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#Accomodations
lifewithchronicpain · 11 months
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If you don't need a cane, but you get one to signal disability because sometimes you get faint and need to sit, or whatever, as a cane user for years, go ahead. Please, if it makes claiming accomodations easier for you, even if you don't need it to walk, I don't care. This is your permission if you needed it.
Can I suggest that you can get a foldable one at CVS (they're great) so it's there when you need it? Shits fucked up, do what you need to do. Just beware there are assholes that won't care about the cane. But overall, it does make things easier and is easily purchased. Go for it.
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stellaltumi · 3 months
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setting up disability accommodations at school is so weird with internalized ableism. hearing someone else say that I am disabled and that my disability is disabling????? out loud!!! bonkers
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sunshinegremlin · 7 months
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CALLING ALL PPL WHO STRUGGLE TO KEEP A CALENDAR!
I used to keep a bullet journal years ago but I completely fell off it once COVID began. Since then, I have had no calendar to keep my life together.
As someone with ADHD, a calendar would help me stay sane, but every time I tried to get back into it, no matter what I tried, it never stuck. Therefore, my life was a mess.
But while reading a Webtoon (called "30 Minutes With You" if you're interested, it's really wholesome) the main character does daily doodles in her pocket calendar, and then it clicked.
I've been doing daily little doodles in my pocket calendar and I've generally kept up for two months now! Overall, it's been really fun AND has kept me more put together!
Here is an example:
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You can get a pocket calendar from Dollar Tree for $1.25 (if you're in the US and Canada)! I use blank office labels cut into the right size as the white squares I draw on just because it looks better.
This has also really helped my memory, because once stuff happens my brain forgets it immediately. It really makes me feel like my life is fuller and it's been easier to look back and see how far I've come!
Hope it helps! 💛
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youngchronicpain · 1 year
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Today in: things I've bought to compensate for my weakness and chronic pain.
Basically, it's a giant electric toothbrush for scrubbing grout and other bathroom things. I'm really excited to try it, scrubbing for long periods of time is really hard on my hands, wrists, and shoulders.
I've honestly been avoiding cleaning certain things because I know how much it will hurt. Which means they just get worse and worse, and harder and harder to clean. Fingers crossed it works!
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decora-kai · 2 months
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I been doing some thinking, about chronic illness and shit. I haven't gotten a diagnosis for anything yet, so I'm left to search for myself. I wonder if I might have fibromyalgia, Juvenile Arthritis or Pots. But recently, one of my friends caught COVID and it turned into long COVID. He has similar symptoms to me but not exactly the same. It's just making me theorise if potentially I have Long COVID, or if I had long COVID and it triggered the existence of something else.
The only thing is, I know that no medical professionals seem to take me seriously. Coming back to my point on my friend, In school, he has a newly adjusted timetable that allows him to only do half days, instead of a full six hours. I'm not sure if he is professionally diagnosed with Long COVID or not, but I really wish I was also able to have half days as sometimes, I just cannot go through with my day due to the pain I'm in or the fatigue I have. But I'm not diagnosed, which means I either have to have my parents backing me (and they are but they wouldn't back me so much as to allow me accomodations within school unless I'm diagnosed) ot get diagnosed which takes God knows how long. I don't want to seem like a lazy bitch because I literally don't even appear to be in pain to almost everyone, I mask it very well and I feel as though if i do try to get benefits in school without a diagnosis, i will be seen as a faker or just trying to skip school.
Luckily, my 8 week period of the exercises is nearly done, so I'll be able to tell my physio that it hasn't helped and has actually made me feel a bit worse and hopefully then I'll be closer to a diagnosis
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stardust-maple · 1 year
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The stress of school with a chronic illness is simply unreal.
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pasta-is-magnificent · 2 months
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Hi, you know how a lot of particularly short people need accessibility tools and options in some workplaces, homes, and elsewhere?
Tall people need some accessibility options and accomodations too. I'm the tallest person at my workplace by a good half-a-head and while in a number of ways its very convenient its also very limiting when it comes to the actual paint booth i work in.
I can't work in the front side of the paint booth bc the stuff i would have to paint there is so low to the ground it pushes my diaphragm in to bend that low and i can't breathe. I can't work on the middle part for too long because its a raised platform and a lot of the things to paint there require leaning/bending down to reach and also having to work around a doorway not built for people over 6'.
Just a reminder for any o y'all that think being 6'4" is only upsides or that tall people don't need accomodations too.
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self-harm-addict · 5 months
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I shouldn't have to JUSTIFY my EXISTENCE to anyone!
YOU think you deserve to speak for us?
You think you KNOW what we want?
YOU think your outside opinion is more important than ours?
We do have a voice.
We know what we want.
We are the experts on our own lives.
We may be non speaking, blind, deaf, have an intellectual disability, or a neurodivergence, but we are PEOPLE.
Not infants
Not broken
Not monsters
Not evil.
Shut the fuck up and LISTEN to us.
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If you are disabled, you are entitled to an opinion on how the accommodations and accessibility tools that you rely on are used and presented. Disabled people are bound to have different preferences. There will always be different accommodations and resources that feel more comfortable or more awkward to any given person. That is okay and valid.
Similarly, if you are not disabled or do not rely on certain accomodations, you do not have a say in how those specific accommodations are used or presented. Instead, you can be quiet and listen to the ideas and experiences of people who are in fact disabled and who do in fact need those specific accommodations.
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munchymunchkin · 9 months
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sigynsilica · 7 months
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Speaking of accessibility which I know no one was but we should've been
The plastic bags at grocery store checkouts aren't just bad for the environment
I've seen elderly people with arthritis or Parkinson's brought nearly to tears at the self-checkouts because they can't get the stupid plastic to stop sticking together and they're too embarrassed to ask employees for help. Those people need bags for their merchandise and they can't get them because they weren't designed with anything in mind but profit.
Half the time I can't even get them to quit acting weird and I'm able bodied
Proposed solution: go back to paper bags. At least they're biodegradable and they open way easier
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sparethedreamer · 7 months
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It's incredible that chess.com, the self- proclaimed #1 chess community, doesn't offer adequate accessibility features.
They're lacking subtitles on videos, despite it being suggested over 10 years ago and with people volunteering to add them. There have been requests to add better accessibility for those with visual impairments as well as those who struggle with coordination.
There's probably a ton more that I'm missing. I don't mean to exclude them, I just don't have the energy to deep dive into it right now (due to my chronic illness).
Anyone more knowledgeable about this stuff? Anyone else notice this? Is there anything that can be done? Any other thoughts/insights?
Chess.com, if you're reading this, please consider looking into adding better accessibility features to your website, app, and all other related products/content.
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lifewithchronicpain · 2 years
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A wheelchair user was left stranded on a plane for over an hour and a half after airport staff failed to assist her off the flight.
The Gatwick Airport staff never arrived to help Victoria Brignell off her flight from Malta.
She is calling for the aviation sector to change, with redesigned planes that cater to wheelchair users. (Read more at link)
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solsticeivy · 7 months
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I wish that employers understood that not treating us differently because we're disabled doesn't mean hold us at the exact same standards as everyone else since... again, we are disabled. It means don't belittle us. Don't assume we can't do something. Don't dismiss our concerns.
Don't talk down to us. Be fucking patient with us. Understand that we often have to work so much harder than you know to achieve the same level of work. Acknowledge our work, our effort. Make fucking accomodations.
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nightbunnyusagi · 1 year
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It's just so important to have understanding people in the environments you go. Accomodations doesn't have to be a big deal, you're not trying to bring attention to you or make it about you, you're taking care of yourself and being cared for.
I went to a party and I knew all could be very overwhelming for me, so I was offered - if needed - an empty room to go to if I needed sometime alone. I could've not even needed it, but the option was there, which already made me way less stressed out.
I ended up needing the room, I spent an hour there, I cried for a good 30 minutes non stop because everything was so loud, I missed the cake. People checked on me, got me my headphones and a piece of cake, a friend called me and I had time to calm down and go back to the party.
I've never felt so cared for. It wasn't a big deal, people were not going out of their way for me, but I was provided accommodations in order to be able to participate in that event. That's how people shown me I was wanted, that they respect my difficulties without seeing it as a drag or glamourazing it.
I had such a great time (even with the fact that I got overwhelmed) and I can't imagine how it would've been if I didn't have this. The simple fact that you have the opportunity to use an accomodation - even if you don't end up using - already lightens up A LOT of the stress involved because you have a plan on what to do.
It's huge to be able to enjoy something even when it doesn't go perfect. People deserve this kind of feeling and to be looked out for (with complicity and not as a child).
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wasp-jar · 5 months
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Sometimes I think "i should get a wheelchair" bc I can't feel or move my legs rn but then I remember I can't afford that so.. oh well?
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