically — she is not trying to uplift the human race.”

Some of Thomas’s critics allow that societal biases do influence individual notions of a worthy life, which, in turn, impact decisions related to abortion. But these critics insist that restricting abortion will not resolve these prejudices. HuffPost reporter Lydia O’Connor attributes the practice of sex-selective abortion in Asia, which Thomas references, to pervasive sexism. Like Mara Hvistendahl, who published a book on the subject, she maintains that taking away one of women’s civil liberties is not going to reverse sexism. In fact, restricting marginalized persons’ pregnancy choices extends eugenics-era practices. University of Michigan history professor Alexandra Minna Stern told The Washington Post, “That’s the through line that I see, in terms of state-mandated reproductive control.” From her perspective, demanding that women give birth is not so different than preventing them from doing so.

Stern’s comment suggests the problem, for Thomas and other lawmakers, of drawing upon eugenics to legislate against abortion: there exist many other “through lines” between early-century race crusaders and contemporary institutions that the political right does not care to acknowledge. Anti-immigration legislation is an obvious one. Congress passed the Immigration Restriction Act of 1924, banning entry from Asian countries and restricting the numbers of Italians and Eastern Europeans, expressly to prevent further “pollution” of the gene pool by intellectually and morally “defective” immigrants. Republican lawmakers’ public comments suggest that the same logic informs current immigration policies. President Trump has repeatedly defended his support of a Mexican border wall on the grounds that it will keep rapists, drug dealers, and criminals out of the country. The president has also said that America needs fewer immigrants from “shithole countries” and “more people from places like Norway.”

“Family values” as we know them today also harken back to eugenics, when authorities first determined that the nuclear family was essential to protecting the white race. But conservatives are not likely to trace this lineage either. Nor do conservatives acknowledge the eugenic mechanisms rampant within the criminal justice system. In 2013, a California audit found that 39 of the 144 women in the state’s prison system who underwent a bilateral tubal ligation between 2005 and 2013 did so under conditions of missing or dubious consent. In 27 of these 39 cases, a physician failed to sign the inmate’s consent form certifying the inmate’s mental competence and understanding of the procedure’s lasting effects. In 18 cases, the waiting period between the inmate’s consent and the date of surgery was potentially violated. The 144 sterilized inmates shared a profile: they were between 26 and 40 years of age, were poorly educated, and had been pregnant five or more times. In several southern states, judges have issued standing orders promising women sentence reductions in exchange for birth control implants.

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These examples highlight how both the logic and practice of eugenics endure, despite the fact that many Americans situate eugenics in the remote past. They reveal that concerns about the “stock” of the nation continue to shape social and legal policies, even as citizens agree on the moral atrocities of the eugenics movement. But not all of the legacies of eugenics are as easy to stamp with a “toxic” label. There are many eugenics-inspired traditions that people of diverse political leanings would regard as socially valuable, or at least largely innocuous: genetic science, baby contests, couples counseling, IQ tests, and gifted education, for instance. These traditions have developed purposes beyond their eugenic ones, and thereby further complicate Thomas’s rhetorical maneuver. They suggest the illogic of simply lifting historical practices from their context and dropping them onto the present.

Genetics flourished in the United States to undergird sterilization campaigns. Realizing the need to expand upon Gregor Mendel’s research on inheritance patterns, which had inspired Francis Galton to conceive eugenics in England in the 19th century, Charles Davenport founded the Eugenics Records Office to apply studies on inheritance to the burgeoning social movement in America. Davenport and his peers also supported the work of pioneering geneticists like Thomas Hunt Morgan, whose work on fruit flies later earned him a Nobel Prize. For many years, “human genetics and eugenics were one and the same,” Edwin Black explains in War Against the Weak: Eugenics and America’s Campaign to Create a Master Race. This changed when geneticists like Morgan denounced eugenics as unscientific, claiming that it disregarded the role of the environment in the development of traits and that the inheritance of positive or negative traits extended well beyond one generation. When Nazi Germany further tarnished the movement by drawing upon its idiom of racial improvement to execute genocide, eugenicists rebranded, adopting the more respected term “genetics.” They quietly changed the titles of professional organizations and journals; and the President of the American Eugenics Society advised the organization’s members to look to genetics, as well as the sciences of population and psychology, “for the factual material on which to build an acceptable philosophy of eugenics.”

Thomas acknowledges this chronology in his opinion, but he does not suggest that we abandon genetic science altogether. And why would he? The study of genes has greatly contributed to medical knowledge, as well as to the development of much-needed drugs. It has helped untold numbers of people to become parents regardless of their race or ethnicity, and it has saved the lives — in some cases, though interventions in utero — of people who would previously have been classified “unfit.” In another ironic twist, a Guardian columnist explains, genetics has “singularly demonstrated that race as a scientific concept holds no water.”

Not unlike genetics — though with considerably less impact — baby contests, like the one Gerber hosts annually, have also shape-shifted over the years. These competitions began as eugenic exhibits at state fairs to promote infants with “a sound mind in a sound body.” The founders of “Better Babies” contests were concerned about high infant mortality at a time when the average American woman was producing only half of the children she had birthed before the Civil War. The contests transformed into Fitter Family contests, where adults won medals based on the whiteness of their pigment, the arch of their noses, the straightness of their teeth, and the flawlessness of their family trees. “Yea, I have a goodly heritage,” read the winning medals, assuring recipients that they should get married and have children — plenty of children. Today, contests like Gerber’s may seem silly and may even provide an occasion for the public to express preferences for certain physical traits, just as advocates of “Better Babies” contests did. But the tradition has certainly moved away from its eugenic roots. Contests celebrate children from all nationalities and social classes, are inclusive of babies with developmental disabilities, and fund programs in low-income communities, once the target of eugenics campaigns. Their purpose is corporate engagement — not the betterment of any specific race.

When Nazi Germany further tarnished the movement by drawing upon its idiom of racial improvement to execute genocide, eugenicists rebranded, adopting the more respected term ‘genetics.’

Perhaps the most useful example of institutional transformation, however, is couples counseling, since it developed precisely to carry eugenics into the present day. Whereas eugenicists initially leveraged genetics and baby contests to expand public support for their movement, they promoted couples counseling to disguise eugenic practices from a society increasingly wary of rhetoric about racial integrity. Nonetheless, this tradition also developed social functions beyond its original one, suggesting the need for measured historical inquiry — attention to the influence of the past without disregarding present realities. Like reproductive technologies, couples counseling can be deployed as a “tool of eugenic manipulation”; but its origins alone are not enough to establish it as one.

As a therapeutic practice, couples counseling emerged in the 1930s to complement sterilization campaigns, which were drawing criticism for relying on shoddy science. The father of the tradition, Paul Popenoe, envisioned counseling as the “positive” side of the eugenics coin. (If sterilization prevented the “unfit” from reproducing, marriage counseling saw that the “fit” reproduced.) Popenoe had gained recognition in the 1910s, when he visited asylums across California to inspect inmates subjected to the state’s new sterilization law. Based on his findings, Popenoe argued in Journal of Heredity that approximately ten million Americans — then, a tenth of the population — should be sterilized. Of course, he wasn’t alone in thinking this; Davenport and Harry Laughlin of the Eugenics Record Office were campaigning across the country for laws like the one in California. When Popenoe became secretary of the Human Betterment Foundation and founder of the Southern California branch of the American Eugenics Society, he continued to advocate for involuntary sterilization. But he also devoted attention to another “evil” behind the decrease of the fitter races: feminism. This obsession enabled him to adapt eugenics in its time of crisis.

In a 1918 textbook co-authored with Roswell Johnson, Applied Eugenics, Popenoe defined feminism as a foolish effort to eliminate biological, political, and economic differentiation between the sexes. In that book, he predicted that feminism would benefit the race by inadvertently reducing the number of feminists within the population: “Under the new regime a large proportion of such women do not marry and accordingly have few if any children to inherit their defects. Hence the average level of maternal instinct of the women of America is likely to rise.” Popenoe grew concerned when the passage of the Nineteenth Amendment (affording women the right to vote) strengthened the movement. He didn’t like how, after gaining suffrage, women began to demand access to other institutions, like higher education. He believed an education distracted a woman from her most important role (you guessed it: motherhood!). In Applied Eugenics, he and Johnson wrote that the typical college girl “had been rendered so cold and unattractive, so overstuffed intellectually and starved emotionally that a typical man does not desire to spend the rest of his life in her company.”

What if cautiously accepting certain institutions in spite of their nefarious roots is necessary to their transformation?

Popenoe also blamed Margaret Sanger for the degradation of the race. She had promised that birth control pills would weed out “idiots,” delinquents, alcoholics, and prisoners. In reality, Popenoe complained, the lower classes were breeding faster than ever, while middle- and upper-class women were taking the pill after two children or even before giving birth to any. (Sanger’s promotion of birth control among all classes and races eventually led to her excommunication from the eugenics movement, a fact that Thomas overlooks in his opinion.)

In 1930, Popenoe opened a counseling clinic to redress the devastating impact of feminism on the American family and instruct on the principles of good breeding. He wanted to ensure that only certain people got married and that, once married, these people stayed married and reproduced. Dubbed “Mr. Marriage,” Popenoe advised dating couples of their genetic risks and used a personality test to assess compatibility. He intervened in disputes and scolded individuals for disobeying gender conventions. In 1953, Popenoe founded and authored the popular advice column “Can This Marriage Be Saved?” in Ladies’ Home Journal.

Thanks to Popenoe, marriage clinics popped up across the country, giving rise to the American Association for Marriage and Family Therapy, which today represents over 24,000 marriage and family therapists. The long half-life of the early marriage industry contradicts popular belief that eugenics waned after World War II, when Hitler’s unpopularity and scientific challenges to the movement led to decreased involuntary sterilizations. As Wendy Kline explains in Building a Better Race: Gender, Sexuality, and Eugenics from the Turn of the Century to the Baby Boom, eugenicists simply found alternative methods to achieve their means: talk therapy and “voluntary” sterilization, among others. After Popenoe died in 1979, his torch passed to figures like James Dobson, founder of the organization Focus on the Family and host of the radio program of the same name; Popenoe’s own son, David, who writes prolifically on traditional family values; and other crusaders for the nuclear family in churches and local communities.

But wouldn’t it be wrong, both logically and morally, to suggest that couples counseling doesn’t meaningfully help people today? Stigmas already prevent some individuals from pursuing this resource; discrediting it because of its dubious heritage could mean that even fewer people benefit from counseling — and therefore, from the social and economic advantages of marriage. Isn’t this scenario similar to what Popenoe had in mind when he initiated couples counseling? What if cautiously accepting certain institutions in spite of their nefarious roots is necessary to their transformation?

In the mid-century, religious and community leaders made up the vast majority of couples counselors; by the end of the century, psychologists, social workers, and trained professionals primarily fulfilled this role. With this changing of the guard, there was a shift in thinking about marriage: from purely moral terms to behavioral and medical ones. Even if moral biases continued to influence individual practitioners (as they do all human services), counselors increasingly considered research and evidence-based practices in the therapy setting. It is estimated that almost half of American couples today have attended counseling with a partner, with the majority finding it useful. Insofar as it allows individuals to repair relationships with their partners, family counseling can greatly improve people’s lives. Any critique of counseling should consider this reality. The intentions of its early proponents are far less relevant, and we do more to subvert those intentions by accepting counseling than by nixing it.

When we impose a dark history onto the present, whether for political or moral gains, we often just re-inflict the violence of that past on those we nominally seek to protect.

Thomas’s abortion-as-eugenics-via-birth-control argument fails precisely because he tries to cut-and-paste eugenics history, overlooking differences between eugenic visions of birth control and popular attitudes about birth control (including abortion) today. The irony, of course, is that Thomas’s genetic fallacy rehearses eugenicists’ hereditary logic, placing undue emphasis on origins. Whereas eugenicists dehumanized certain people because of their perceived poor roots, Thomas discredits birth control because the roots of the organization that championed it (Planned Parenthood) entangle with those of eugenics. Had he applied more scrutiny to his subjects, he might have acknowledged that many disabled persons and people of color support birth control and abortion, believing both practices to provide economic security and expand their civil liberties. If eugenicists imagined birth control weeding out certain groups, many members of marginalized communities regard it as a technology necessary to broader struggles for social justice. In Sanger’s day, African American scholars like W.E.B. Dubois thought the same, supporting birth control while adamantly opposing involuntary sterilization.

Had Thomas more carefully considered the differences between state-sponsored sterilization campaigns and abortion practices today, he might have realized the ways in which abortion actually does intersect with eugenics. Toward this end, he might have examined the pressures placed upon certain women to abort. Cuts to prenatal care under Medicaid or caps on welfare benefits based on family size are deliberate measures to prevent poor women from reproducing. This becomes very clear when lawmakers promoting such policies suggest we need to stop women from having babies just to get another few hundred dollars a month. The burden that the medical profession places upon disabled women to abort for non-medical reasons is also deserving of discussion. But rather than acknowledging these efforts to restrict women’s reproduction in the interests of society, Thomas targets the women who are subjected to them. In doing so, he forecloses meaningful conversation about how the logic of eugenics truly reverberates in our time.

Of course, Thomas is not the first to invoke a historical atrocity to discredit something or someone in the present, nor will he be the last. Last year, revelations of Hans Asperger’s Nazi connections prompted some to question the clinical significance of his findings on Asperger’s syndrome, as well as the use of the term to describe certain individuals on the autism spectrum. Like the invocation of eugenics, this instance raises questions about when — and how — to consider backstories when evaluating practices that seem neutral or even positive today. We need to properly contextualize past and present practices to avoid abstractions like Thomas’s. It is equally important to engage the voices of those impacted. When we impose a dark history onto the present, whether for political or moral gains, we often just re-inflict the violence of that past on those we nominally seek to protect.

***

Audrey Farley recently earned a PhD in English at the University of Maryland, College Park, where she studied 20th-century American literature and culture. Her writing has appeared or will soon appear in The Atlantic, The New Republic, The Washington Post, Narratively, Lady Science, Public Books, ASAP, and Marginalia Review of Books.

Editor: Ben Huberman Fact-checker: Ethan Chiel Illustrator: Tom Peake

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Fascinating! Merck tests temperature-controlled drug delivery by drone in remote locations https://www.fiercepharma.com/manufacturing/merck-and-collaborators-launch-literally-drone-delivery-temperature-controlled-drugs …

With test, Merck takes temperature-controlled drug delivery by drone from remote idea to remote...

Drugmakers have speculated about delivering temperature-sensitive vaccines and drugs to remote locations using drones. Now, Merck & Co. is testing the method.

fiercepharma.com

9:46 AM - Jul 13, 2019

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Alexandra Fulford @pharmaguapa

Alexandra Fulford is a digital and social media strategy expert who specializes in the pharmaceutical industry. From social media processes to strategy and implementation, her expertise shines across several sub-areas of the pharma industry, and she is also a strong proponent of patient advocacy. In addition, Fulford plays an active role as a Hashimoto’s patient, where she shares support and resources with other patients. She speaks fluent French, Spanish, and German, in addition to basic Mandarin. If you’re interested in cross-cultural pharma topics, she’s your gal to follow. Fulford has extensive experience working with pharma companies including Astra Zeneca, Novo Nordisk, Roche, Novartis, Merck Serono, Sanofi, and others. Her projects have included developing and running digital and social media training programs and workshops, developing cross-functional local-to-global implementation processes and strategies, and more; her passion lies with pharmaceutical digital strategy and marketing. Specifically, she is focused on how the industry can use social media and new digital technologies in order to positively impact patients’ lives. Follow Alexandra Fulford and her blog, and be sure to become a follower of hers on Twitter.

Alexandra Fulford@pharmaguapa

Not overly surprised RT @richmeyer: Only 34% of physicians feel that pharma websites are trustworthy https://worldofdtcmarketing.com/only-34-of-physicians-feel-that-pharma-websites-are-trustworthy/ … #pharma #hcmktg #digitalhealth #MMMNews #pharmaforum #pharmatimes #pharmaexec #doctors20 #hcsmeu #hcsm #pharma

Only 34% of physicians feel that pharma websites are trustworthy

KEY TAKEAWAY: A survey by the Decision Resource Group reveals that only 34% of physicians feel that pharmaceutical websites are trustworthy. Even fewer (barely a quarter of the 2,784 doctors survey…

worldofdtcmarketing.com

8:06 PM - Jul 16, 2019

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Still interested in advancing your skillset in this high-powered, quickly changing industry? Attendingpharma marketing conferences is one of the best ways to keep up with and soak in all the latest news and advancements in the industry on a consistent basis. They usually fill up quickly, so be sure to secure your spot as soon as possible.

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mrlongkgraves · 5 years

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SPG47 research brings hope to families

Robbie and Molly [PHOTOS COURTESY OF KASEY EDWARDS]

“Mama Kasey — I spy!” I smile. Robbie wants to play “I spy with my little eye.” She’s actually quite good and relishes the enthusiasm she gets when she’s right. In fact, recently, we were with someone who was unfamiliar with the routine. After Robbie answered correctly, she waited. Though complimented, it wasn’t enough. Robbie gently took this woman’s hand, looked her in the eye and said, “clap.”

Every day with Robbie introduces new revelations of her effervescent personality. She is boisterous and bubbly, bossy but sweet. At 5 years old, she’s exceeded what I expected her to attain even as an adult, given her ultra-rare neurodegenerative diagnosis of SPG47 two and a half years ago.

We are concerned about her mobility. Every growth spurt causes balance issues and muscle tightening. We’ve thought she lost her ability to walk more than once, yet she perseveres and regains her (precarious) equilibrium. We never know if “today” will be the day she’ll never walk independently again.

Robbie and her friend Molly are the driving motivation behind Cure SPG47, the non-profit we parents founded to initiate and fund research towards stopping or slowing the progression of this disease. Molly, too, makes progress daily, especially with speech and cognition. She is forming longer sentences, asking simple questions and commenting on her observations; a true joy for her family to see. She struggles with her walking; there are good days and not so good days. Yet she is most determined; nothing gets in her way of accomplishing what she wants to do.

Like our girls, Cure SPG47’s research is also flourishing. Unwavering determination and initiative from our human neuron research program’s principal investigator, Dr. Darius Ebrahimi-Fakhari , significant support from the Translational Neuroscience Center (TNC), and their partnership with the Manton Center for Rare Disease Research has lead to an international registry and natural history study for AP-4 associated hereditary spastic paraplegia. This study has shown that when any of the AP-4 subunit genes are defective, the clinical phenotype is essentially the same. This connects SPG47 (AP4B1) with three other SPGs: 50 (AP4M1), 51 (AP4E1) & 52 (AP4S1).

Potentially, drug-screening research at Boston Children’s may help identify a treatment, which benefits all four of these diseases. Since the registry and study began last June, 42 cases of SPG47 have been registered, with a total of 110 cases including all four disorders. Most case findings are the result of hundreds of personal emails from Dr. Ebrahimi-Fakhari, our biggest champion. This has connected clinicians and investigators from around the world with the Boston Children’s team. And, due to an overlapping of phenotypes with cerebral palsy, we are expanding the search for AP-4 cases that may be identified through genetic testing of patients with a presumed diagnosis of cerebral palsy.

Dr. Ebrahimi-Fahkari has been invited to present these findings at the American Academy of Neurology conference in May. We have been told that this opportunity could put SPG47 and the related AP-4 disorders on the map very quickly, at a level we could not have anticipated.

In December, the TNC hosted a Cure SPG47 research conference with experts from around the country and overseas. Early on a comment a struck me: “While we’ve learned a lot, there is still much we don’t know.” I fought back tears as the gravity of our intentions and the reality of my scientific ignorance collided. What are we doing? But this feeling was fleeting. I witnessed renowned specialists and brilliant minds carefully and passionately advise, debate and eventually agree on pertinent issues geared towards attaining the utmost safety and efficacy of the therapies that may be identified to treat our children. By the end, I swelled with hope and pride. To choose this path as a parent is terrifying, but to travel it with these experienced and compassionate specialists is exhilarating. And they have mapped our course.

Molly and Robbie with their parents at Disney World

To start, we strive to propagate the news of our research and natural history study to all relevant outlets; we must find the cases we suspect exist. We plan to share reagents (antibodies, mouse models, fibroblast and iPSC lines) to researchers and labs interested in collaboration; there is so much more we can learn. We will begin working with the FDA towards a human clinical trial; our gene therapy research, led by Dr. Mimoun Azzouz at the University of Sheffield, is beginning to show promise. Our action items are ambitious, but so are we.

And myself? I need to hug my daughter, play a game of “I spy,” clap and count my blessings.

Learn more about the Boston Children’s Department of Neurology.

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from Thriving Blog https://on.bchil.org/2IjqADS

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