“If you have time to watch Netflix you have time for a side hustle” my side hustle is relaxing so that my body and brain can heal from by this nose-to-the-grindstone bullshit. I refuse to feel guilty for being a human with the need to relax sometimes. my side hustle is no.
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"that woman character in your art straight up looks like a dude!" hey man i don't mean to scare you but sometimes there's women who look like dudes. in real life
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I keep having to tear down extremely predatory/misleading Scien.tology flyers in my school's art building. This is the third fucking time I've ripped the fuckers up and I'm getting Real Fucking Tired of it.
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YOU ALREADY KNOW WHAT TIME IT IS
More GOOD OMENS
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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hey btw if you're in the USA at 2:20 p.m. ET on Wednesday, Oct. 4, they're testing the emergency broadcast system. your phone is probably going to make a really loud noise, even if it's on silent. there's a backup date on the 11th if they need to postpone it.
if you're not in a safe situation and have an extra phone, you should turn that phone completely off beforehand.
additionally, if you're like me, and are easily startled; i recommend treating it like a party. have a countdown or something. be surrounded by your loved ones. take the actions you personally need to take to make yourself safe.
i have already seen mockery towards any person who feels nervous about this. for the record, it completely, completely valid to have "emergency broadcast sounds" be an anxiety trigger. do not let other people make fun of you for that. emergency sounds are legitimately engineered to make us take action; those of us with high levels of anxiety and/or neurodivergence are already pre-disposed to have a Bad Time. sometimes it is best to acknowledge that the situation will be triggering for some, and to prepare for that; rather than just saying "well that's stupid, it's just a test."
"loud scary sound time" isn't like, my favorite thing, but we can at least try to prevent some additional anxiety by preparing for it. maybe get yourself a cake? noise cancelling headphones? the new hozier album? whatever helps. love u, hope you're okay. we are gonna ride it out together.
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There's a mistake I see a lot of people in the mental health community make and in all honesty, it's one I've made myself. But I think we should really work on it. And that's saying "if this were a physical illness, wouldn't you care?"
I've learned that no actually, people wouldn't care. Katelyn Weinstein (theADHDprincess on Twitter) is a neurodiversity acceptance activist who really put this in perspective for me. She said that it's actually more an issue of longevity than physical vs mental health.
If you're having a bad day people will generally be understanding. But when you're experiencing chronic depression and you have many bad days people lose sympathy.
In the same respect people may be understanding when you've broken a bone that will heal properly or when you have a cold that will go away soon in ways they simply won't understand when you have chronic pain or need to use a wheelchair. They may send chicken soup for a temporary situation, but when you need consistent accomodations it's an entirely different story.
I understand that from our perspective it looks like people care more about physical health than mental health, but it's good to remember that our own perspective is also limiting. Facing ableism doesn't mean you can't be ableist. And I know so many people are not ill-intentioned when they say this. I know I wasn't. But we can't discount the lived experiences of physically disabled people. If we want true equality we need to be united and we need to listen to those with physical disabilities and illnesses. And those with physical disabilities and illnesses (some of which are also invisible) have said that they are not given proper accomodations either.
So let's be united and fight for equality and accomodations for everyone, no matter what their illness or disability may be.
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