im used to getting up, getting dressed, and going to work and my shift today is later in the morning than my bakery shift usually is (but it's also earlier than catering shifts usually are for me) and idk what to do for the two hours before my shift so im going to the store 👍
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one of my beloved friends (very autism) was in.. not denial but ignorance sounds mean. but that abt themself last time you brought up the raads r test so i sent it to the gc (full of autism) and they were like psh. fake test no one could get below 100. they know now but i think about it so much
The thing is. When you take the autism test. And you see your score is in the 100 to 160 range. You think. Oh this is probably the middle? Middle autism. Tinge of autism. Your relatives calling you bright but shy autism. Just a whiff of autism. And then you see the score ranges. And you go. This test is lying to me there is absolutely no way the majority of people score under 65. The 65 number is such a low cutoff and so many of these experiences are clearly universal a score under 65 is something they made up in a lab. People who score under 65 are obviously scoring just under that mark from 59 to 64 and they’re also obviously lying or purposely misrepresenting their experiences as less severe than they are. And then you find out there are real people who get a 20 or 30 or 7 on it. And you go. Ah
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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First art of the new year is all about re-structuring your internal monologue.
In my early 20s I was working full time in London with many social commitments and a variety of hustles and side projects.
In my later mid 20s I cater to many sensory and social drain needs I have and indulge in special interests while respecting my lower energy reserves and celebrating my different way of processing the world.
Did I get more autistic? Nah. I got less fake.
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[Art description: Three panels showing figures on a black background. Long descriptions follow.
1. A drawing of OP as a person with hip-length hair and a dress standing sadly with her hands clapsed together in front of her. She is coloured a muted rainbow gradient. Behind her, two pairs of nondescript figures chat while smiling. White text says, ‘I’m getting more and more autistic the older I get.’ 2. OP’s colours are brighter, and her expression looks happier. Crayon-like scribbles have crossed out the text from the previous panel. 3. OP’s colours are vibrant, and she balances on one leg and throws her arms out as she dances. The text above has changed to say, ‘I’m becoming more and more myself the older I get.’ \End descriptions]
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we don’t talk enough about how difficult it must be for Clark to see grown-up Damian, decades after Bruce is dead and gone. how he looks just like his best friend, his closest colleague, except for the eyes — the eyes are the one thing that no one else can ever match. 
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you're grabbing lunch with a nice man and he gives you that strange grimace-smile that's popular right now; an almost sardonic "twist" of his mouth while he looks literally down on you. it looks like he practiced the move as he leans back, arms folded. he just finished reciting the details of NFTs to you and explaining Oppenheimer even though he only watched a youtube about it and hasn't actually seen it. you are at the bottom of your wine glass.
you ask the man across from you if he has siblings, desperately looking for a topic. literally anything else.
he says i don't like small talk. and then he smiles again, watching you.
a few years ago, you probably would have said you're above celebrity gossip, but honestly, you've been kind of enjoying the dumb shit of it these days. with the rest of the earth burning, there's something familiar and banal about dragging ariana grande through the mud. you think about jeanette mccurdy, who has often times gently warned the world she's not as nice as she appears. you liked i'm glad my mom died but it made you cry a lot.
he doesn't like small talk, figure out something to say.
you want to talk about responsibility, and how ariana grande is only like 6 days older than you are - which means she just turned 30 and still dresses and acts like a 13 year old, but like sexy. there's something in there about the whole thing - about insecurity, and never growing up, and being sexualized from a young age.
people have been saying that gay people are groomers. like, that's something that's come back into the public. you have even said yourself that it's just ... easier to date men sometimes. you would identify as whatever the opposite of "heteroflexible" is, but here you are again, across from a man. you like every woman, and 3 people on tv. and not this guy. but you're trying. your mother is worried about you. she thinks it's not okay you're single. and honestly this guy was better before you met, back when you were just texting.
wait, shit. are you doing the same thing as ariana grande? are you looking for male validation in order to appease some internalized promise of heteronormativity? do you conform to the idea that your happiness must result in heterosexuality? do you believe that you can resolve your internal loneliness by being accepted into the patriarchy? is there a reason dating men is easier? why are you so scared of fucking it up with women? why don't you reach out to more of them? you have a good sense of humor and a big ol' brain, you could have done a better job at online dating.
also. jesus christ. why can't you just get a drink with somebody without your internal feminism meter pinging. although - in your favor (and judgement aside) in the case of your ariana grande deposition: you have been in enough therapy you probably wouldn't date anyone who had just broken up with their wife of many years (and who has a young child). you'd be like - maybe take some personal time before you begin this journey. like, grande has been on broadway, you'd think she would have heard of the plot of hamlet.
he leans forward and taps two fingers to the table. "i'm not, like an andrew tate guy," he's saying, "but i do think partnership is about two people knowing their place. i like order."
you knew it was going to be hard. being non-straight in any particular way is like, always hard. these days you kind of like answering the question what's your sexuality? with a shrug and a smile - it's fine - is your most common response. like they asked you how your life is going and not to reveal your identity. you like not being straight. you like kissing girls. some days you know you're into men, and sometimes you're sitting across from a man, and you're thinking about the power of compulsory heterosexuality. are you into men, or are you just into the safety that comes from being seen with them? after all, everyone knows you're failing in life unless you have a husband. it almost feels like a gradebook - people see "straight married" as being "all A's", and anything else even vaguely noncompliant as being ... like you dropped out of the school system. you cannot just ignore years of that kind of conditioning, of course you like attention from men.
"so let's talk boundaries." he orders more wine for you, gesturing with one hand like he's rousing an orchestra. sir, this is a fucking chain restaurant. "I am not gonna date someone who still has male friends. also, i don't care about your little friends, i care about me. whatever stupid girls night things - those are lower priority. if i want you there, you're there."
he wasn't like this over text, right? you wouldn't have been even in the building if he was like this. you squint at him. in another version of yourself, you'd be running. you'd just get up and go. that's what happens on the internet - people get annoyed, and they just leave. you are locked in place, almost frozen. you need to go to the bathroom and text someone to call you so you have an excuse, like it's rude to just-leave. like he already kind of owns you. rudeness implies a power paradigm, though. see, even your social anxiety allows the patriarchy to get to you.
you take a sip of the new glass of wine. maybe this will be a funny story. maybe you can write about it on your blog. maybe you can meet ariana grande and ask her if she just maybe needs to take some time to sit and think about her happiness and how she measures her own success.
is this settling down? is this all that's left in your dating pool? just accepting that someone will eventually love you, and you have to stop being picky about who "makes" you a wife?
you look down to your hand, clutching the knife.
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