mindfogandsleep

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Shout out to people who do fit the stereotypes for their disorders. The symptoms that are deemed ‘wrong’ and ‘incorrect’ by most of social media. You exist and that is okay.

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TL;DR of the post above:

Sleep with me is an amazing podcast, which can be so helpful for people in general but especially Spoonies and you should check it out.

#josie's life #spoonie #chronic illness #myalgic encephalomyelitis #fibromyalgia #sleep with me podcast #sleep podcast

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Hey all!

I wanted to pop in again to recommend this podcast. I've been using sleep with me to help me sleep for over 2 year now and it's such a game changer for me. It almost always helps me get to sleep!

Scooter, who makes it, has created an environment that is comforting and reassuring in the deep dark night. He knows how alone it can feel and makes episodes well over an hour long to help you drift off or to be there if you aren't able to drift off.

I love the morals of the podcast as well, Scoots speaks about the importance of not just saying things like Stop AAPI hate but actively working towards it. He showcases charities that are doing amazing work, encouraging people to get involved with them or ones close to their own hearts.

Right now, the podcast has a referral scheme going on, meaning listeners have the chance to earn premium content by getting other people to listen to the show. I'm currently 3 referrals away from getting a year's worth of Sleep With Me+. So please, if you need a comforting friend to get you through sleeplessness, click the link above and try out Sleep With Me.

#josie's life #chronic illness #myalgic encephalomyelitis #fibromyalgia #sleep with me podcast #sleep podcast

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Honestly as a blind person I’m so tired of seeing fictional blind characters who don’t use white canes or other guides. “They have special powers so they know what’s around them” or “they’re confident enough to not need a guide” are common tropes, and I’m tired.

Are people scared that using a white cane will make their blind character seem weak? They can’t use a cane because they’re so special that they already know what’s around them, and other blind people who use guides are inferior because they’re not special?

I’m tired. Give your blind characters white canes and other guides. Let them hold onto their friends, let them have guide dogs. Don’t make white cane users feel ostracized for not being “strong enough” to go without.

Another thing that pisses me off is when a sighted character comes up with the fantasy equivalent of braille and teaches it to the blind character. Braille was invented by Louis Braille, a blind man, in 1824. The blind character should be the one coming up with it.

Tldr I’m blind and tired of sighted people lol

🔪 Sighted People MUST Reblog This 🔪

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sudden urge to burst into tears. im not a toddler i just agree with their beliefs

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does anyone else wish they could switch bodies with someone/give their pain to someone to see how that person reacts? like, am i being too over dramatic or is it really that bad? can they white knuckle it or are they also kneeling over in pain??

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shoutout to everyone dealing with. thhe fucking difficulty

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I wish I could sleep as easily as my cat sleeps. Girl easily wakes up for a snack then comes back to bed and is asleep again all within like 10 minutes? While I'm here like I'm too hot I'm too cold I'm achy I'm exhausted please let me sleep.

#josie's life #spoonie #chronic illness #cfs #myalgic encephalomyelitis #fibromyalgia

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"people show their true colours in life threatening situations" no, they show you what they act like when they're mortally terrified, an emotion notorious for literally turning your entire brain off to the point where people who go into those situations as a profession need to be literally trained on how to not have that happen

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When a chronically ill or disabled person gets their lab tests back as “normal” or all clear, we aren’t sad because we WANT to be sick.

We’re sad because we *know* there’s something wrong with us, yet the scans still stay clear.

Before you kill the monster you gotta know its name.

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#brainfog

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i am in fact NOT being very brave about it and will whine and complain until i die. As is my right

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On this Valentine's Day, here are some reminders from a disabled person:

Disabled people can be sexy.

Disabled people can have fulfilling romantic relationships and sex lives.

Disabled people don't owe you details of their sexualities.

Asking disabled people sex related questions is invasive and creepy as fuck. More so if they're strangers.

People who are married to or in long term committed relationships with disabled partners are not heroes.

Fuck ableists.

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compulsory abledness also (partially) explains why disability aids are forced onto some people and denied from others

prosthetic limbs are forced onto amputees whether they want them or not because the goal is to make disabled people look as abled as possible. whereas, all sorts of people who would benefit from mobility aids are often denied them until it’s a “last resort” because! you guessed it! the goal is to make us look as abled as possible

neither person in this situation is privileged. it’s just that the same harmful phenomenon impacts different groups in different ways